Has anyone seen any good endocrinologists in Bi... - Thyroid UK

Thyroid UK

137,936 members • 161,765 posts

Has anyone seen any good endocrinologists in Birmingham? Anyone seen Prof. Jayne Franklyn at Queen Elizabeth Hospital in b'ham?

11 years ago•17 Replies

The British Thyroid Foundation recommended Prof. Jayne Franklyn at Queen Elizabeth Hospital in Birmingham, but it would be good to get some feedback.

Or any other good feedback about any other endocrinologists in Birmingham.

Written by

Neeta-K

To view profiles and participate in discussions please or .

The ability to reply to this post has been turned off.

17 Replies

•

shawsAdministrator11 years ago

If anyone knows, please private message Neeta.

Ansteynomad11 years ago

Neeta - you need to talk to Suze - she lives near Birmingham and has seen a number of people in that area including, I believe, Professor Franklyn. I'm sure she'd be happy for you to message her.

Neeta-K in reply to Ansteynomad11 years ago

Hi Ansteynomad. Which Suze? Does she live in Sollihul? The same Sue thats having her support group this Saturday?

Ansteynomad in reply to Neeta-K11 years ago

That's the one Neeta.

Neeta-K in reply to Ansteynomad11 years ago

Thanks. I will be seeing her this Saturday so will ask then.

Ansteynomad in reply to Neeta-K11 years ago

I shall look forward to seeing you as well then

Neeta-K in reply to Ansteynomad11 years ago

great

Jackie11 years ago

Hi I will send you a PM

Jackie

swingtime11 years ago

I see an endocrinologist in Coventry and he is referring me to Proffessor Franklin at Birmingham.

I was diagnosed with fibromyalgia in 2010 but I never believed the doctors, I was convinced it was my thyroid status that caused all my problems. I have done a load of private tests and found I was right. I asked to be referrred to an endo even though I had diagnosed and medicated myself because I want a proper diagnosis.

I take T3 and have improved drastically ever since, I no longer have any symptoms. The endocrinologist is stumped and I've confused him even more by producing a positive result for DI02 mutation. He doesn't know what to do with me, hence his handing me over to the Proff!

I haven't had an appointment yet but will report back when I have seen her. In the meantime I would appreciate any comments from anyone who has seen her, x

Ansteynomad in reply to swingtime11 years ago

@swingtime – I would be very interested in your thoughts (by PM) on how you have been treated at Coventry. I spent 4 years with them for nil result in the end. I asked on numerous occasions for a referral to someone who could help me, but was told this not possible. I hope you have better luck than me.

ging in reply to swingtime11 years ago

Dear Swingtime,Could you please PM me as my daughter needs a good endo in B/ham. She has been diagnosed with fibro but is also borderline hypo [ and we all know what THAT means!!!] She tested low on T3 with a Vega test but has to convince her GP to refer her to an experienced endocrinologist who may prescribe T3 for her. Thank you Ging

Chippysue in reply to swingtime11 years ago

I will pm you

Chippysue11 years ago

I have seen four endocrinologists, one in Solihull, one in Birmingham (names above) and two in Sheffield and would be happy to let you know how I found them. The reason for seeing four is because I didn't have the luxury in being told what they were like and what their general attitude to hypothyroidism and treatments were before being referred. I could write a book!

Sue

thyroiduk.org

ClareP818 years ago

Hi I am also interested in contact details for a good endocrinologists, in Birmingham.

I have recently been diagnosed with under active thyroid. Have been on 100mg of Levothyroxine for over 6 weeks. Even though Doctor says im within normal range, still experiencing symptoms which are quite debilitating still.He doesnt wish to really discuss further as all my results normal, need to be more patient for the pills to work.

When i mentioned could i go onto T3 as read that helps with symptons im experiencing he turned a funny colour and said he was unable to prescribe and i needed to see a specialist if i wanted that. Then proceeded to be quite offish with me. Any advise would be greatly appreciated?

humanbean in reply to ClareP818 years ago

He went a funny colour because liothyronine (T3) is very expensive to the NHS.

From the BNF :

Tablets, scored, liothyronine sodium 20 micrograms, net price 28-tab pack = £152.18

In some countries in Europe T3, 25mcg, pack of 30 tablets can be bought without prescription in pharmacies for a couple of euros. It's the NHS that is getting ripped off.

I suspect the other reason for his funny colour is that just by mentioning T3 you have proved to him that you have been researching your thyroid condition. And some doctors really don't like that.

ClareP818 years ago

Haha yes i suppose you're right. his attitude totally changed. He seems to think its acceptable to be living on imodium due to contant Diarrhoea, painful sore eyes. constant fatigue plus millions of other symptoms lol