Two years ago one of my best friends discovered that he has myeloid leukaemia. I say ‘has’ as he is still fighting and going strong. At the risk of sounding clichéd he is a true inspiration to his friends and family. To be perfectly honest, before Simon was diagnosed I had never given much thought to cancer, any kind of cancer.
Of course all that has changed, and changed for the better. All of his friends and family, including myself wanted to get involved to support Simon in any way that we could. Over the last couple of years we have run marathons (when some of us have never even run for a bus before), baked cakes and even a sponsored custard pie fight for charity as we realise that cancer charities as well as those living with cancer need support.
As his best friend, I felt that I needed to find out what advice other people battling blood cancer had to offer and also find out what the latest research was on the subject. I hope that by sharing what I have found out it will help to inspire others and I also welcome any advice from others in the Tenovus community.
I stumbled across a brilliant article by a guy called Jeff Tomczek. Jeff, originally from Wisconsin but who now lives in New York was diagnosed with blood cancer at the age of 27 years old. One year later Jeff had no trace of the disease in his body. Jeff believes in the importance of finding the right care provider and the right doctors and nurses. He said they need to be prepared to answer all your questions, be honest and available as well as make you feel important.
Acceptance of feeling scared is another aspect that he talks about ‘When you feel afraid let yourself lean on those around you. Cry. Be vulnerable. You are vulnerable. There will be time for strength, but never admitting weakness will cause anxiety to mount and your condition to worsen’
Distracting yourself mainly with sleep or music can help as reading and even watching TV can become difficult during chemo. He recommends eating and sleeping well to help your body deal with the side effects of the treatment and to boost your immune system.
He is also an advocate for massage and therapy to talk about how you feel emotions ‘You cannot afford to store up the intensity of the emotion that comes with fighting a life-threatening illness.’ A pretty inspirational guy, Jeff currently works as a freelance writer, offering consulting services to niche brands & entrepreneurs he is also aiming to open up an online men’s wellness community for young adults and a not-for-profit venture to assist cancer patients.
Approximately 30,000 people in the UK each year are diagnosed with blood cancers such as leukaemia, myeloma and lymphoma. On the research side of things, this year University of Birmingham scientists have been awarded £1.6 million by Leukaemia & Lymphoma Research to improve the effectiveness of stem cell transplants for patients with blood cancers. Stem cell transplants are offered to patients who have not responded to radiotherapy or chemotherapy and they could provide a cure. The scientists are studying the immune responses of the ‘graft-versus-leukaemia’ effect and how they are generated as this is of ultimate importance for a successful graft. The project will focus on reducing side-effects of transplants by improving donor-patient genetic matching.
I hope that more research develops and more and more people can be totally cured from their blood cancer and indeed any form of cancer. If anyone can point me in the direction of any cutting edge research happening right now I would be really grateful. Also, any more advice (especially on nutrition as that is what I am starting to research) would also be very welcome.