Thyroid UK
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Are Hashimotos sufferers more likely to acquire Polymyalgia?

I have Hashimotos. My T4 is out of reference range, too high, but not by much, and I have been well all year on 125mcg Thyroxine.. Saw a different GP six weeks ago, who asked me to lower my Thyroxine, within two days original painful joints and muscles had returned, so I self medicated back to original dose. Have felt fine since, but at the weekend the painful joints and muscles came back with a vengance although my dosage hadn't altered. Have spent a lot of this week horizontal, but still have joint pains, Now I am wondering if I have Polymyalgia or something else :(

3 Replies

You may well need a slight increase again. I am really exasperated that doctors adjust meds according to the TSH. This is a reply I did earlier.

This is another link and read the whole article.



In the recent community-based study in the UK, 48.6% of patients had persisting hypothyroid symptoms despite being on T4-replacement and having "normal" TSH levels.[21] Moreover, each of four replacement studies published in 2003 showed that hypothyroid patients on T4-replacement still suffered from hypothyroid symptoms or abnormal scores on tests of health status.[26][27][28][29]

2.These studies and others prove a point that should horrify anyone with a humane concern for the welfare of patients: Many thyroid diagnoses and dosage decisions doctors make based on blood level testing are bound to vary, depending on timing. In other words, which thirty-minute period on which day and which week the patients’ blood is drawn for testing can cause variation in test results, and thus variation and inconsistency in decisions that are based on those results.


According to my rheumatologist, having Viking genes is the biggest risk factor for developing PMR! If you think you might have polymyalgia then it is important to have a blood test asap to see if your inflammatory markers are high. If it is PMR you are at higher risk of developing GCA (giant cell arteritis), which is dangerous.


Its also likely to be Fibromyalgia which only T3 addreses

Hence if they start refuing to prescribe T3 many people will be in real problems

see the work of Dr Lowe


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