Splenectomy : We'll,it seems that you... - ITP Support Assoc...

ITP Support Association

4,127 members2,103 posts

Splenectomy

Ozjock13 profile image
6 Replies

We'll,it seems that you have to get your spleen out in Australia before they will give you NPlate or Electompag,my wife's is booked,still not sure though....

Written by
Ozjock13 profile image
Ozjock13
To view profiles and participate in discussions please or .
Read more about...
6 Replies
NickyD profile image
NickyD

I had my spleen out and the operation had no effect. So I have to take penicillin twice a day every day from now on. I also am prone to get other infections that last longer. If there is any way you can avoid splenectomy, I suggest you take that route. NickyD

Ozjock13 profile image
Ozjock13 in reply toNickyD

Thanks for the input,it's a nightmare either way I think but she is desperate to get off the Pred as it's driving her crazy,seems they won't give her any other treatment again that she's already had,so we are stuck with this option now.many thanks, and sorry to hear yours never helped:(

NickyD profile image
NickyD in reply toOzjock13

I am on Mycophenolate and that is keeping my count stable - can you ask for that?

Ozjock13 profile image
Ozjock13 in reply toNickyD

Not really sure what we can or could get,Hemo has just about said,spleen out next,then if that doesn't work she will get trying other treatments,the Prednisilone is making her feel really sick for a good few hours a day now and getting worse,I will try find out about that one. Cheers

kered profile image
kered in reply toOzjock13

I have been on Myccophenolate for over 2 years and at a dose of 1g per day is working well with relatively stable counts about 100. The down effect is that it is an immunosuppressant, but it does give you control of your life back. I agree with Nicky and avoid splenectomy if possible.There are many new treatments now available. Good luck, Derek

andrea_41 profile image
andrea_41

ask your consultant for any other treatments other than steroids , as i my self cant take them any more as they stopped working have just tried revolade but didnt take to side effects am about to start ritumuxamab again no side effect and keeps me stable for a while at least

Not what you're looking for?

You may also like...

Splenectomy

Please can anyone who has had the splenectomy done or having it done message me, thank you.
Nidazainab profile image

Splenectomy

Hi, I'm a 32 year old male and got diagnosed with ITP 7 months ago. My count when first diagnosed...
Nadav profile image

Splenectomy

Hello every one I have a question for those of you who have gone through a splenectomy. Have any of...
Nespinoza profile image

ITP SPLENECTOMY vs

Hi I live in Western Australia & have had ITP for about 8 yrs. My platelets have gradually been...
Jesse150 profile image

Splenectomy or other options?

Our 6½ year old son has chronic itp. He was diagnosed with itp at 18 months old. His platelet...
RJanna profile image

Moderation team

AnthonyHeard profile image
AnthonyHeardAdministrator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.