After reading so many of the questions and blogs on here,. Im convinced more than ever, that we need to create an IBS group.

[suli]

Ive posted this before. Groups locally dont exist. People with IBS have travelling issues and long distances we all live from each other. Even so im even more convinced like i say, that we organise get together groups. These forums help so much, cos we ONLY PEOPLE WHOVE GOT WHAT YOUVE GOT ARE THE ONLY ONES THAT TRULY UNDERSTAND. Groups, get togethers, sharing tips, experiences, making friends, not be ashamed to let it out and yes LET the bloating happen and let out a few farts ;-). Not going to be hung up or embarrassed like with non ibs sufferers. We are all one family......it would help so much.

Last time i posted this idea, there were mutterings. But nothing came off it. Lets make this happen people. Whose willing? up for it? Can we do it? Even if its once in a while.

Talking, sharing things helps me. Love to know others thoughts

Suli

[crazy-daisy]

Sounds like a great idea! I should think lots of people would be interested.

[annekeith]

hi suli i think its a great idea i liv in edwinstowe im also in a wheelchair so its not easy to get to these forums

[Hidden]

Suli, I think it's a great idea as well, I live in Plymouth - anyone else live there?

[susan123]

I'm in the west midlands

[John43]

I suppose you mean to meet up and exchange ideas, experiences since we have a group her on line don't we.

On another support site I found it difficult to get folks to travel and meet. However I hope it works out if that will be a help.

John

[PatV]

I'm in New York City. Finding this site very encouraging. I'm in a group for Parkinson's that does exercises. I'll ask if there's a group for IBD here.

[suli]

Thanks for the replies.

John, yes exactly mate. Meet up, share experiences, make friends. One thing unites us. And i feel there are no better people to understand than you fellow IBS sufferer.

Seems like people are based all over the country. I live near Manchester. Need to get more people canvassed, interested. Is it possible?! johns right, Its very hard to get the idea come to fruition.

Guess hope more people read read this or put the word out on here and further, And it can snowball. In the meantime if anybody is willing to meet close to home or i guess somewhere in between.

Then give us a buzz

[crazy-daisy]

I live just south of cambridge. Anyone near?

[Socialite]

In West Sussex.... ?

[suli]

Seems like people are scattered on all 4 corners of the country

[TraciN]

Another mancunian rite ere...shame, we r all over the place. I know a few fellow IBS sufferers in my local area-surely its a start? Old and young, a few of us have discussed this already, and as I have only just joined this network today, I will b sure 2 encourage them 2 join here too...our own fart club would be great tho!

[Tapkili in reply to TraciN]

Hi TraciN

I like the 'have our own fart club'. Been having quite a difficult time of late with this and it sure is great to laugh it out. Cheers

[suli]

Hello TraciN :-)...here here. At last someone from the northwest!! Been trying to get something up and running for some time now, without any luck. Due to lack of interest and people scattered in the 4 corners of the UK. So, glad to hear you re local.

Need more people on the bandwagon and get this snowballing........and a fart club?? HERE HERE..... AMEN to that

Fart to our hearts content, without the fears and anxietys of the rest of society

Stay in touch

Suli

[Bartz in reply to suli]

Liking the light humour.

[suli in reply to Bartz]

😊👍🏻

[TraciN]

Yes,Suli! We'l defo' be a bit free and easy with the trumps in the company of fellow sufferers-this fart club is gonna happen... iv been busy recruiting other farts like myself! Iv invited them to the network, and as for our fart club, 3 mates of mine are definitely in already, and 2 other locals, one colitis sufferer and a partridge in a pear tree! I just happened to mention to one or another person after they asked me ' why and how r u losing weight? What's ur secret' like it was a good thing?! I can only do so much explaining why one day i can look 6 months pregnant, the next iv deflated and am running between school, home, work, job-hunts (where i am in easy reach of a toilet...)Then next thing you know, I find fellow sufferers and we r discussing symptoms, foods, remedies we tried and tested...and people we know locally. All I can say is we need to be a bit brave when it comes to discussing these symptoms. Also, when we sort out a few details for fart club, I'm taking the flyers to drs surgery to recruit other farts! And friends, family, they will be pestered to spread the word too...I will defo be in touch when we've made progress.

[suli in reply to TraciN]

Awesome and Brilliant Traci......with my symptoms i sometimes just hide away, shut myself away. I cannot stand at times, the finger pointing, or explaining to people why i live in the loo etc etc...u know the rest.

Hence admire your courage esp that u mention you have kids etc. Hence a busy stressful life living with these stomachs of ours.

Great that you re taking strides to get this fart club up and running....id probably just have left it, with apathy. But great you ve already recruited people. Please yes, do keep me posted.

Take care till then

[sagardikshit]

not only all corners of country... all corners of world ! i am in New Delhi, India...