Thyroid UK

Thyroiditis - Non-Hashimoto Thyroiditis

I do get to hear about Hashimoto's Thyroiditis with multi-nodular goiter but not so much about "other" autoimmune thyroiditis with multi-nodular goiter. Mine is simply diagnosed as "Thyroid Goiter NOS - non-toxic.

I had spent many years of struggling with severe hypo symptoms. I have other autoimmune conditions.

My question is, can you tell if it is non-toxic without having a radioactive iodine uptake test? I have had ultrasound done twice and cystic sample was removed for cytology.

I'm absolutely flabbergasted by the complete absence of treatment offered on NHS! (I saw a hospital endo once)

Thank you for your help in advance.

2 Replies

As I understand (and this is very far from my comfort zone), "toxic" is when it is producing too much thyroid hormone. If you are not suffering the effects of too much thyroid hormone, then it is possibly safe to assume it is non-toxic.

If you are up for it, there is a whole chapter on nodules here:

(Mind, it does seem a bit more readable than some chapters!)




Thank you for your reply.

My private test (via this site) came back grossly abnormal (raised T4 by 3 times outside the range).

This was why I felt NHS endo didn't diagnosed me correctly. He was not good!

After NHS endo let me down so badly, I opted for a private treatment, mainly prompted by my Neuro.

Thank you for the link. I will have a read.

Best Wishes,


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