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I am off Pred since April, but do I still have PMR?
I always had aches and tiredness, but as it was not unbearable and I rested a lot I thought this was better than remaining on
steroids
. I stopped the
steroids
beginning of April ‘23. I still feeel tired all the time, and I am slow and unsteady on my feet.
I always had aches and tiredness, but as it was not unbearable and I rested a lot I thought this was better than remaining on
steroids
. I stopped the
steroids
beginning of April ‘23. I still feeel tired all the time, and I am slow and unsteady on my feet.
Fetlar73
in
PMRGCAuk
11 months ago
Good PMR specialist in Bristol/WestonSM?
He says I am too young - I’m 56 - and he’s run every test in the book on me (MRI, PET, chest x-ray, ultrasound) and all negative ( though I was sure they would be, given that I was on such a high dose of
steroids
.)
He says I am too young - I’m 56 - and he’s run every test in the book on me (MRI, PET, chest x-ray, ultrasound) and all negative ( though I was sure they would be, given that I was on such a high dose of
steroids
.)
Lyra42
in
PMRGCAuk
7 months ago
Flare?
Just said to wait a few days and if still in pain increase
steroids
! My mum was in extreme pain.
Just said to wait a few days and if still in pain increase
steroids
! My mum was in extreme pain.
NellieDoodles
in
PMRGCAuk
6 months ago
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Advice regarding recent flare up please.
I understand he wants me off the
steroids
as soon as possible and why, but he doesn’t seem to understand that l want some quality of life too. Thoughts?
I understand he wants me off the
steroids
as soon as possible and why, but he doesn’t seem to understand that l want some quality of life too. Thoughts?
Legsandmore
in
PMRGCAuk
9 months ago
Rash/swollen lips
Luckily however I've managed to speak to a rheumatology nurse who has put me on a course of
steroids
for the weekend until we can discuss a plan of action on Monday! Thank you everyone for commenting I really appreciate all your advice 💕
Luckily however I've managed to speak to a rheumatology nurse who has put me on a course of
steroids
for the weekend until we can discuss a plan of action on Monday! Thank you everyone for commenting I really appreciate all your advice 💕
Haylz2109
in
LUPUS UK
11 months ago
Steroids and Diabetes type 2
since I’ve been on
steroids
for PMR, for just over 2 months, my blood sugar tests have increased from between 7 to 10, taken 3+ hours after meals, to between 8.5 to 12.5, taken 3+ hours after meals. Can I expect this to improve (lower) as I taper?
since I’ve been on
steroids
for PMR, for just over 2 months, my blood sugar tests have increased from between 7 to 10, taken 3+ hours after meals, to between 8.5 to 12.5, taken 3+ hours after meals. Can I expect this to improve (lower) as I taper?
Thiago1396
in
PMRGCAuk
1 year ago
Asthma Flare-up
I haven't really felt a difference in myself since starting the
steroids
and my peak flow isn't moving above 310 when it's usually about 450.
I haven't really felt a difference in myself since starting the
steroids
and my peak flow isn't moving above 310 when it's usually about 450.
Lilmix03
in
Asthma Community Forum
1 year ago
Steroid Dose
Hi I was wondering what dose of
steroids
people took and when they started taking them for people who got an positive. Sadly 10mg steroid on transfer day did not work for me.
Hi I was wondering what dose of
steroids
people took and when they started taking them for people who got an positive. Sadly 10mg steroid on transfer day did not work for me.
Hidden
in
Fertility Network UK
1 year ago
Skin tear
I'm on Benepali injections and feel like I've been given a new lease of life, my problem is
steroids
I still take 5mg every day and have done for the past 6yrs. My rheumatologist tried to get me reduce the dose but I honestly cannot.
I'm on Benepali injections and feel like I've been given a new lease of life, my problem is
steroids
I still take 5mg every day and have done for the past 6yrs. My rheumatologist tried to get me reduce the dose but I honestly cannot.
Kazwilks
in
Arthritis Action
9 months ago
Glaucoma, OCT showing deterioration since starting Pred for PMR
Has anyone else noted the same when they went on
steroids
? I am off for an MRI . The IOP is 20 which is a bit higher than one would like but opthalmo thinks doesn't explain why GCC should have changed so much.
Has anyone else noted the same when they went on
steroids
? I am off for an MRI . The IOP is 20 which is a bit higher than one would like but opthalmo thinks doesn't explain why GCC should have changed so much.
Sillydogsmum
in
PMRGCAuk
10 months ago
Medication or ?
Now been on
steroids
, hydroxychloroquine, methotrexate etc for many months - on and off. Now promised biologics and have high hopes!? Now in rheumy flare as stopped most of 'orthodox' drugs causing some daily living problems - as do the rheumy symptoms...difficult to cope with.
Now been on
steroids
, hydroxychloroquine, methotrexate etc for many months - on and off. Now promised biologics and have high hopes!? Now in rheumy flare as stopped most of 'orthodox' drugs causing some daily living problems - as do the rheumy symptoms...difficult to cope with.
Samwise91
in
NRAS
10 months ago
Steroids
My friend is on 65mg of pred.
steroids
. I read that he needs a low salt and low fat diet. Also he needs to eat foods with potassium and he should take Vitamin D. Should he speak to his GP even though the
steroids
are being managed by his neurologist?
My friend is on 65mg of pred.
steroids
. I read that he needs a low salt and low fat diet. Also he needs to eat foods with potassium and he should take Vitamin D. Should he speak to his GP even though the
steroids
are being managed by his neurologist?
Hope2024
in
PMRGCAuk
1 year ago
Almost there
"The
steroids
have a fantastic success rate with almost immediate effect. One of cheapest to produce and great sales." Fair enough, it is business and commerce I thought whilst commissioning his wonderfully designed eco efficient heating system, to serve the swimming pool and house.
"The
steroids
have a fantastic success rate with almost immediate effect. One of cheapest to produce and great sales." Fair enough, it is business and commerce I thought whilst commissioning his wonderfully designed eco efficient heating system, to serve the swimming pool and house.
Pumukkale
in
PMRGCAuk
6 months ago
VERTEBROPLASTY OP WENT FINE - SO FAR, SO GOOD
Steroids
were only discussed briefly with the nurse who called and said "oh
steroids
are not a problem". She didn't know what a hydrocortisone cover was. To hopefully avoid a flare, I increased the Pred from 16 to 20 for last couple of nights.
Steroids
were only discussed briefly with the nurse who called and said "oh
steroids
are not a problem". She didn't know what a hydrocortisone cover was. To hopefully avoid a flare, I increased the Pred from 16 to 20 for last couple of nights.
Missus835
in
PMRGCAuk
9 months ago
What day of cycle did you start steroids, clexane and intralipids / IVIG in FET cycles?
Hello Can you tell me your experiences with the above please? Thank you all x
Hello Can you tell me your experiences with the above please? Thank you all x
Skittles11
in
Fertility Network UK
9 months ago
Weight gain and osteoporosis
I was diagnosed with GCA in September 2022 and have been on high doses of
steroids
until very recently. My rheumatologist has recommended that I taper by 2.5 mg every two weeks and I am currently on 25 mg as of today.
I was diagnosed with GCA in September 2022 and have been on high doses of
steroids
until very recently. My rheumatologist has recommended that I taper by 2.5 mg every two weeks and I am currently on 25 mg as of today.
Raga72
in
PMRGCAuk
10 months ago
Colonoscopy
Hi I’m due a colonoscopy next week and wondered what other people have done about their
steroids
. The prep leads to bowel evacuation. I’m currently on 7.5 msg. Would it be worth doubling the dose or upping it to 10mgs a few days beforehand? Any tips gratefully received!
Hi I’m due a colonoscopy next week and wondered what other people have done about their
steroids
. The prep leads to bowel evacuation. I’m currently on 7.5 msg. Would it be worth doubling the dose or upping it to 10mgs a few days beforehand? Any tips gratefully received!
Thelmarina
in
PMRGCAuk
11 months ago
Consultant doesn't believe my diagnosis
Hi everyoneA couple of months ago I saw my respiratory consultant after a long time because I'd been having a lot of flare ups which needed prolonged doses of
steroids
and often antibiotics but for some reason he told me that he doesn't think that I actually have asthma and that my inhalers and nebuliser
Hi everyoneA couple of months ago I saw my respiratory consultant after a long time because I'd been having a lot of flare ups which needed prolonged doses of
steroids
and often antibiotics but for some reason he told me that he doesn't think that I actually have asthma and that my inhalers and nebuliser
Lilmix03
in
Asthma Community Forum
9 months ago
Me Again
I Am unable to take methotrexate so am on Hydroxychloroquine 400mg daily he flatly refuses to give me any
steroids
and I don’t think the HX has kicked in yet. I have inflammation in my stomach and back went to A & E by ambulance after calling 111 they prescribed Pregabalin for neuropathic pain.
I Am unable to take methotrexate so am on Hydroxychloroquine 400mg daily he flatly refuses to give me any
steroids
and I don’t think the HX has kicked in yet. I have inflammation in my stomach and back went to A & E by ambulance after calling 111 they prescribed Pregabalin for neuropathic pain.
Wonderfullifeandmore
in
PMRGCAuk
10 months ago
How long to take Actemra?
I know not everyone takes it and I'm on such a high dose of
steroids
that it seems it's not helping me. I'd love to hear your experiences and advice. Thank you so much!
I know not everyone takes it and I'm on such a high dose of
steroids
that it seems it's not helping me. I'd love to hear your experiences and advice. Thank you so much!
potterylady
in
PMRGCAuk
1 year ago
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