Last Wednesday I was at St Thomas' Hospital, London - l went along early to meet and greet old and new faces to our Patient Conference, which is an annual event for Hughes Syndrome Foundation. I was absolutely delighted that Lyn Mynott from Thyroid UK, was able to come along, as a vast array of people with Hughes Syndrome, go on to develop thyroid issues, including myself and many others I know. This sort of networking with charities is vital with our diseases. Autoimmune disease often has thryoid problems creeping in, and awareness needs to be raised as often as possible as so often these are not picked up until they are quite advanced. We had a great day, and I had many hilarious moments as I wandered around putting names to faces.
So a big thank to Lyn for taking the time out to come along to our annual event - and I shall certainly be off to the next TUK one if I am in good enough health. Professor Hughes intends to write an article about the prevalence of thyroid issues turning up in his clinic over the years with regard to Hughes Syndrome. This should appear in the news letter some time.
Mary F x