Levothyroxine stopped because TSH is low

Doctor tested my TSH (not been done for ages) and it was 0.27 (below normal range). Would it not be low anyway because of the thryroid I'm taking? How does the doctor know if it's low because the thyroid gland is working OK, or because I'm taking extra? I have been on 25mcg and 50 mcg of levothyroxine on alternate days .

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8 Replies

  • Hi chris, it's a knee-jerk reaction by a doctor who hasn't got a clue. My suppressed TSH is usually below range and none of my three GPs over the years have taken any notice of it thankfully because i still feel crap and I'm on a 100mcg. I remember reading something years ago, think it was by Dr Lowe, who said 'a suppressed TSH is NOT the same as a low TSH.'

  • Many thanks, will talk to her

  • Hi Sazzy, what were your FT4 and FT3 like? Mine are often all in the below range or at low end of the range.

  • Hi chris i have also had my levo reduced from 125 micro to 100micro as my tsh was just borderline low even though i explained to the endo that i felt really well i have no thyroid, so i just dont know why my tsh levels fluctuate, now i am expecting to feel crap and start gaining weight again

  • TSH will always be low when you take any form of thyroid replacement hormones

    because the pituarity /thyroid feedback loop is satisfied trouble is doctors are too ignorant to recognise this basic biological fact

    Be very very sure to never take your meds for 24 hours before a test for thyroid and if you feel well on current dose never never agree to dropping it

  • Your TSH is fine its merely the normal response of the pituarity feedback loop

    many peoples TSH drops to zero because the feedback looop is satisfied

    the problem is doctors abject failure to understand basic biological fact

  • I totally agree with you on this and can't understand why intelligent GP's can't see the same. I've come to the conclusion that we aren't allowed to be normal (the real normal!).

  • I agree with all the other posts and will add that many experts in this field say that the going by the TSH is not the best practice when diagnosing or dosing patients. Doctors should listen to how the patient is feeling and go on clinical signs and symptoms such as a low body temp, feeling tired, gaining weight etc... Blood tests are just that, how do doctors know how much of the active T3 is getting into our cells ? They don't and no blood test will tell them.

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