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Experiences with
Ruxolitinib
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Blood Pressure
have many patients had blood pressure problems since being diagnosed with PV and MPN also when taking
Ruxolitinib
have many patients had blood pressure problems since being diagnosed with PV and MPN also when taking
Ruxolitinib
waddles22
in
MPN Voice
5 years ago
Christmas message 2019 from the team at MPN Voice
take part in numerous surveys, your contribution to these surveys does make a difference, and this year especially with the survey for patients and carers we asked you to complete to help us formulate the responses for the SMC (Scottish Medicines Consortium) submission regarding the prescribing of
Ruxolitinib
take part in numerous surveys, your contribution to these surveys does make a difference, and this year especially with the survey for patients and carers we asked you to complete to help us formulate the responses for the SMC (Scottish Medicines Consortium) submission regarding the prescribing of
Ruxolitinib
Mazcd
MPNVoice
in
MPN Voice
5 years ago
WEIGHT GAINS WITH JAKAFI
:D As someone who is taking
Ruxolitinib
, I found this paper's frank admissions rather interesting seeing that the funding is coming from the manufacturers of
Ruxolitinib
(Jakafi).
:D As someone who is taking
Ruxolitinib
, I found this paper's frank admissions rather interesting seeing that the funding is coming from the manufacturers of
Ruxolitinib
(Jakafi).
socrates_8
in
MPN Voice
5 years ago
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MF review article : Treatment options 2019
Just google MF and
Ruxolitinib
, and the article summary comes up. You can also print off a PDF of the whole article, if you are lucky. Worth showing to your haematologist. Myelofibrosis in 2019: moving beyond JAK2 inhibition” Schieber et al. Blood Cancer Journal (2019)9:74 all the best Rachel
Just google MF and
Ruxolitinib
, and the article summary comes up. You can also print off a PDF of the whole article, if you are lucky. Worth showing to your haematologist. Myelofibrosis in 2019: moving beyond JAK2 inhibition” Schieber et al. Blood Cancer Journal (2019)9:74 all the best Rachel
Rachelthepotter
in
MPN Voice
5 years ago
Hens teeth, aggressive sarcomatoid sccs and ruxolitinib
Its supposed to be less immunosuppressive than
ruxolitinib
- or is that one of the others? My myelofibrosis is still Inter 2, and my new haematologist ( in the same hospital ) is going to arrange another BMB and genomic analysis.
Its supposed to be less immunosuppressive than
ruxolitinib
- or is that one of the others? My myelofibrosis is still Inter 2, and my new haematologist ( in the same hospital ) is going to arrange another BMB and genomic analysis.
Rachelthepotter
in
MPN Voice
5 years ago
Pegasys update
Not an easy journey starting the meds but a whole lot better for me as
Ruxolitinib
and Hydroxycarbamide hardly touched my platelets Regards Graham
Not an easy journey starting the meds but a whole lot better for me as
Ruxolitinib
and Hydroxycarbamide hardly touched my platelets Regards Graham
Graham7694
in
MPN Voice
5 years ago
Researchers examine the metabolic effects of an oral blood cancer drug ~ RUXOLITINIB (Jakafi)
However, many of us may have already read that taking
Ruxolitinib
has been associated with reports of weight gain... But you might not have read this... Read on to learn more about their findings... Best wishes Steve https://www.mpn-mate.com/forum/viewtopic.php?f=3&t=129
However, many of us may have already read that taking
Ruxolitinib
has been associated with reports of weight gain... But you might not have read this... Read on to learn more about their findings... Best wishes Steve https://www.mpn-mate.com/forum/viewtopic.php?f=3&t=129
socrates_8
in
MPN Voice
5 years ago
PV
I have been taking
Ruxolitinib
for 4 weeks. I wondered how other patients are coping with this medication,
I have been taking
Ruxolitinib
for 4 weeks. I wondered how other patients are coping with this medication,
MamPRV
in
MPN Voice
5 years ago
Was my Jakafi dosage lowered inappropriatelyand need to be raised?
I have stage 3 myelofibrosis, I was on 20mg of
Ruxolitinib
signed up for a study drug Navitoclax and the first thing a P.A did not a hematologist was lower my
ruxolitinib
to 10 mg cause my platelets went down.
I have stage 3 myelofibrosis, I was on 20mg of
Ruxolitinib
signed up for a study drug Navitoclax and the first thing a P.A did not a hematologist was lower my
ruxolitinib
to 10 mg cause my platelets went down.
Boriqua
in
MPN Voice
5 years ago
I was diagnosed with PV in 2016 and live in North Yorkshire
After a 18 months of weekly to 2 weekly venesections, trying but not having posituve results from anagrelide and interferon I am now well controlled on Warfarin and
Ruxolitinib
( because of a melanoma in the past I cannot take hydroxyurea).
After a 18 months of weekly to 2 weekly venesections, trying but not having posituve results from anagrelide and interferon I am now well controlled on Warfarin and
Ruxolitinib
( because of a melanoma in the past I cannot take hydroxyurea).
Dianne-Guisborough
in
MPN Voice
5 years ago
Weight gain on Ruxolitinib
I’ve been taking
ruxolitinib
(40 mg each day) for 7 months since PV progressed to MF. I have more UTIs and weight gain. I wonder if other people experience these problems and how they can be overcome?
I’ve been taking
ruxolitinib
(40 mg each day) for 7 months since PV progressed to MF. I have more UTIs and weight gain. I wonder if other people experience these problems and how they can be overcome?
Patchworklife
in
MPN Voice
5 years ago
NEW HOPE FOR AML...
For example, in Myelofibrosis,
Ruxolitinib
(Jakafi) is used to suppress the 'Proliferation' of our blood cells, and hopefully thereby create some improvement in Quality of Life (QoL), and maybe even add a few years to our longevity (?)
For example, in Myelofibrosis,
Ruxolitinib
(Jakafi) is used to suppress the 'Proliferation' of our blood cells, and hopefully thereby create some improvement in Quality of Life (QoL), and maybe even add a few years to our longevity (?)
socrates_8
in
MPN Voice
5 years ago
Clinical trial
I am on
ruxolitinib
at the moment but my platelets keeping dropping. My oncologist put me forward for a clinical trial I went to London talked the very nice Dr. He gave me 2 literature books to read regarding the trial. I really don't know what to do. I'm thinking I don't want to go through this.
I am on
ruxolitinib
at the moment but my platelets keeping dropping. My oncologist put me forward for a clinical trial I went to London talked the very nice Dr. He gave me 2 literature books to read regarding the trial. I really don't know what to do. I'm thinking I don't want to go through this.
Ven61
in
MPN Voice
5 years ago
Researchers find a potential new combination therapy against a rare disease
These trials were conducted by Spanish researchers using a number of drugs in combination with
Ruxolitinib
. Best wishes Steve https://www.mpn-mate.com/forum/viewtopic.php?f=3&t=64
These trials were conducted by Spanish researchers using a number of drugs in combination with
Ruxolitinib
. Best wishes Steve https://www.mpn-mate.com/forum/viewtopic.php?f=3&t=64
socrates_8
in
MPN Voice
5 years ago
MPN Voice needs your feedback to support an application to the Scottish Medicines Consortium (SMC)
Ruxolitinib
(Jakavi) is not approved by NICE in England for PV.
Ruxolitinib
(Jakavi) is a treatment for PV patients who have failed or are intolerant of first line therapy with Hydroxycarbamide (Hydrea or Hydroxyurea).
Ruxolitinib
(Jakavi) is not approved by NICE in England for PV.
Ruxolitinib
(Jakavi) is a treatment for PV patients who have failed or are intolerant of first line therapy with Hydroxycarbamide (Hydrea or Hydroxyurea).
Mazcd
MPNVoice
in
MPN Voice
5 years ago
Potential New MF Drug
CPI-0610 Demonstrates Activity in Patients With Myelofibrosis After
Failure Post by socrates_8 » Tue Aug 20, 2019 7:43 am Morning everyone, thought some of you might find this of interest.
CPI-0610 Demonstrates Activity in Patients With Myelofibrosis After
Failure Post by socrates_8 » Tue Aug 20, 2019 7:43 am Morning everyone, thought some of you might find this of interest.
socrates_8
in
MPN Voice
5 years ago
Ruxolitinib plus Pegasys for MF: is anyone in the UK using this combination ?
Having had a sarcomatoid SCC likely triggered by
ruxolitinib
, and a haematologist v reluctant to reduce the rux and add some pegasys to maintain the good control of my MF without exacerbating the skin cancer risk , ( which does seem to me to be worth trying) is there anyone In the UK who is using
Having had a sarcomatoid SCC likely triggered by
ruxolitinib
, and a haematologist v reluctant to reduce the rux and add some pegasys to maintain the good control of my MF without exacerbating the skin cancer risk , ( which does seem to me to be worth trying) is there anyone In the UK who is using
Rachelthepotter
in
MPN Voice
5 years ago
Combining Pegasys and ruxolitinib (Jakafi) for MF: has anyone tried it?
I'm having a grim time at present, as the increased risk of aggressive skin cancers triggered by the
ruxolitinib
I’m taking ( was inc to 20mg bd at end December to help the fatigue ( it didn’t) ( now back to 15mg bd) haunts me.
I'm having a grim time at present, as the increased risk of aggressive skin cancers triggered by the
ruxolitinib
I’m taking ( was inc to 20mg bd at end December to help the fatigue ( it didn’t) ( now back to 15mg bd) haunts me.
Rachelthepotter
in
MPN Voice
5 years ago
A phase 2 study of ruxolitinib in combination with azacitidine in patients with myelofibrosis
Sounds very encouraging http://www.bloodjournal.org/content/132/16/1664
Sounds very encouraging http://www.bloodjournal.org/content/132/16/1664
Paul123456
in
MPN Voice
5 years ago
Ruxolitinib and UTIs
I wonder how other
Ruxolitinib
users suffering from UTIs cope with the problem and whether it’s possible to boost the immune system to help prevent infections?
I wonder how other
Ruxolitinib
users suffering from UTIs cope with the problem and whether it’s possible to boost the immune system to help prevent infections?
Patchworklife
in
MPN Voice
5 years ago
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