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Urso
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Just Diagnosed
I've been put on
Urso
and will go back to Gastro in 4 months. I also went through early menopause starting in my late 30's. I'm 49 now and still work full time (which can be exhausting).
I've been put on
Urso
and will go back to Gastro in 4 months. I also went through early menopause starting in my late 30's. I'm 49 now and still work full time (which can be exhausting).
Heleno
in
PBC Foundation
9 years ago
Still not listening
too well).i was told by gastro it was proven taking more
urso
than you need actively damages the liver!
too well).i was told by gastro it was proven taking more
urso
than you need actively damages the liver!
cazz22
in
PBC Foundation
9 years ago
PBC OR NOT
He immediately put me on
Urso
and sent me to a Hepatologist. The Hepatologist wanted his own bloodwork because he said I was entirely too young to have PBC (I am 34). It also came back positive so he scheduled a liver biopsy which I had done a week ago today.
He immediately put me on
Urso
and sent me to a Hepatologist. The Hepatologist wanted his own bloodwork because he said I was entirely too young to have PBC (I am 34). It also came back positive so he scheduled a liver biopsy which I had done a week ago today.
Cstar1079
in
PBC Foundation
9 years ago
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Itching
Been taking
urso
since I was diagnosed 6 month ago but the itching as just started this week on the back of my head and my inner thigh but it's leaving these marks what look like bite marks ?
Been taking
urso
since I was diagnosed 6 month ago but the itching as just started this week on the back of my head and my inner thigh but it's leaving these marks what look like bite marks ?
Steelie
in
PBC Foundation
9 years ago
Is Pbc progressing?
mine have never been high but have dropped a lot even tho docs won't give me full dose
urso
. I recently googled a site that said docs shouldn't take any notice of blood results as to progression of Pbc.i then wondered why bother having them done then.sorry can't find the site-think it wasamerican
mine have never been high but have dropped a lot even tho docs won't give me full dose
urso
. I recently googled a site that said docs shouldn't take any notice of blood results as to progression of Pbc.i then wondered why bother having them done then.sorry can't find the site-think it wasamerican
cazz22
in
PBC Foundation
9 years ago
How Long
I take 1,000 mg
Urso
and latest scan on Mon was showing no change in other words no worse than last Scan I know we are never going to be told PBC is getting better because no cure but no change must be a good sign surely .
I take 1,000 mg
Urso
and latest scan on Mon was showing no change in other words no worse than last Scan I know we are never going to be told PBC is getting better because no cure but no change must be a good sign surely .
cavi
in
PBC Foundation
9 years ago
Upset and confused 😭
He did confirm that my ALT has gone from 108 to 49 since taking
urso
and said he is happy for me to continue taking it. I asked him why I would need to take it if I do not have PBC and his reply was that it has no side effects and it is up to me if I want to carry on taking it???
He did confirm that my ALT has gone from 108 to 49 since taking
urso
and said he is happy for me to continue taking it. I asked him why I would need to take it if I do not have PBC and his reply was that it has no side effects and it is up to me if I want to carry on taking it???
Happy43
in
PBC Foundation
9 years ago
Side affects from urso?
Started taking
urso
no problem. It's been 15 months and suddenly I'm not feeling well. Nausea, funny head. Little dizzy. Needing or feeling like I need to urinate a lot.
Started taking
urso
no problem. It's been 15 months and suddenly I'm not feeling well. Nausea, funny head. Little dizzy. Needing or feeling like I need to urinate a lot.
Jen11804
in
British Liver Trust
9 years ago
Test results
I have PBC stage 1-2 and was put on
urso
twice a day. I have to go for an ultrasound next month for problems with my gall bladder. This site has been a blessing. It's has been really helpful to hear others experiences.
I have PBC stage 1-2 and was put on
urso
twice a day. I have to go for an ultrasound next month for problems with my gall bladder. This site has been a blessing. It's has been really helpful to hear others experiences.
Lisa15
in
PBC Foundation
9 years ago
Non responder/clinical trial
I saw the consultant on Monday who confirmed I am a non responder to
urso
. He stated i am a long way off a liver transplant but they need to get me better treatment to improve my quality of life and hopefully prevent the need for a transplant in the future.
I saw the consultant on Monday who confirmed I am a non responder to
urso
. He stated i am a long way off a liver transplant but they need to get me better treatment to improve my quality of life and hopefully prevent the need for a transplant in the future.
Rosie2410
in
PBC Foundation
9 years ago
Shingles!!!!
Hi everybody Here I am into the second week of shingles, so painful, I am taking 3 lots of tablets and cream, I have booked to see my doctor to ask for tablets instead of capsules, I worry I should be taking some form of
URSO
, does anybody not take anything, if so are they ok ?
Hi everybody Here I am into the second week of shingles, so painful, I am taking 3 lots of tablets and cream, I have booked to see my doctor to ask for tablets instead of capsules, I worry I should be taking some form of
URSO
, does anybody not take anything, if so are they ok ?
Sandie1
in
PBC Foundation
9 years ago
urso
Hi everyone I live in West sussex and for the last few months have been having difficulties in obtaining
urso
once again. this happened a while back then came right.
Hi everyone I live in West sussex and for the last few months have been having difficulties in obtaining
urso
once again. this happened a while back then came right.
Shirleygreen
in
PBC Foundation
9 years ago
Stopping urso
I've been taking
urso
for 9 years but have gradually become intolerant and have stopped taking it two weeks ago. Feeling a lot better now. I was wondering if anyone else has stopped taking
urso
and why? Thanks.
I've been taking
urso
for 9 years but have gradually become intolerant and have stopped taking it two weeks ago. Feeling a lot better now. I was wondering if anyone else has stopped taking
urso
and why? Thanks.
burbjay
in
PBC Foundation
9 years ago
Pbc suspected but no urso if normal liver biochemistry
Hence suspected PBC and started
urso
500 mg daily to be gradually increased over 2 months to 1000 mg.
Hence suspected PBC and started
urso
500 mg daily to be gradually increased over 2 months to 1000 mg.
Mmehta
in
PBC Foundation
9 years ago
Steroid Free Yipeeee
I am ok and just so pleased that I am steroid free, I have to keep taking the mercaptopurine and the
urso
but at least the steroids are gone for the near future. Here's hoping Wishing you all a good weekend xx
I am ok and just so pleased that I am steroid free, I have to keep taking the mercaptopurine and the
urso
but at least the steroids are gone for the near future. Here's hoping Wishing you all a good weekend xx
Alley27
in
PBC Foundation
9 years ago
from Canada
I began taking
Urso
seven months ago, along with some pills to help me sleep without itching and some more to do something with the bile. I found I was sleeping about 20 hours a day and felt fatigued all the time. I could not get an answer from him as to what stage I was at.
I began taking
Urso
seven months ago, along with some pills to help me sleep without itching and some more to do something with the bile. I found I was sleeping about 20 hours a day and felt fatigued all the time. I could not get an answer from him as to what stage I was at.
Dianneblake
in
PBC Foundation
9 years ago
Primary liver cirrhosis
Hi I've been diagnosed with pbc recently was wondering what pain killers I can take while on
urso
medication
Hi I've been diagnosed with pbc recently was wondering what pain killers I can take while on
urso
medication
jordan6
in
British Liver Trust
9 years ago
AMA TEST
Is this due to being on
Urso
all these years, or is it possible that I had a false/positive AMA in 2007? Just looking for some thoughts...
Is this due to being on
Urso
all these years, or is it possible that I had a false/positive AMA in 2007? Just looking for some thoughts...
ranick618
in
PBC Foundation
9 years ago
Does PBC respond to steroids?
I was already on
Urso
and pred and Aza were then added to the mix. After a few months of steroids my LFT's had greatly improved and some were almost normal. Next I was told I didn't have AIH but PBC alone. I had to finish the Pred. And stop the aza right away.
I was already on
Urso
and pred and Aza were then added to the mix. After a few months of steroids my LFT's had greatly improved and some were almost normal. Next I was told I didn't have AIH but PBC alone. I had to finish the Pred. And stop the aza right away.
Godfrey1
in
PBC Foundation
9 years ago
Allergic reaction to all medication
Diagnosed with pbc 9 years ago and have been on
urso
since then.
Diagnosed with pbc 9 years ago and have been on
urso
since then.
member1
in
PBC Foundation
9 years ago
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