Truly She's Hysterical (TSH)

[HarryE]

Very good blog!

hormonesmatter.com/medical-...

[missdove]

Hits the nail on the head!! :-S

[lola1956]

Excellent !!!!!

[Clutter]

Excellent read. What an arrogant sh!t her GP is!

[RoloHibbs]

Excellent blog - I've subscribed!!

I've been told similar things regarding my weight over the years, by ignorant doctors, possibly the most annoying of which was "No, nooo, dear, it's definitely not your thyroid - just eat less and get out in the fresh air a bit more... Why not try a game of tennis?" Tennis? TENNIS? The five minute walk to his surgery had nearly finished me off! This happened to me about 20 years ago and I was only diagnosed hypo 18 months ago.

It's so sad that we're continually fobbed off and disbelieved. If I were to list every symptom that I've presented to GPs over the years together with the hideous procedures I've had to endure as a result, the list just screams hypo, but it was beyond the wit of all of those medical 'experts' to look at the full picture and reach the diagnosis. I've been prescribed antidepressants and hormone replacement therapy time and time again by different GPs. My food intake, alcohol intake and mental health have all been questioned and deemed lacking in one way or another, according to my records. Of course, according to one doozie, my health problems "are somatoform in nature" and my problems "all have a functional basis". I'd have paid good money to see his face when my TSH came back at 50.8! Unfortunately though, these comments are still on my record. It all adds up to lazy, lazy doctoring.

Now, after two appointments and putting me on to T3 only, my Endo has fobbed me off onto his Registrar who says with great conviction (in a letter to my GP) that as my TSH is suppressed, my T4 is low and my T3 high, he's going to send me for a scan, as he feels I may have secondary hypothyroidism. The fact that I had a scan 18 months ago and I'm on T3 only seems to have alluded him.

I'm just so full of anger and so terribly, terribly fed up of fighting the so-called medical professionals for better care.

I must confess I threw my toys out of the pram and started myself on NDT two weeks ago without consulting any single one of them! So no doubt my mental health will be questioned yet again.

I'm pleased to say that I'm seeing improvements already - although you'll probably hear the explosion when I confess all at my next hospital appointment on 22nd April. Look out for the fall-out. I fear I shall be on my own then, but can I really be worse off than I am now?

Oh I'm sorry, this appears to have turned into a rant!. Apologies!!

Great blog though, HarryE - thanks for sharing it. It's heartening to know that there are others who have received similar appalling care but who have managed to retain their scathing sense of humour!

I know you're having similar problems with your care at the moment - keep your chin up - here's hoping you see improvements soon.

Karen.

[HarryE in reply to RoloHibbs]

No problem Karen, better out than in!!

Yes, the greatest line so far has been 'you should be grateful you're putting on weight, because the REALLY BAD things make you lose weight'. Total w@#£%&!

[sheenah in reply to HarryE]

Did I hear you say wa$$ock? Careful XX

[HarryE in reply to sheenah]

That wasn't what I had in mind, but it'll do.

[mickstability in reply to RoloHibbs]

Let us know how the NDT works out, and what they say when you do the big reveal!

[RoloHibbs in reply to mickstability]

Will do! I'm already 'practising' what I'm going to say, in my head, lol! The thing is, I'm on 60mcg T3 at the moment which is costing my GP a small fortune each month - If they refuse to prescribe NDT for me, I'd be happy to source it myself. Ideally I'd like their support, but I don't know if they'll be open to it. We'll see... :-). K.

[cat69]

Great Article and would be funny if not so sad.

[Jade_Joli]

It's a very good article and think a good proportion of us have had different levels of these kind of responses from GPs and consultants. It is an ingrained way of thinking and nothing seems to open their mind. Unfortunately, we the patients, bear the brunt of their blinkered view of thyroid disease. Don't know what it will take to shift their thinking, even in the face of obvious illness and clinicial symptoms, often ignored to the detriment of the patient.

[Neeta-K]

I did the same. For years I would weigh everything I ate (I had a set of little travel scales!)...and calculate all my calories so that I would never exceed my limit. Now I eat far more and don't exercise every day like before, and can eat with family without weighing everything...which drove my mum mad!

My parents would look at me like I was crazy....I remember weighing one pea, one grain of rice, one peanut...I couldn't eat anything unless it was weighed, which also equals no social life!

[BeansMummy]

I didn't know whether to laugh or cry reading the blog, is a bit close to home for so many of us. I will remind any doctors I see that TSH stands for "Truly She’s Hysterical" as it is obviously something they need reminding of - wouldn't want them to think it is associated with anything remotely "thyroid".

[tavy]

so true I have shared it on FB but I doubt anyone will read it. My Daughter once told me it makes me sound insane when i ranted on about how ill I feel all the time.

good luck in all your trials to be taken seriously. It took over two years and then hospitalisation for me. and im still fighting ignorance and predudice in the doctor and endo field

[HarryE in reply to tavy]

It is terrible, isn't it? I was dismissed with 'tiredness' by my dozy endo last week. If only I was just 'tired'.

[HarryE]

No, someone else might need it!

[RoloHibbs in reply to HarryE]

That's the way I feel, too! From all accounts I've heard that T3 costs £156 per month for 20mcg - and I'm on 60mcg! (I'm sure someone can tell me if that price is way off.) I'm not sure I could carry on filling the prescription - it would be so wrong. That's my dilemma - I think that whatever happens, I shall be on my own!

[HarryE in reply to RoloHibbs]

I know, I don't think I could bring myself to either in reality. But what a stupid cost when it is so cheap to buy online, so wrong

[plm1]

Was very affected by your experience. But plot, plan, focus first to get what YOU need at your meeting.