Just wanted to have a little rant. My guts have basically been wonderful for a short while before getting back to their usual antics out of the blue. I absolutely hate the unpredictability of this condition.
I understand changes to medication, lifestyle, environment, emotions and anything can affect someone with ibs, and I feel like I’ve been through a lot of changes recently and things haven’t budged. Only to start settling back into routine to be troubled by symptoms again!
Feeling a little sorry for myself at the minute, I keep feeling like something awful might happen which usually means a flare is on the way. Just feeling a bit fed up
thanks for listening!
Written by
iOwlface
To view profiles and participate in discussions please or .
I'm so sorry that you're feeling this way. I am also feeling very deflated and just 'not myself' at the moment. These pains can be all-consuming and draining on us, so I completely understand where you're coming from. I've been trying to take baths, use my hot water bottle and generally give myself some TLC - maybe you could do the same? Or perhaps there's something that works for you specifically.
It's ok to feel sorry for ourselves, it's not easy to go through this. I hope you feel more yourself soon x
Hi it's horrible having ibs and trying to live a normal life. Just to say I'm in my 60s now and had ibs most of my adult life so know what you are putting up with. Years of the FODMAPDIET didn't really help and different probiotics neither.Now 4 years ago went gluten-free and what a transformation so if you are so fed up with it try going gluten free. It has to be 100% though and you will probably know within quite a short time if this is causing your ibs. If so it needs to be followed for a long time. It means you are gluten sensitive. Check out Coeliac UKs website for more info.
Gluten sensitivity is on the increase due to modern farming and food manufacturing. Unfortunately doctors generally prefer to give prescriptions than suggest a GF diet.
Forgot to say that gluten in some, can effect mood too, it is well documented.
I really relate to this, its the horrible unpredictable nature of IBS. I have spent years with food diaries, different supplements, and tbh nothing has worked. I know its IBSd, but other than a couple of trigger foods, cheese for example, I am no wiser. I don't understand why I can get a flare up with 10 mins urgency whilst watching TV or reading a book! Blood tests have ruled out celiac, glutenfree has made no difference. So I've adjusted my lifestyle to just accept it, Immodium where necessary, spare pants and pads in handbag (so glamourous!) radon keys for public toilets, and never more than 10 mins away from a toilet. The less I think about it, the better I am. Its ok to feel sorry for yourself, I often did, I hope you feel better soon
I hope you’ve been tested for Bile Acid Malabsorption. It is thought 1 in 3 diagnosed with IBS actually have this abnormality which can be treated with colestyramine. It was the 10 minute urgency and how you have tried everything that alerted me. I went over 40 years of misery until I was diagnosed with it.
Hi, I haven't been tested, it only occurred to me recently when I joined this forum. I seem to be on a good settled phase atm, but I'm aware of it now and if it worsens again I will go get tested. Thanks.
Hi I am Coeliac and having to go gluten free. I can assure you that will not make any difference to having IBS..l have both and just have to put up with the pain. Apart from a heat pad and pain killer's you have to plod on.
I sympathise with you entirely having had up until fairly recently 8 years of intractable IBS-C with no improvement from GP prescribed medication, exclusion diets, including FODMAP diets, and two or three well known probiotics.
You don’t specify what you have done to combat this very distressing condition, so I have no intention of lecturing you because I am sure you have tried the whole gamut of measures!
I would, though, like to make a suggestion that you try Ferrocalm. It was developed a couple of years ago, and I have been in correspondence with the team that produced it. Its action is novel, and explains why a lot of probiotics don’t work. I have been on it for six months and I have still been experiencing adjustments symptoms, a reflection of how severely disturbed my own gut microbiome is. I am hopeful it will correct my long established gut microbiome dysbiosis-at last!
If, after eight weeks, you have experienced no improvement, try Alflorex, and then Symprove. You could combine Alflorex and Ferrocalm as I have done. Do persist, though, if you have a worsening of your IBS since this betokens a likely positive response.
Personally, I found most diets only partially helpful, especially FODMAPs. You certainly can permanently exclude really troublesome high FODMAP foods, but some are essential, although high in Inulins, because gut health is dependent on them.
Finally, don’t exclude Homeopathy and Herbalism as a last resort. I was a convert to the former four years ago, having thought it previously to be quackery!
Sending you so much sympathy! I've been there, I understand. You're allowed to feel miserable, it's like being kicked when you're down - I hope this bout is over soon, good luck
It is a horrid disorder and it is ok to feel down . I feel as if I am on a tightrope , navigating diet meds . My advice is to try it all.There are many good folk on here to support you who can really understand how you feel. Take Care and love yourself
I too hate the unpredictability, after years of this and trying all sorts of things and hunting for triggers have realised it is what it is that I have to live well with it as much as I can. I also get a sense of foreboding just before a flare up strange isn't it ! anxiety and depression come along for the ride too we can all rant together knowing we are not alone in this and it will pass !
Having IBS is very stressful and frustrating, but I don't have to tell you that. You have every right to feel drained, maybe even desperate and completely deflated. From what I understand, humans have a much easier time with horrible certainty than with unpredictability. And if there is anything that can be called unpredictable it is IBS. It hurts my heart to read your "rant". As if it were not enough to deal with this disease, I would imagine, that nobody needs to be dragged down mentally on top of that. I can't really give you any advice, but I assure you that you have my fullest sympathy. And I send you a virtual hug. I know it's not the same as a real one, but maybe it still helps a tiny bit. Be good to yourself, talk to yourself like you would to a beloved person. You are worth all the love and care you can possibly get, even if it is just from yourself (although, if you can involve others in that project, it would multiply the effect). I hope this passes soon and sends you back at tackling IBS swinging. All my very best wishes to you. Take care. ❤️
Yes, why is it so unpredictable! I have been not too bad recently and then completely out of the blue today has been a complete nightmare! Diarrhoea all day for no reason!
I know what you mean. I always get a queer sense of trepidation too, just before a flare up comes on, and during it. I liken that feeling to a gloomy rainy day and how that feels, or the sensation you get when you're driving happily along and suddenly hear a weird rattling sound!
I hate IBS for lots of reasons, and one reason is, we can be doing everything right and suddenly the digestion flips for no obvious reason. It's disheartening because I can often get tricked into the feeling that "I'm getting better!" (like I always used to do whenever I got some thing wrong with the body) so I even start to forget about IBS, except that I don't eat anything reckless.
Then it all comes back again and for no reason I can understand.
Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.
Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.
Ibs help please!! 
Feeling a bit sorry for myself!😔
Feeling crap (excuse the pun)!
Feeling shattered
Recently "diagnosed" - not feeling good
