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It's not all like the tv - myth busting what hospital and surgery is actually like

astro-means-star profile image
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I only have a low grade tumour but it was obstructive so I've had a lot of surgery and ended up spending a couple of months in hospital after initial diagnosis. It's not all like the TV shows so here's a few myths busted.

1. The GAS PUTS YOU TO SLEEP - On TV before an operation it always shows someone being given a face-mask and then they're under. This usually isnt the case, the mask is normally just oxygen, the anesthetic is administered through a cannula.

2. HOSPITAL GOWN AND YOU'RE READY- for non emergency surgery there is a lot more prep ahead of surgery, washing in an antibacterial soap, removing all metal etc. You receive some very fetching paper/plastic cotton blend underwear (one size fits all). Compression leg massage machine, catheter which may be inserted before or once you are under. Multiple forms and questionnaires, you'll also repeat this information to multiple groups of people on your way. I did once make it down to the first room pre theatre and then after waiting about half an hour get wheeled back to the ward as emergency patients needed to be seen or other surgeries ran over.

3. YOU ARE WHEELED STRAIGHT FROM THE WARD TO THE OPERATING TABLE. There are at least two rooms first. There is a room, like a small ward that whereby they go over the information on the forms (they also get your hospital note), check you are prepped properly e.g. wearing the right things. Check off your wristband etc. You are then wheeled into theatre but there is another small prep room where you again go through forms, confirm its your signature, explain in your own words your understanding of what the operation is. You then get the eeg pads put on, additional cannula's if needed and any other equipment they may need. Mask on and then anesthetic is injected. I used to try and remember the last time I saw on the clock before I was under anesthetic.

4. YOU WAKE UP ON THE WARD - I dont think this is normal, I always woke up in the post op room where a Dr assesses your overall comfort and pain level, responsiveness etc. They then contact the ward and porters and next of kin ahead of taking you back to the ward. I think the only time I did wake up on a ward was if I was in the HDU (high dependency unit)

5. JUST SLEEP IT OFF - This may be more specific to those with brain tumours and other neural conditions but they keep an eye on how much you are sleeping over the day. I'm not saying they deprive you of sleep (though it is hard if you are on frequent obs over night), but they do encourage you to try and be awake and not have too many naps in the day, along side getting out of bed and moving around (where medically allowed).

6. EVERYONE PUSHES AROUND A DRIP STAND - this seems to be a very stereotypical image of someone in hospital. I did have one, as I needed an external drain due to overproducing CSF post tumour debulking, however very few people had these except when receiving fluids or IV medications, in which case they wouldn't be walking around.

7. MRIs - Very little is ever shown on this, the perception seems to be that it's quiet, it is not. It is extremely loud, you are given earbuds (some machines play music most don't)and you have a cage over your head. You hear a lot of bangs, clangs and clunks and what can only really be described as Sci-fi type noises. It can get a little cold so you may have a blanket over you. You have a little squeeze button if for whatever reason you want to be taken out.

I was extremely lucky as the food was ok, we even got free tv (this is very unusual and we were very lucky to have this). I had multiple surgeries and the MRI staff knew me by sight post discharge.

If you've had surgery or stayed in hospital how did you find it compared to what you thought a hospital / surgery is like?

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Shannon_TBTC profile image
Shannon_TBTCPartner

Thanks for sharing this astro-means-star. It is really interesting to hear about your experience of brain surgery and I am sure other members will really value this to know what to expect! Best wishes, Shannon

Tumo profile image
TumoPioneer

Hi, my experience after 2 craniotomies is as you’ve stated. I never remember having the anaesthetic, and I’ve always woken in ICU. MRI scans don’t bother me too much, I’ve had at least 7 over 4 years. I don’t really like having the contrast dye injected half way through, but it has to be. Food has always been great. I’ve never got onto the ward, always been sent home from ICU. 1st op after 5 days, 2nd op after 3 days. Good luck everyone, stay safe and be positive.

astro-means-star profile image
astro-means-starPioneer in reply to Tumo

I'm notoriously difficult to get a vein so the contrast is difficult for me to. I've had too many mris to count now even though I've not been diagnosed long. My main operation for debulking the tumour was done in and out of one too I believe. Genuinely almost fallen asleep in one. Best of luck to you too

SJa2020 profile image
SJa2020

Ha ha I’m going to be a show off now as I’ve had a no. of ops (none for tumours)! But all in diff countries (As my father was a diplomat) - tonsil in India at age 5. Don’t remember much but the light behind my mom as they were wheeling me out. I screamed for my father on gaining consciousness wanting to return home. Appendix in Moscow at age 18 - had to wheel my stretcher in! And was put to sleep quickly - I was asking too many questions. Caesarean in the UK (25) Anaesthologist thought I was hallucinating as I’d commented - at least I’m not speaking Russian this time! (Ref to last op being there).... Cyst later. Each place had its own peculiarities! But UK NHS is an all around top! I won’t scare you with scary practices elsewhere!

One thing they don’t mention - how over whelming too many visitors can be.

How difficult simple things can be. I’m sure there will be ones specific to these surgeries but that 1st step, a sneeze if you have an abdominal incision, pain of blocked wind(!) when you’ve had Laparoscopy! Small but all major achievements in the progress. Take care all & all the best!

astro-means-star profile image
astro-means-starPioneer in reply to SJa2020

I couldn't agree more. My first vp shunt got infected and ended up having appendix out and laparacopy ( scar from bottom of stomach to belly button), omg when they make you cough etc and sneezing was so painful.

You certainly sound like you've got a lot of experience. Love the idea they knocked you out quicker to shut you up ☆

You are so right on the visitor front too, I remember feeling bad as people would come in ( not exactly living nearby) and I wasn't exactly fully with it

SJa2020 profile image
SJa2020

Yes one needs to see the humour in things right? Wishing you all the v best. Are you still awaiting the “decree” from the neurologist? Or just recuperating now? TC

astro-means-star profile image
astro-means-starPioneer in reply to SJa2020

Over a year ago now so just living low grade ( 1) with resulting obstructive hydrocephalus. 6 monthly mris and hoping no more complications and the shunt doesn't block etc

SJa2020 profile image
SJa2020

Aww - all the best keep going! I don’t even know if I have it just falling left & right & getting horrible headaches & numbness going down 1 side - maybe A new thing of my old MS Or a tumour or something else!

TC

astro-means-star profile image
astro-means-starPioneer in reply to SJa2020

If it concerns you, never ignore it, you know you best. Even if actions just buys you piece of mind