Can the Brain Tumour Charity provide any generic information that we as survivors of tumours and/or surgeries include in our correspondence with PIP?
I’m just not sure there is a full understanding of how this condition affects our daily living and the long term dependence on medications for persistent pain and fatigue.
It would be beneficial if they were aware of how this impacts our health and situations.
Hi Wolfie04,
We have a dedicated money and benefits clinic at The Brain Tumour Charity. We run a free benefits clinic every Tuesday and Thursday where our colleagues can advise you on what benefits you are eligible for and how to apply for them. They can also give you help filling in forms over the phone. To find out more or to book an appointment please head to our website here- thebraintumourcharity.org/l...
In addition we have a fact sheet on financial support which you might find helpful to read through. You can find this at the bottom of the following page- thebraintumourcharity.org/l...
Do let us know if there is anything we can help with. You can reach out to a member of our support team on 0808 800 0004 (Mon-Fri, 9-5) or email us at support@thebraintumourcharity.org
With best wishes, Shannon
Thank you Shannon. I’ll have a look at the fact sheet and I’ll go to the website to see about booking an appointment. I’ve only just found and joined this support group. I have been floundering around since my second surgery in March 2017. I didn’t have the state of mind unfortunately back then and used my savings to get by. Thank you. 😇
I’ve just sent my PIP form off today, I’m not holding my breath after reading how hard it is for people like us with hidden disabilities. I’ve lost my job as of 30 September. At first I was gutted, we had to re apply and take a 7k pay cut. Then I thought bugger it, the company has had blood sweat and tears from me, they can shove it ! If needs be and I don’t get PIP, I’ll try and find something part time after Christmas or when and if I get radiotherapy after that
Post Craniotomy Symptoms 
