Thyroiditis - Non-Hashimoto Thyroiditis - Thyroid UK

Thyroid UK

140,293 members165,033 posts

Thyroiditis - Non-Hashimoto Thyroiditis

2 Replies

I do get to hear about Hashimoto's Thyroiditis with multi-nodular goiter but not so much about "other" autoimmune thyroiditis with multi-nodular goiter. Mine is simply diagnosed as "Thyroid Goiter NOS - non-toxic.

I had spent many years of struggling with severe hypo symptoms. I have other autoimmune conditions.

My question is, can you tell if it is non-toxic without having a radioactive iodine uptake test? I have had ultrasound done twice and cystic sample was removed for cytology.

I'm absolutely flabbergasted by the complete absence of treatment offered on NHS! (I saw a hospital endo once)

Thank you for your help in advance.

Read more about...
2 Replies
helvella profile image
helvellaAdministratorThyroid UK

As I understand (and this is very far from my comfort zone), "toxic" is when it is producing too much thyroid hormone. If you are not suffering the effects of too much thyroid hormone, then it is possibly safe to assume it is non-toxic.

If you are up for it, there is a whole chapter on nodules here:

thyroidmanager.org/chapter/...

(Mind, it does seem a bit more readable than some chapters!)

Rod

Hi

Thank you for your reply.

My private test (via this site) came back grossly abnormal (raised T4 by 3 times outside the range).

This was why I felt NHS endo didn't diagnosed me correctly. He was not good!

After NHS endo let me down so badly, I opted for a private treatment, mainly prompted by my Neuro.

Thank you for the link. I will have a read.

Best Wishes,

Not what you're looking for?

You may also like...

Hashimoto thyroiditis autoimmune diseases

Is anyone on have Hashimoto thyroiditis autoimmune diseases if so can u tell more about it

Non-Toxic Multinodular goiter?

Hi all, In 2016 my GP noticed a goiter and tested my TSH which was 2.2 mu/L.About a year ago I had...

Ords throiditis

Hi, can anyone tell me how I would go about finding out if I have Ords thyroiditis? Dx in 2014 with...

Atrophic thyroiditis

Hi there! I recently found out from a CT scan that my thyroid is severely atrophied (and...

Atrophic Thyroiditis

I’ve just had a WOW moment on reading this article. I’ve had a diagnosis of Autoimmune Thyroid...