First Endo Appt After 4 Month Wait: I have my... - Thyroid UK

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First Endo Appt After 4 Month Wait

Beehappy1 profile image
7 Replies

I have my first endo appointment next week. All of my GP tests for thyroid etc have come back as "normal", but I got referred just in case he had missed anything. Since then I have carried out my own private tests, including saliva cortisol test, which diagnosed Adrenal Fatigue Stage 1 - Adaptive Response. I have been treating this since Christmas, with adrenal glandulars and the usual thyroid support vitamins, and am starting to feel better .

To get the most out of my appointment, do I just go with the flow or should I say what I have done and take all of my test results with me?

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7 Replies
Marz profile image
Marz

How do the tests compare ? I would keep your private results up your sleeve - hear what the experts have to say and if your private tests indicate they are talking nonsense - then produce them !

Beehappy1 profile image
Beehappy1 in reply toMarz

I guess it is more that the GP wouldn't/couldn't do a comprehensive list of tests. He could only request TSH, whereas I got a full thyroid profile - TSH, T4, T3, FT4, FT3 and antibodies. Plus he couldn't even request D3, Active B12, Folate or the cortisol test.

Marz profile image
Marz in reply toBeehappy1

So well done you for taking the initiative and taking control of your own health. That way you will get well far more quickly. As Clutter says be prepared for a dismissive attitude.

Hope all goes well.....

Clutter profile image
Clutter

Beehappy, I'd say what supplements you are taking and provide copies of your private test results but don't be surprised if the endo is a little dismissive, many only trust their own hospital lab tests and results

nightingale-56 profile image
nightingale-56 in reply toClutter

But at least it would force their hand to do the necessary tests Clutter.

Joyia profile image
Joyia

Private test says cortisol off the scale, NHS test says normal, up the creek without a paddle I am afraid.

MJD14 profile image
MJD14

Hi - I'm afraid if my experience is anything to go by - I wouldn't hold out a great deal of hope...HOwever, my endo, after telling me that my private tests were a load of bunkum, did refer me on to a Fibro/cfs specialist which did prove more helpful.

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