Hello, I'm hypothyroid, when somedays are not ... - Thyroid UK

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Hello, I'm hypothyroid, when somedays are not good, and some okay, does anyone experience a strange phenomenon when your feeling okay.

DENISE profile image
19 Replies

And I say to myself, I've just realised im okay, then BAM the next day I'm feeling absolutely awful. I've had these experiencesa lot. Just so strange.

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DENISE profile image
DENISE
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19 Replies
chihiro profile image
chihiro

I'm not officially diagnosed yet but I know exactly what you mean. Some days I feel awful, dragging myself around and everything is an effort and then I'll feel a bit better and I can't explain why only to then go back to feeling awful.

Are you on meds?If you are maybe the dose is not right for you?

DENISE profile image
DENISE in reply to chihiro

Hi, yes I'm on levothyroxine 50mg, its definitely a strange thing though, and it's happened to me lots of times,and I could kick myself when I just think" Hey I feel okay" then the next day and several days later I feel dreadful, the mind has a lot to answer to!!!.

chihiro profile image
chihiro in reply to DENISE

Is this a recent development or have you always felt this way? How long have you been on levo? And last but not least,do you have recent blood test results,they might be able to shed some light on why you would be feeling this way. Sorry for all the questions :p

DENISE profile image
DENISE in reply to chihiro

Ive been on levo now for 5 years..But felt awful for many years before that. On top of that I have recently been diagnosed with lichen sclerosis and hyperkaratosis of the mouth, which I believe to be associated with poor immune system. .My doctor only tests for T4. Maybe im lacking something. .I had blood tests done in Nov but all came back normal.

HarryE profile image
HarryE in reply to DENISE

50mg doesn't seem much to me. Maybe you need more?

Jayne22 profile image
Jayne22 in reply to DENISE

Hi Denise

It isn't in your head! Hypothyroidism is such a complex condition. Have been up and down just as you and others describe for 30 years. Was even diagnosed with CFS at 41 and went through utter misery.....drs knew I was hypo, I was on meds but no one linked the two including me.

If your doc is going by TSH you are probably under medicated, might need T3. I'm on day 2 of a self directed T3 trial and waiting (hoping) for the miracle.

Can you access a decent doctor through TUK? It's the way to go- your energy swings won't go away and could get worse as you get older if you're vitamin or mineral deficient or under treated.

All the best

Jayne xx

HarryE profile image
HarryE

Yes me too. Yesterday I could hardly move and today I have left the house twice! A major success after the last month, I can tell you!!

DENISE profile image
DENISE in reply to HarryE

This illness has a lot to answer to, and it's true its definitely like the weather, you just can't predict if your going to feel calm or stormy, but you still have to ride the storm no matter what. .Hope you have lots of calm days..

HarryE profile image
HarryE in reply to DENISE

Not on any treatment yet, but hopefully will improve once that starts. But yes my hubby is not coping with it very well. I am usually so active & of course I look the same (although a bit bigger).

Jow11 profile image
Jow11

Yes, I'm hypothyroid, too and experience this. Some days I feel ok and then I feel weak and tired or achy or have a migraine.

mumcat2 profile image
mumcat2

I've had this happen lots of times, and these days only disappear when I'm on T3 as well as T4. I understand that many thyroid patients do better on more than just Levothyroxine.

661950 profile image
661950

Am relieved to hear that others feel the same as I do. Felt great Thursday and like death yesterday, my "Friend" told me that it is all in the mind and I think about it too much which makes me feel ill. If only she could understand that I DO NOT wish feeling ill on myself

ellarose1234 profile image
ellarose1234

Trouble is that Mother Nature knows just what to do for us. When we are left to the devices of doctors we get what we are given and natural changes are not taken into consideration. We can never be the same once the old thyroid has conked. I have just upped my Levo...I feel great now...was getting depressed and lots of cramp in feet and legs.Expect the doctor will not be very happy with me but after 20 years of this problem I know what I need more than he does.

koneko profile image
koneko

I'm not diagnosed but suspect hypo, I definitely have this feeling of being worse some days than others. The last few days I felt pretty bad, tired, achey and headache from about 8pm Thursday evening and still had it when I went to bed last night. This morning I woke at a sensible time, headache had finally gone and I actually don't feel too bad. Still not quite myself but an improvement. Unfortunately it never lasts though and I go back to feeling awful.

I have to have a repeat blood test soon and I can't actually remember how bad I was feeling when I had the last one last month, I wonder if it would make a difference. I would assume that levels would be worse if I'm feeling bad?

DENISE profile image
DENISE

What makes this illness worse sometimes is friends not understanding, or even your partner, let them walk a day in your shoes on your absolutely worst day..

661950 profile image
661950 in reply to DENISE

Absolute Denise, I have quite decided to just carry on as best I can on a bad day and not say a word to anyone about how rough I am feeling

DENISE profile image
DENISE in reply to 661950

Well it's a good job there are forums like these, with like minded people who know what you are going through. .

661950 profile image
661950 in reply to DENISE

Absolute Denise !

Purpledreamer profile image
Purpledreamer

I get it where I realise I’m not itching all over and think oh wow thank goodness that’s over with and then it comes back again. I do wonder if I bring it on myself by remembering it or if it is coming back slightly which makes me think of it if that makes sense?

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