My Dr finally prescribed T3 alongside my T4. But as I didn't notice much difference I decided to stop taking T4 and up my dose of T3.

[Everdean]

I almost immediately lost my fibromyalgia and depression. Which was wonderful.

I have slowly increased my T3 but still my temperature is low and also my pulse .

Twice I have tried including T4 again ( for when I face the Dr again) but within a couple of days the feelings of depression come back.

Is this my imagination or has anyone else experienced this?

Thankyou

[shaws Administrator]

No, I don't think it's your imagination. For me it was the same, reduced T4 to zero increased T3 and was more or less back to normal. Sometimes our temp doesn't come back to what it was but how you feel is the most important clue.

T4 is only good if it converts enough of it to T3 and sometimes this doesn't happen.

Your GP wont like your blood test results if you take T3 alone as you will have a high T3, low or very low TSH, and low T4. He may panic.

When you get your blood tests, have it as early as possible a.m. and don't take meds till afterwards. I take my T3 at 7 a.m. and don't have it on day of blood tests till around 10.30 a.m. My test is then satisfactory.

[Everdean in reply to shaws]

Thank you Shaws. It helps to know someone else is in a similar position. I will remember not to take my meds on the day of the blood test.

[Hennerton]

I believe that the amount of T4 reduction when adding T3 is too great. You do not say what dose you are on, so it is difficult to be sure but I was given the combo by an Endo two years ago and found it hopeless. I then went to see Dr Skinner and he made me realise I was simply not on high enough medication. It was not that easy, however but I am gradually finding the right higher dose, along with iron supplements to help conversion. What I am saying is that you may find that if you took almost the same dose of T4 and added T3, you would find some benefit to temps and pulse and feel very well, although I am not sure how you square that with your GP.

[sandyandpaul]

i too am wondering whether to come off t4 completely ..

.I am on 77 1\2 t3 liothyronine and 50 mcg t4..liothyroxine

at 7.30am 1 x 12 1\2mcg t3.....at 1.30pm 1 x 20mcg t3..at 4.30pm 1 x 20mcg t3.... at 7.30 1 x 12 1\2 and 50 mcg t4 together...

i have been on this amount for 10 months now having rt3... and in the last 5 weeks i have began to feel hypo again.. all symptoms are coming back and i really don't know what to do about it.. my gp is rubbish ... dear dr skinner who has looked after me for the last 3 years has sadly passed away in nov last year...marvellous man..

i don't know what to do..my gp has always been against me using t3 but the backing i had from dr skinner gave me my life back tand had my gp prescribing me t3... any advise would be grateful appreciated...

[stephensmith]

I am currently on 50 Levo and 20 T3 for the past week. Feel no better. Looks like next visit to the endo , I will be asking for T3 only. From the day I started Levo my symptoms have been much worse. I seem to have a bad reaction to Levi. My GP will probably be more concerned about the cost !!!

[Everdean in reply to stephensmith]

It is difficult to judge the right way to go. Especially as many Dr's don't know either. Sadly cost does come into it.