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Venetoclax
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ARQ 531 trial
Hi all, I’ve been on the full dosage of
Venetoclax
since July, but it’s stopped working, so now I’ll be doing a clinical trial if ARQ-531. Is anyone here in this trial, and are you experiencing any side effects? Thanks so much! Mindy
Hi all, I’ve been on the full dosage of
Venetoclax
since July, but it’s stopped working, so now I’ll be doing a clinical trial if ARQ-531. Is anyone here in this trial, and are you experiencing any side effects? Thanks so much! Mindy
MelindaBates
in
CLL Support
6 years ago
International Prognostic Index Calculator
All the signs suggest that these results may well be much better in the era of FCR, Ibritunib,
Venetoclax
, other agents, and stem cell transplants where needed.
All the signs suggest that these results may well be much better in the era of FCR, Ibritunib,
Venetoclax
, other agents, and stem cell transplants where needed.
AdrianUK
in
CLL Support
6 years ago
Thoughts on CLL treatment and watch and wait
Sequential treatments Often a treatment flow will go something like FCR, hopefully get a response and wait, then ibrutinib hopefully get a response and wait, then if you get another relapse
venetoclax
.
Sequential treatments Often a treatment flow will go something like FCR, hopefully get a response and wait, then ibrutinib hopefully get a response and wait, then if you get another relapse
venetoclax
.
AdrianUK
in
CLL Support
6 years ago
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Post venetoclax fatigue
Has anyone else stopped
venetoclax
in complete remission and felt fatigue? I took it for 22 months. Two months after stopping I get very tired.
Has anyone else stopped
venetoclax
in complete remission and felt fatigue? I took it for 22 months. Two months after stopping I get very tired.
Corin850
in
CLL Support
6 years ago
Transplant in sight
Ibruitinib and
Venetoclax
combination is having an amazing impact with WBC now in the normal range at 8.90. Lymphocytes down to 5.90 and once they reach 4.50 or below, my bone marrow will be checked for % of CLL.
Ibruitinib and
Venetoclax
combination is having an amazing impact with WBC now in the normal range at 8.90. Lymphocytes down to 5.90 and once they reach 4.50 or below, my bone marrow will be checked for % of CLL.
KAS8
in
CLL Support
6 years ago
Interruption of Venetoclax
Question was whether to inject again with filgrastim or to interrupt
Venetoclax
. My doc choose for the option of interruption. Next week another check to see if neutrophils go up and probably a reduction then of the
Venetoclax
.
Question was whether to inject again with filgrastim or to interrupt
Venetoclax
. My doc choose for the option of interruption. Next week another check to see if neutrophils go up and probably a reduction then of the
Venetoclax
.
Yvbb
in
CLL Support
6 years ago
Lessons from five years of ibrutinib experience
Or would we be better hitting the illness harder with a combination of specific drugs say ibrutinib plus either rituximab or
venetoclax
so it’s completely wiped our and doesn’t have the chance to evolve and come back.
Or would we be better hitting the illness harder with a combination of specific drugs say ibrutinib plus either rituximab or
venetoclax
so it’s completely wiped our and doesn’t have the chance to evolve and come back.
AdrianUK
in
CLL Support
6 years ago
Venetoclax
Has anyone out there tried
Venetoclax
? Any insights or advice? My Oncologist said it can be a little dicey the first 4-6 weeks as compels the release of toxins in my body. Any truth?
Has anyone out there tried
Venetoclax
? Any insights or advice? My Oncologist said it can be a little dicey the first 4-6 weeks as compels the release of toxins in my body. Any truth?
GlobalScouttoo
in
CLL Support
6 years ago
Venetoclax
Yesterday I saw my oncologist my blood work is out of wack I’ve been on Imbruvica for 4 yrs this month, he ordered a CT scan and researching switching me to
Venetoclax
, can someone give me their experience with this drug, is it as expensive as Imbruvica? Thank you
Yesterday I saw my oncologist my blood work is out of wack I’ve been on Imbruvica for 4 yrs this month, he ordered a CT scan and researching switching me to
Venetoclax
, can someone give me their experience with this drug, is it as expensive as Imbruvica? Thank you
MartiP2009
in
CLL America Support
6 years ago
CLL Society patient support group meeting in New York City on Sunday April 22
There is a CLL Society patient support group meeting on Sunday April 22 in New York City and at our last meeting I believe we had 5 patients taking
Venetoclax
. https://cllsociety.org/event/new-york-city-cll-support-group-2018-02-11-2018-04-08/ Please click the link and RSVP if you plan to attend.
There is a CLL Society patient support group meeting on Sunday April 22 in New York City and at our last meeting I believe we had 5 patients taking
Venetoclax
. https://cllsociety.org/event/new-york-city-cll-support-group-2018-02-11-2018-04-08/ Please click the link and RSVP if you plan to attend.
lankisterguy
Volunteer
in
CLL Support
6 years ago
Side Effects of Ibrutinib/Venetoclax
Started Ibrutinib 9 months ago and Ventetoclax 6months ago on the Ibrutinib/
Venetoclax
Trial. I guess I am lucky as diarrhea only kicked in 4 months ago while on holiday in Thailand.
Started Ibrutinib 9 months ago and Ventetoclax 6months ago on the Ibrutinib/
Venetoclax
Trial. I guess I am lucky as diarrhea only kicked in 4 months ago while on holiday in Thailand.
jonrha
in
CLL Support
6 years ago
I am now in the next phase of the Captivate Imbruvica plus Venetoclax trial. I have been Ramdomized!!!
Ucsd has told me that many people who were on
Venetoclax
have gone at least a year without needing treatment again . Hopefully with the addition of imbruvica there will have even a deeper remission. I will keep you posted!! Be well!, Hoffy
Ucsd has told me that many people who were on
Venetoclax
have gone at least a year without needing treatment again . Hopefully with the addition of imbruvica there will have even a deeper remission. I will keep you posted!! Be well!, Hoffy
Hoffy
in
CLL Support
6 years ago
Side Effects of Long Term use of acyclovir when on Ibrutinib+venetoclax
I am on a clinical trial of ibrutinib (for two months) and then adding
venetoclax
until I achieve MRD negative. I started ibrutinib 3 weeks ago and so far doing fine, except some minor side effects.
I am on a clinical trial of ibrutinib (for two months) and then adding
venetoclax
until I achieve MRD negative. I started ibrutinib 3 weeks ago and so far doing fine, except some minor side effects.
Mansy
in
CLL Support
6 years ago
THE GOOD THE BAD AND THE UGLY
I have some recent results I wanted to share with you regarding the clinical trial I'm on with IB and
Venetoclax
. The good news is my numbers look good almost in normal range.
I have some recent results I wanted to share with you regarding the clinical trial I'm on with IB and
Venetoclax
. The good news is my numbers look good almost in normal range.
BCTexas
in
CLL Support
6 years ago
Venetoclax: Shaking CLL Off the Tree
The spectacular early observations on the use of
venetoclax
appear destined to ensure that CLL will itself now inevitably fall from the tangled branches of burdensome lymphoproliferative diseases. http://www.hematology.org/Thehematologist/Years-Best/8178.aspx
The spectacular early observations on the use of
venetoclax
appear destined to ensure that CLL will itself now inevitably fall from the tangled branches of burdensome lymphoproliferative diseases. http://www.hematology.org/Thehematologist/Years-Best/8178.aspx
zaax
in
CLL Support
6 years ago
CLL Society Alert- Toronto Support Group Poll, Dr. Hallek interview, European Hematology Assoc. & Patient meetings in person and online.
m=1120967015548&ca=6fce9f05-a2ef-417d-ac35-2545753a8d95 https://cllsociety.org/2018/06/ash-2017-hallek-molecular-evolution-in-cll-and-
venetoclax
-resistance/ https://youtu.be/pdvzM_XLpFk - And here is a list of upcoming "in person" support groups after a very enthusiastic meeting last Sunday June 10 in
m=1120967015548&ca=6fce9f05-a2ef-417d-ac35-2545753a8d95 https://cllsociety.org/2018/06/ash-2017-hallek-molecular-evolution-in-cll-and-
venetoclax
-resistance/ https://youtu.be/pdvzM_XLpFk - And here is a list of upcoming "in person" support groups after a very enthusiastic meeting last Sunday June 10 in
lankisterguy
Volunteer
in
CLL Support
6 years ago
Ibrutinib /Venetoclax Follow up
I started Ibrutinib back in October 2017 and started
Venetoclax
in January 2018. There was a ramp up period on the
Venetoclax
for 5 weeks. Started at 50mg to 400mg. I did well on the ramp up and overall I have experienced little side effects. Some muscle and joint pain.
I started Ibrutinib back in October 2017 and started
Venetoclax
in January 2018. There was a ramp up period on the
Venetoclax
for 5 weeks. Started at 50mg to 400mg. I did well on the ramp up and overall I have experienced little side effects. Some muscle and joint pain.
BCTexas
in
CLL Support
6 years ago
Anyone experiencing muscle and joint pain on Venetoclax?
I am having a tough time on Ven. I have been dealing with Gastro issues and now lots of muscle and joint pain. I am on Ven 7 months now, and the side effects are really kicking in. Headache, dizziness, joint and muscle pain, and Gastro issues. Oh and did I mention fatigue and weakness? I’m worried my
I am having a tough time on Ven. I have been dealing with Gastro issues and now lots of muscle and joint pain. I am on Ven 7 months now, and the side effects are really kicking in. Headache, dizziness, joint and muscle pain, and Gastro issues. Oh and did I mention fatigue and weakness? I’m worried my
ReneeSusan
in
CLL Support
6 years ago
MRD Negative in the bone Marrow for CLL / SLL after 15 Months on Imbruvica plus Venetoclax - Captivate trial.
I am told by by UCSD that many people on
Venetoclax
plus Gayzva are staying in remission after about 2 years but others have had to go back on the drugs. In my opinion If we can pulse the medications on and off that could at minimum buy us time.
I am told by by UCSD that many people on
Venetoclax
plus Gayzva are staying in remission after about 2 years but others have had to go back on the drugs. In my opinion If we can pulse the medications on and off that could at minimum buy us time.
Hoffy
in
CLL Support
6 years ago
Martini before the Bone Marrow Biopsy work well!!!
I have been on
Venetoclax
plus Imbruvica for 14 months. Hopefully I am MRD Negative in the Bone Marrow!! I have been MRD negative in the blood since 9 months in. Hoffy
I have been on
Venetoclax
plus Imbruvica for 14 months. Hopefully I am MRD Negative in the Bone Marrow!! I have been MRD negative in the blood since 9 months in. Hoffy
Hoffy
in
CLL Support
6 years ago
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