My question is wat happens after surgery, will d hyperthyroid go finally does carb works for hyperthyroid an my neck still hard an bigger

[Okubadejo]

[shaws Administrator]

I cannot answer your question as I have hypothyroidism but this is an excerpt of an article by a top Endocrinologist from an article in Pulse Online:-

5 Patients with hyperthyroidism often ask for advice on drug treatment versus radioiodine therapy. Can you summarise the pros and cons of each?

The three treatments for hyperthyroidism of Graves’ disease – antithyroid drugs, iodine-131 and surgery – are effective but none is perfect.

Iodine-131 will almost certainly cause hypothyroidism, usually within the first year of treatment, as will surgery, given the move towards total rather than subtotal thyroidectomy.

There is no consensus among endocrinologists about the correct dose of thyroid hormone replacement so patients may prefer to opt for long-term treatment with carbimazole. Standard practice is that carbimazole is given for 18 months in those destined to have just one episode of hyperthyroidism lasting a few months.

But there’s no reason why carbimazole shouldn’t be used for many years in those who do relapse. Any adverse effects such as urticarial rash or agranulocytosis will have occurred within a few weeks of starting the first course.

Iodine-131 treatment for toxic multinodular goitre is the most appropriate choice as hypothyroidism is uncommon. Surgery would be reserved for those with very large goitres and mediastinal compression.

Once hyperthyroidism has developed in a patient with a multinodular goitre, it will not remit and any antithyroid therapy would have to be lifelong.

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Hi

Yes surgery will 'cure' hyperactivity just like sawing your head off will cure a headache! It will then render you lifelong HYPOTHYROID and you will be reliant on drugs for the rest of your life. Which would be fine if the drugs available replaced what your own thyroid gave you (which is what they'll tell you) but in my opinion and in my experience and that of countless other TT patients, they do nothing of the kind.

Being thyroidless due to surgery is a VERY big deal - marginally preferable to being nuked which is what RAI is. But it should only be entered into if all other avenues have failed. It is a daily balancing act of keeping thyroid levels stable, and many people like me have to buy their own drugs and do it themselves (my endo supports this) because the treatment on the NHS is so inadequate. This is expensive and scary. Also being thyroidless can have massive implications for other hormones, vits and minerals, electrolyte and fluid balance, mood, fertility, gynae issues, massive weight gain. The list goes on.

Anyone considering a TT should be in full possession of the facts and truly understand their condition and all of its implications, do not rely on your doctor to do this for you, you must understand it yourself.

Why are you on CBZ? What is your diagnosis? What are your thyroid levels - pre treatment and now? Get print outs of all your results from the doctor ( you do not need to give a reason why you want them) and post them here.

Best wishes

Rebecca

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