I had mt thyroid removed 6 years ago, since then I've been on Levothyroxine. My surgeon recommended I started on 250 mcg daily according to my weight. GPs have always measured TSH, (which I have always struggled to get my head around) and I'm now on 100/125 alternating days. For the last 5 years I've suffered with a breathless feeling like I forgot to breathe and feel I need to really gulp the air into my lungs. Reasons for this have varied from Asthma, COPD to being fat. Over the last year I've suffered with lethargy, aching limbs, mood swings, neck ache, and every evening I get a feeling of pain across my back, shoulder blades shoulders and arms. It feels like I've been battered. Does this sound familiar to anyone? Are there any resources I can access to help me when I see the doctor? Any ideas how I can ease this? I'm being treated for depression with Mirtazapine, and take my thyroxine at night after discussions with a pharmacist.

3 Replies

  • Think we need to start with some basics....have you had the following tested ? - B12 - Ferritin - Folate - Iron - VitD. When these are OTIMAL then some of the symptoms you describe should lessen. Post the results with ranges when you have them - in a new post - and people will comment....as your doses will depend on results.

    You need good levels of Ferritin for the T4 you are taking to convert into the ACTIVE hormone T3. Low VitD can cause the aches and pains and low mood. Low B12 = Low mood and whole lot of other problems.



    Click onto Health Conditions on the above link and be amazed !

    The thyroid control moisture levels in the body and Asthma can be due to low levels of moisture in the lungs. Have you had your anti-bodies tested - for Hashimotos ? They are Anti-TPO and Anti-Tg. These really need to be done.

  • Firstly TSH must never ever be used to titrate your dosage especially if you have Central Hypothyroid ( which is pituarity failure )

    2ndly clearly your symptoms are HYPOTHYROID and undermedicated

    plus being on antidepressants simply weakens your body further

    Go back to your GP and INSIST that

    Free T4

    free T3




    Vit d3 are tested

    in all likelihood t4 and t3 are very low in their range

    and the other 4 should be HALFWAY in their ranges but likely are not

    When you get the results insist on a print out ince reference ranges and post them here and we can soon help further

    meanwhile try and very slowly wean yourself off the antidepressants this wont be easy but it is vital

    Also check every item of cookware and ensure its not aluminium or non stick coated or foil since aluminium is an insidious poison which has cumulative and devastating effects on the body and the thyroid

    phone your water supply company and ask if any form of aluminium /alum is used in their treatment works or if fluoride is added to the supply

  • Hi Dave, and welcome. Just a quick thought about your breathlessness: this is sometimes due to low B12, which often afflicts the hypothyroid person. It's best to get this as high as possible, and bear in mind that the 'normal' lab range may not be normal for you, especially as NHS tests don't measure 'active' B12, only the serum total. I recommend Solgar sublingual methylcobalamin 1000 mcg as a good supplement.

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