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Urso
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Joint pain
Hi everyone, I used to take
urso
+ prednisone for PBC/AIH but my doctor has given me a break without pred for a few months. Now, my joints-especially ankles and knees- are killing me. Any suggestions?
Hi everyone, I used to take
urso
+ prednisone for PBC/AIH but my doctor has given me a break without pred for a few months. Now, my joints-especially ankles and knees- are killing me. Any suggestions?
DrDizzy
in
PBC Foundation
7 years ago
Need a doctor
My doctor has not prescribed
Urso
or Ocaliva and I am getting worse by the day with jaundice, swelling in abdomen and feet and legs, severe fatigue and I feel horrible. Thanks for any advice.
My doctor has not prescribed
Urso
or Ocaliva and I am getting worse by the day with jaundice, swelling in abdomen and feet and legs, severe fatigue and I feel horrible. Thanks for any advice.
Mary2017
in
PBC Foundation
7 years ago
Started Ursodiol yesterday
Just started my
Urso
. I picked it up and the price was a bit of a surprise. So I asked the pharmacist the cash price! Over $700. A month! I paid 95. So thankful I have a job with insurance. We gotta do what we gotta do. My years of paying premiums is about to pay off.
Just started my
Urso
. I picked it up and the price was a bit of a surprise. So I asked the pharmacist the cash price! Over $700. A month! I paid 95. So thankful I have a job with insurance. We gotta do what we gotta do. My years of paying premiums is about to pay off.
Nanajo1962
in
PBC Foundation
7 years ago
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Labs
Still taking the
Urso
with Ocaliva 5mg. Waiting in the Ocaliva 10mg to see if they start moving more
Still taking the
Urso
with Ocaliva 5mg. Waiting in the Ocaliva 10mg to see if they start moving more
Shulsey
in
PBC Foundation
7 years ago
Urso
Does anyone know if the
Urso
medication I'm reading about folks taking is unavailable in the U.S.?
Does anyone know if the
Urso
medication I'm reading about folks taking is unavailable in the U.S.?
Mary2017
in
PBC Foundation
7 years ago
Confused with PBC and doctors
Hello, I was diagnoses with PBC in 2015 and put on
URSO
. The
URSO
seemed to make me very bloated, 3 months pregnant bloated. My GI has taken me off of
URSO
and made it seem like it wasn't any big deal as PBC is a slow progressing disease.
Hello, I was diagnoses with PBC in 2015 and put on
URSO
. The
URSO
seemed to make me very bloated, 3 months pregnant bloated. My GI has taken me off of
URSO
and made it seem like it wasn't any big deal as PBC is a slow progressing disease.
mek4wlk
in
PBC Foundation
7 years ago
Pbc and cholesterol bumps
Also I been taking steroid and
urso
since being diagnosed with Pcb. My doctor is putting me on Octavila and also
urso
Is anyone taken both meds to help them with the pcb. Did ur help you? My dr said Octavila will make me itch even more.
Also I been taking steroid and
urso
since being diagnosed with Pcb. My doctor is putting me on Octavila and also
urso
Is anyone taken both meds to help them with the pcb. Did ur help you? My dr said Octavila will make me itch even more.
Prettyeyes79
in
PBC Foundation
7 years ago
Burning/tingling mouth & throat.
I am on
Urso
but only 25g/day Is this a PBC thing or something else?Does anyone have this or know anything about it? Thanks in advance.
I am on
Urso
but only 25g/day Is this a PBC thing or something else?Does anyone have this or know anything about it? Thanks in advance.
Terralynn
in
PBC Foundation
7 years ago
Hello
I am on
URSO
twice a day 300 mg as well as taking Coq-10, fibro-ease, d-rinse and Venlafaxine (to help with never pain). I am seeing my new liver doc on Monday and hoping to get some more answers. I was happy to find this site and find others with this disease.
I am on
URSO
twice a day 300 mg as well as taking Coq-10, fibro-ease, d-rinse and Venlafaxine (to help with never pain). I am seeing my new liver doc on Monday and hoping to get some more answers. I was happy to find this site and find others with this disease.
Pbcgirl28
in
PBC Foundation
7 years ago
Good News!!
The
URSO
is keeping my Alk-phos steady. It fluctuates between 138-180. Right now it's at 148 down from 157 two weeks ago. Other liver enzymes are in normal range for now 🙌. I had family visiting for 3 weeks and cooked a lot.
The
URSO
is keeping my Alk-phos steady. It fluctuates between 138-180. Right now it's at 148 down from 157 two weeks ago. Other liver enzymes are in normal range for now 🙌. I had family visiting for 3 weeks and cooked a lot.
Ktltel
in
PBC Foundation
7 years ago
Update: Labs
The Ocaliva &
Urso
seem to be working well together. Praying they continue to move the numbers. Thank you everyone for all of your support & prayers. Back in two weeks for the same labs. Stay strong❣️
The Ocaliva &
Urso
seem to be working well together. Praying they continue to move the numbers. Thank you everyone for all of your support & prayers. Back in two weeks for the same labs. Stay strong❣️
Shulsey
in
PBC Foundation
7 years ago
Swallowing problems
I have been on
urso
ten months Had one episode of problem swallowing for 2 weeks Within past week is returning and swallowing painful Has anyone experienced this?
I have been on
urso
ten months Had one episode of problem swallowing for 2 weeks Within past week is returning and swallowing painful Has anyone experienced this?
Ljonesfnp
in
PBC Foundation
7 years ago
Call to arms...
Those with symptoms, those still not on
Urso
, those struggling to get to a consultant, etc... we need your input. Those with success stories, we need your input. We need you. Please help us to make life better for PBC patients, now and forever. Please, Robert.
Those with symptoms, those still not on
Urso
, those struggling to get to a consultant, etc... we need your input. Those with success stories, we need your input. We need you. Please help us to make life better for PBC patients, now and forever. Please, Robert.
PBCRobert
Administrator
in
PBC Foundation
7 years ago
Primary biliary cholangitis
I've been on the
urso
acid with no change and wondered if anyone could provide me with any info or treatment's?
I've been on the
urso
acid with no change and wondered if anyone could provide me with any info or treatment's?
HCantThinkOfA
in
British Liver Trust
7 years ago
PBC Antibody GP 210 What does it mean?
Once confirmed
Urso
is the go to treatment and that there is hope that if treatment is working I have a chance. I will be monitored more than usual and that gives me and anybody with this diagnosis some reassurance.
Once confirmed
Urso
is the go to treatment and that there is hope that if treatment is working I have a chance. I will be monitored more than usual and that gives me and anybody with this diagnosis some reassurance.
Jo_Br
in
PBC Foundation
7 years ago
AIH/PBC pregnancy
Im good, felling great, have 1 bud per day, aza and
urso
. Feeling good, have no symptoms.Are there any problems concieve with both AIH/PBC OR WITH PREGNANCY AS SUCH? Can there be more problems to concieve or with pregnancy with bot, Aih/PBC (overlapse) then with only one of them? Thank u
Im good, felling great, have 1 bud per day, aza and
urso
. Feeling good, have no symptoms.Are there any problems concieve with both AIH/PBC OR WITH PREGNANCY AS SUCH? Can there be more problems to concieve or with pregnancy with bot, Aih/PBC (overlapse) then with only one of them? Thank u
anny84
in
British Liver Trust
7 years ago
Test result
Ok just a little fibrose and now i have to take
urso
500 mg And a bone scan to see for osteoporosis. Any way Im happy with the results so fa en hope that the
urso
will do his job. Greet Marianne
Ok just a little fibrose and now i have to take
urso
500 mg And a bone scan to see for osteoporosis. Any way Im happy with the results so fa en hope that the
urso
will do his job. Greet Marianne
marianne349
in
PBC Foundation
7 years ago
New member here
I am wondering if anyone else here had been taking
Urso
for a long time, then stopped for a while and noticed any changes. Also, has anyone had a drastic cost increase in
Urso
? Thanks!
I am wondering if anyone else here had been taking
Urso
for a long time, then stopped for a while and noticed any changes. Also, has anyone had a drastic cost increase in
Urso
? Thanks!
eahicks68
in
PBC Foundation
7 years ago
Delayed reactions to urso
Hi, everyone, I've been taking
urso
for about five months. I felt fine up to about a month/six weeks ago but now I'm experiencing a horrible taste that just won't go away and some nausea. Has anyone else experienced this? I don't know what to do about it.
Hi, everyone, I've been taking
urso
for about five months. I felt fine up to about a month/six weeks ago but now I'm experiencing a horrible taste that just won't go away and some nausea. Has anyone else experienced this? I don't know what to do about it.
tinypixie
in
PBC Foundation
7 years ago
Shivering at night
Hi just been diagnosed over phone with possible pbc (apparently somebody made mistake with blood test) when I asked what is that dr told me to google it - he has prescribed
Urso
- only been taking a few days however the last 3 nights I have been shivering and shaking yet I am burning up on the outside
Hi just been diagnosed over phone with possible pbc (apparently somebody made mistake with blood test) when I asked what is that dr told me to google it - he has prescribed
Urso
- only been taking a few days however the last 3 nights I have been shivering and shaking yet I am burning up on the outside
Cazzie56
in
PBC Foundation
7 years ago
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