Endo surgery with tight pelvic floor ... - The Endometriosis...

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Endo surgery with tight pelvic floor muscles/nerve pain?

Orange8 profile image
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Hello all,

I’m new here (recently clinically diagnosed with endometriosis after years of pain, and increased daily pelvic pain in the last 2.5 years.) I’m writing to see if anyone here who has pelvic floor dysfunction/hypertonic pelvic floor muscles/nerve pain has also had endometriosis surgery? I’ve been getting Botox injections every 6 months to my very tight pelvic floor muscles, which has helped with my chronic pelvic pain. But the pain is still there, so I’m considering doing surgery for endometriosis soon.

The doctors who do the endometriosis surgery have told me that even if they go in there and remove any endometriosis tissue, I might still have the same (or worse pain) due to my tight pelvic floor muscles- especially if the surgery causes inflammation, which will increase the chronic pelvic pain. They make it sound like it’s a huge risk to do the surgery, but if I don’t do it, I won’t know for sure if there is, in fact, endometriosis tissue causing or contributing to my pain.

I’d love to hear from anyone who has done the surgery for endometriosis, even if you don’t also have pelvic floor dysfunction or nerve pain. (I also have a rectal prolapse and rectocele. :( So it’s hard to know how surgery will affect these other things in the same area). Any tips as I decide whether or not to do the surgery?

Thanks in advance! 🙏

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Orange8
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