can anyone recommend a Thyroid specialist that has changed their life and who knows WHY i am like this? my GP isn't listening and nor is the Endo i saw at Churchill Hospital in Oxford, still feeling like garbage 24/7 and i`m practically suicidal with it all
please?
i am in Oxfordshire
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Waynester
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4 Replies
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Hi
Email me for the list of 'good' NHS Endos. I'm not promising that they will be in the right area or be able to help you, but they have been recommended to us by other thyroid people for various reasons....
louise.warvill@thyroiduk.org
Will be tomorrow now as this is the office email..
This is an extract from an article by Dr Toft ex of the British Thyroid Association. If you need a copy of the whole article email louise.warvill@thyroiduk.org. Unfortunately most of our GP's don't know how best to treat patients with thyroid gland problems. Please note that it is possible to have a suppressed TSH. Discuss the article with your GP as regards question 6.
6 What is the correct dose of thyroxine and is there any rationale for adding in tri-iodothyronine?
The appropriate dose of levothyroxine is that which restores euthyroidism and serum TSH to the lower part of the reference range – 0.2-0.5mU/l.
In this case, free thyroxine is likely to be in the upper part of its reference range or even slightly elevated – 18-22pmol/l. Most patients will feel well in that circumstance.
But some need a higher dose of levothyroxine to suppress serum TSH and then the serum-free T4 concentration will be elevated at around 24-28pmol/l.
This ‘exogenous subclinical hyperthyroidism’ is not dangerous as long as serum T3 is unequivocally normal – that is, serum total around T3 1.7nmol/l (reference range 1.0-2.2nmol/l).
Even while taking the slightly higher dose of levothyroxine a handful of patients continue to complain that a sense of wellbeing has not been restored. A trial of levothyroxine and tri-iodothyronine is not unreasonable. The dose of levothyroxine should be reduced by 50µg daily and tri iodothyronine in a dose of 10µg (half a tablet) daily added.
While taking both hormones it is important serum TSH is normal and not suppressed. If the patient is still dissatisfied it should be made clear that the symptoms have nothing to do with thyroid disease or its treatment and perhaps issues at home and in the workplace should be
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