Has anyone who suffers from Hashimoto’s Thyroid... - Thyroid UK

Thyroid UK

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Has anyone who suffers from Hashimoto’s Thyroiditis experienced any side effects that could be related to Cynomel.

11 Replies
11 Replies
Clutter profile image
Clutter

Bomap, what side effects are you experiencing on Cytomel?

in reply toClutter

Thank you for replying.

Apologies, I had a senior moment.

I should have written Cynomel not Cytonel !

I was prescribed Cytomel previously and found it brilliant, also I could tolerate it.

Eventually this was it was stopped because it was too expensive!

I have serious ADR problems and refused liothyronine by Amdipharm Mercury due to reports that it had caused problems for other thyroid patients, plus the fact, availability had proven to be unreliable.

Side effects -- unable to state accurately, that is why I asked if others had experienced problems to which I could possibly relate.

Cynomel is certainly not as potent as Cytomel.

Clutter profile image
Clutter

Bomap, I've edited your title to read Cynomel which may prompt some responses.

Is ADR adrenal fatigue?

in reply toClutter

Thank you. ADR means Adverse Drug Reaction--not nice!

greygoose profile image
greygoose

I thought Cynomel and Cytomel were the same thing. Just different names in different countries. I've taken both and haven't noticed any difference.

Hugs, Grey

in reply togreygoose

For Greygoose

Sorry for delay in responding--I'm a bit under par at the moment.

CYNOMEL is available on line as an alternative to CYTOMEL.

You may be able to find out where by contacting Thyroid UK direct. Although I am not sure of their protocol.

CYTOMEL is now under the umbrella of Pfizer. Originally manufactured by Kings Pharmaceuticals.

It is very expensive in the UK tho' it is MUCH cheaper in USA & Canada.

The following link is very useful

pharmacychecker.com/about-o...

I hope this helps.

greygoose profile image
greygoose in reply to

Thank you, bomap. Please don't apologise! We all know what this disease does to us.

As I said, I have taken both (I'm not looking to buy it lol). I bought Cytomel on-line - can't remember from where. But now I'm being prescribed Cynomel by my doctor here in France. And they are both about the same price. So I really think the name is interchangable and, as I said, I haven't noticed any difference between the two.

When I said to an endo once that I was taking Cytomel, she very condescendingly said 'no, Cynomel, dear'. lol

Yes, it is very expensive in the UK! The price is exorbitant. Someone is making a hefty profit there and I can't understand why it is accepted!

in reply togreygoose

For Greygoose

Reading all the posts and questions here emphasizes how we are all different.

I have found that I need double the amount of Cynomel to Cytomel.

C'est la vie--couldn't resist this, hope you don't mind!

The reason why it is expensive---see the following links

telegraph.co.uk/news/uknews...

theguardian.com/public-lead...

The price variation re prices in USA /Canada and the UK is somewhere in the region between 700%-800%.

greygoose profile image
greygoose in reply to

This comes as no surprise! But it is scandalous! However, the solution is obvious: T3 should no longer be regarded as 'special', it should be standard practice. They only have themselves to blame!!!

Is it any Wonder that patients give up and start buying their own T3 on line? A la guerre comme à la guerre, ma chère! lol

Hugs, Grey

in reply togreygoose

Voila! a kindred spirit.

It is a never ending battle I am afraid, which hopefully, we will win in the end.

Take care and keep well.

greygoose profile image
greygoose in reply to

;)

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