The British Thyroid Foundation recommended Prof. Jayne Franklyn at Queen Elizabeth Hospital in Birmingham, but it would be good to get some feedback.
Or any other good feedback about any other endocrinologists in Birmingham.
Has anyone seen any good endocrinologists in Bi... - Thyroid UK
Has anyone seen any good endocrinologists in Birmingham? Anyone seen Prof. Jayne Franklyn at Queen Elizabeth Hospital in b'ham?
Written by
Neeta-K
To view profiles and participate in discussions please or .
The ability to reply to this post has been turned off.
17 Replies
•
shawsAdministrator
If anyone knows, please private message Neeta.
Neeta - you need to talk to Suze - she lives near Birmingham and has seen a number of people in that area including, I believe, Professor Franklyn. I'm sure she'd be happy for you to message her.
Hi Ansteynomad. Which Suze? Does she live in Sollihul? The same Sue thats having her support group this Saturday?
That's the one Neeta.
Thanks. I will be seeing her this Saturday so will ask then.
I shall look forward to seeing you as well then 
great
I see an endocrinologist in Coventry and he is referring me to Proffessor Franklin at Birmingham.
I was diagnosed with fibromyalgia in 2010 but I never believed the doctors, I was convinced it was my thyroid status that caused all my problems. I have done a load of private tests and found I was right. I asked to be referrred to an endo even though I had diagnosed and medicated myself because I want a proper diagnosis.
I take T3 and have improved drastically ever since, I no longer have any symptoms. The endocrinologist is stumped and I've confused him even more by producing a positive result for DI02 mutation. He doesn't know what to do with me, hence his handing me over to the Proff!
I haven't had an appointment yet but will report back when I have seen her. In the meantime I would appreciate any comments from anyone who has seen her, x
@swingtime – I would be very interested in your thoughts (by PM) on how you have been treated at Coventry. I spent 4 years with them for nil result in the end. I asked on numerous occasions for a referral to someone who could help me, but was told this not possible. I hope you have better luck than me.
Dear Swingtime,Could you please PM me as my daughter needs a good endo in B/ham. She has been diagnosed with fibro but is also borderline hypo [ and we all know what THAT means!!!] She tested low on T3 with a Vega test but has to convince her GP to refer her to an experienced endocrinologist who may prescribe T3 for her. Thank you Ging
I have seen four endocrinologists, one in Solihull, one in Birmingham (names above) and two in Sheffield and would be happy to let you know how I found them. The reason for seeing four is because I didn't have the luxury in being told what they were like and what their general attitude to hypothyroidism and treatments were before being referred. I could write a book!
Sue
Hi I am also interested in contact details for a good endocrinologists, in Birmingham.
I have recently been diagnosed with under active thyroid. Have been on 100mg of Levothyroxine for over 6 weeks. Even though Doctor says im within normal range, still experiencing symptoms which are quite debilitating still.He doesnt wish to really discuss further as all my results normal, need to be more patient for the pills to work.
When i mentioned could i go onto T3 as read that helps with symptons im experiencing he turned a funny colour and said he was unable to prescribe and i needed to see a specialist if i wanted that. Then proceeded to be quite offish with me. Any advise would be greatly appreciated?
He went a funny colour because liothyronine (T3) is very expensive to the NHS.
From the BNF :
Tablets, scored, liothyronine sodium 20 micrograms, net price 28-tab pack = £152.18
In some countries in Europe T3, 25mcg, pack of 30 tablets can be bought without prescription in pharmacies for a couple of euros. It's the NHS that is getting ripped off.
I suspect the other reason for his funny colour is that just by mentioning T3 you have proved to him that you have been researching your thyroid condition. And some doctors really don't like that.
Haha yes i suppose you're right. his attitude totally changed. He seems to think its acceptable to be living on imodium due to contant Diarrhoea, painful sore eyes. constant fatigue plus millions of other symptoms lol
helvellaAdministrator
Please write a new post. Down on a three-year-old thread, your question will appear for a moment on News Feed, then disappear.
The ability to reply to this post has been turned off.
Not what you're looking for?
You may also like...
Anyone been to the queen elizabeth hospital in birmingham for nhs endo appointment ?- reviews good or bad
Hi there previous to my earlier post today i have been thinking after my disasterous appointments...
Hi all,has anyone seen any of the TUK list doctors? .....
Hi all I'm thinking of paying to see a doctor from the list who treats with t3 and ndt.
I was...
Off topic - has anyone had wisdom teeth out at the hospital?
Hello Everyone,
Has anyone had their wisdom teeth out at hospital, I have been hearing lots of...
Has anyone seen Dr Paul Jenkins in London?
My friend who has Hashimoto's is thinking of seeing Dr Jenkins at the London Endocrine Centre. Has...
Has anyone had experience with Prof Colin Dayan in Cardiff?
My G.P is waiting for me to get back to her with an endo for a private referral. I have been...
Related Posts
Anyone seen a good endocrine doc in Scotland? NHS or private?
Has anyone here seen Dr Perring or L.Young in London? Please help.
Sympathetic endo in Brum please anyone? 
Has anybody seen Dr Annice Mukherjee or Dr Tara Kearney? Feedback please!
Has anyone seen Dr Karin Bradley at the Spire Bristol? Please PM me
