Happy New Year!
Bit of history... four years ago I had a very bad bout of viral meningitis which resulted in my being unconscious for several days and in hospital for weeks; the virus causing it was never identified. Following the illness I didn't recover my strength and resulting investigations determined that I was hypo so I now take 100mcg Levothyroxine per day.
Fast forward to September this year when I get a really stiff neck and badly swollen parotid glands and the GP thinks I have mumps. Two weeks later I get a banging headache and exhaustion so they send me back to hospital thinking I have viral meningitis again - as it turned out I had neither but, hey, at least I talked them out of another lumbar puncture! So, two months later my left parotid and right submandibular glands are still swollen and sore so off I'm packed for tests. One of these was an ultra-sound during which the doctor said all four glands are enormous and that my thyroid is tiny; I have no visible tumour, cyst or stone and his view is that I have an autoimmune disease caused by being hypo - I have another appointment on Friday to discuss next steps and investigation.... and everything is still swollen and painful; I have pretty much lost my jawline under my left ear.
The reason I'm here is that I'm wondering if anyone has any experience of this sort of thing and also if anyone has any advice they could please offer around questions I should be asking? Last time I saw an endocrinologist she was so appallingly flippant that my lovely GP blew her lid and sent a letter of complaint so I'm a bit wary of being fobbed off again, forewarned is forearmed and all that!
Any and all advice / guidance / tips would be appreciated!