Another thread suggested we should march on Downing Street with placards. 10/10 for enthusiasm! And for the idea. Sadly, I don't think we're allowed to do that anymore. However, surely it is time that we did SOMETHING, rather than just constantly trying to outwit health professionals?
So here's a suggested start. I shall send something to Mrs Spelman, I think, whether there's a deafening silence in response to what follows or not.
You will, perhaps, recall Mrs Spelman from this Parliamentary debate : publications.parliament.uk/...
I have located Mrs Spelman via google. Below is a draft of an email I can send her. If she is taking up cudgels on our behalf it is only sensible for us to try and shape the campaign she mounts and be a BIG part of it - as big as our individual states of health will permit. If any of you would like to add anything to the email, let me know soonest.
Would the the inspired soul who first approached Mrs Spelman like to PM me? I'm slightly concerned that she might not answer me as she's not my MP (and my MP is a waste of space).
Once we see what, if anything, Mrs Spelman sends in reply we might look to put together an action group from with HU:Thyroid?
How does this sound for a first salvo? :0)
"Dear Mrs Spelman,
on 17 December last year you raised the above in Parliament at the behest, I believe, of one of your constituents. I have lost track of who that was, but she is a member of the online forum Health Unlocked: Thyroidism, to which I also belong.
We who suffer with thyroidism seem always to be at a remove from the ears of those who might be able to help us. And it is, unfortunately true (and documented) that the health service is antithetical to much of what many patients crave in order to feel well again. It was so good to see your debate on the issue of thyroidism. We are keen to make sure that the impetus it has generated is continued and, indeed, increased.
I wonder if any of the follow up work promised in the debate has been forthcoming? There are thyroid sufferers like myself who would be keen to, inter alia, provide a note of things that the NHS could do to do to enhance the well-being of existing thyroid patients, a note of how doctors could help themselves and their patients in diagnosing thyroid malfunction, even a petition to deliver to Downing Street if that would be helpful.
Please let me know if there is anything we can do to make that happen,
with all good wishes,"