Levothyroxine stopped because TSH is low

[chris2008]

Doctor tested my TSH (not been done for ages) and it was 0.27 (below normal range). Would it not be low anyway because of the thryroid I'm taking? How does the doctor know if it's low because the thyroid gland is working OK, or because I'm taking extra? I have been on 25mcg and 50 mcg of levothyroxine on alternate days .

[sazzyb]

Hi chris, it's a knee-jerk reaction by a doctor who hasn't got a clue. My suppressed TSH is usually below range and none of my three GPs over the years have taken any notice of it thankfully because i still feel crap and I'm on a 100mcg. I remember reading something years ago, think it was by Dr Lowe, who said 'a suppressed TSH is NOT the same as a low TSH.'

[chris2008 in reply to sazzyb]

Many thanks, will talk to her

[Tatty10]

Hi chris i have also had my levo reduced from 125 micro to 100micro as my tsh was just borderline low even though i explained to the endo that i felt really well i have no thyroid, so i just dont know why my tsh levels fluctuate, now i am expecting to feel crap and start gaining weight again

[3poppy3]

I agree with all the other posts and will add that many experts in this field say that the going by the TSH is not the best practice when diagnosing or dosing patients. Doctors should listen to how the patient is feeling and go on clinical signs and symptoms such as a low body temp, feeling tired, gaining weight etc... Blood tests are just that, how do doctors know how much of the active T3 is getting into our cells ? They don't and no blood test will tell them.

[silverfox7]

I totally agree with you on this and can't understand why intelligent GP's can't see the same. I've come to the conclusion that we aren't allowed to be normal (the real normal!).