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Jakafi for Patients with COVID-19
. » https://www.cancernetwork.com/news/planned-phase-iii-trial-
ruxolitinib
-plus-standard-care-patients-covid-19
. » https://www.cancernetwork.com/news/planned-phase-iii-trial-
ruxolitinib
-plus-standard-care-patients-covid-19
Manouche
in
MPN Voice
4 years ago
COVID-19 a planned trial for Ruxolitinib (Jakavi) to treat patients
Managed Access Program (MAP) for Patients Diagnosed With Severe/Very Severe COVID-19 Illness The purpose of this Cohort Treatment Plan is to allow access to
ruxolitinib
for eligible patients diagnosed with severe/very severe COVID-19 illness.
Managed Access Program (MAP) for Patients Diagnosed With Severe/Very Severe COVID-19 Illness The purpose of this Cohort Treatment Plan is to allow access to
ruxolitinib
for eligible patients diagnosed with severe/very severe COVID-19 illness.
Mazcd
MPNVoice
in
MPN Voice
4 years ago
Considering ruxolitinib for MF
Now 75 years old, oncologist recommending
ruxolitinib
for MF. What was your experience?
Now 75 years old, oncologist recommending
ruxolitinib
for MF. What was your experience?
Pte82
in
MPN Voice
4 years ago
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Scotland - NHS letters for MF?
Has anyone in Scotland with MF Intermediate 2 or High Risk and on
Ruxolitinib
had a letter from NHS Scotland about being extremely vulnerable?
Has anyone in Scotland with MF Intermediate 2 or High Risk and on
Ruxolitinib
had a letter from NHS Scotland about being extremely vulnerable?
Hidden
in
MPN Voice
4 years ago
Does Ruxolitinib make you "extremely vulnerable"?
I understood it did, because it depresses the immune system. But there's no sign of a letter from NHS/government. My friend who has a lung condition had hers last week. Am I making an unnecessary fuss, shielding?
I understood it did, because it depresses the immune system. But there's no sign of a letter from NHS/government. My friend who has a lung condition had hers last week. Am I making an unnecessary fuss, shielding?
Oscara
in
MPN Voice
4 years ago
CORONA VIRUS
Husband is JAX-2-V617 mutation positive MPN consistent with Polycythaemia Vera
Ruxolitinib
15grms twice a day. Is he classed in the current situation as vulnerable.
Husband is JAX-2-V617 mutation positive MPN consistent with Polycythaemia Vera
Ruxolitinib
15grms twice a day. Is he classed in the current situation as vulnerable.
waddles22
in
MPN Voice
4 years ago
COVID-19 and Ruxolitnib
Article I read on Rux and COVID_19: https://www.targetedonc.com/news/phase-iii-trial-planned-for-
ruxolitinib
-to-treat-covid19related-cytokine-storm.
Article I read on Rux and COVID_19: https://www.targetedonc.com/news/phase-iii-trial-planned-for-
ruxolitinib
-to-treat-covid19related-cytokine-storm.
Elizka
in
MPN Voice
4 years ago
Coronavirus (COVID19) - ADVICE FROM THE MEDICAL TEAM
Probably the bigger risk would be for patients taking
ruxolitinib
, this is because
Ruxolitinib
is a slightly more powerful immunosuppressing drug, but overall it improves patients' fitness which is important to bear in mind.
Probably the bigger risk would be for patients taking
ruxolitinib
, this is because
Ruxolitinib
is a slightly more powerful immunosuppressing drug, but overall it improves patients' fitness which is important to bear in mind.
Mazcd
MPNVoice
in
MPN Voice
4 years ago
MPN News for treatment primary myelofibrosis, post-PVMF, Post ET-MF and Primary myelofibrosis
The investigators concluded that the combination of panobinostat and
ruxolitinib
was feasible in the patient population. Multiple combination trials were initiated during the time period that this trial was launched, limiting patient enrollment for this trial, wrote the authors.
The investigators concluded that the combination of panobinostat and
ruxolitinib
was feasible in the patient population. Multiple combination trials were initiated during the time period that this trial was launched, limiting patient enrollment for this trial, wrote the authors.
mammared
in
MPN Voice
4 years ago
Update
I have tried various treatments -
Ruxolitinib
, HU and a combination of both but nothing really touched my platelets but since going to the QE in Birmingham I have been taking Pegasys 45 Mcg weekly and have now achieved complete haematological response 😊 I haven't been feeling well with stomach issues
I have tried various treatments -
Ruxolitinib
, HU and a combination of both but nothing really touched my platelets but since going to the QE in Birmingham I have been taking Pegasys 45 Mcg weekly and have now achieved complete haematological response 😊 I haven't been feeling well with stomach issues
Graham7694
in
MPN Voice
4 years ago
Sarcomatoid SCCs and ruxolitinib BMB
Hi As I posted here, I had a BMB a couple of weeks ago. Unfortunately the first part of the sample that was analysed had been badly taken and couldn’t be fully analysed. What a bummer. So I’ll have to wait for the trephine ( bony core) part of the biopsy to be analysed. I’m still hoping that I can
Hi As I posted here, I had a BMB a couple of weeks ago. Unfortunately the first part of the sample that was analysed had been badly taken and couldn’t be fully analysed. What a bummer. So I’ll have to wait for the trephine ( bony core) part of the biopsy to be analysed. I’m still hoping that I can
Rachelthepotter
in
MPN Voice
4 years ago
Combined ruxolitinib and pegasys therapy for MF and PV gives great results. Danish phase 2 study Jan 2020 ( ruxopeg)
The combination of
ruxolitinib
and pegasys does look to be worth trying.
And Interferon-Α2 Combination Therapy For Patients With Polycythemia Vera Or Myelofibrosis: A Phase II Study.
The combination of
ruxolitinib
and pegasys does look to be worth trying.
And Interferon-Α2 Combination Therapy For Patients With Polycythemia Vera Or Myelofibrosis: A Phase II Study.
Rachelthepotter
in
MPN Voice
4 years ago
Ongoing Research Poised to Add Options for Myelofibrosis Treatment
:D I simply found this an optimistic and encouraging from the perspective of MF sufferers, and especially if & when their
Ruxolitinib
(aka Jakafi), loses some of its efficacy, which it tends to do after circa 3.2 years...
:D I simply found this an optimistic and encouraging from the perspective of MF sufferers, and especially if & when their
Ruxolitinib
(aka Jakafi), loses some of its efficacy, which it tends to do after circa 3.2 years...
socrates_8
in
MPN Voice
4 years ago
Jak 2positive MPN treatment Ruxolitinib
He had no problems until he started treatment on
Ruxolitinib
.. other than this his treatment has been really successful. He has had 3 skin cancers from head and shoulder removed successfully He says he could never go back to how he was 3 years ago.
Ruxolitinib
was a answer to a prayer
He had no problems until he started treatment on
Ruxolitinib
.. other than this his treatment has been really successful. He has had 3 skin cancers from head and shoulder removed successfully He says he could never go back to how he was 3 years ago.
Ruxolitinib
was a answer to a prayer
waddles22
in
MPN Voice
5 years ago
Advice for Patients with Myeloproliferative Neoplasms - 19th March 2020
Patients taking
ruxolitinib
regardless of their diagnosis may be at higher risk and are considered to be potentially more vulnerable. These patients should follow government advice for vulnerable individuals.
In addition
6.
Patients taking
ruxolitinib
regardless of their diagnosis may be at higher risk and are considered to be potentially more vulnerable. These patients should follow government advice for vulnerable individuals.
In addition
6.
Mazcd
MPNVoice
in
MPN Voice
4 years ago
Drug trial
Also, how have you got on with
Ruxolitinib
for your PV? Thanks. Apologies for the essay!! Sandra
Also, how have you got on with
Ruxolitinib
for your PV? Thanks. Apologies for the essay!! Sandra
Splb3317
in
MPN Voice
5 years ago
MF and mutations
Before receiving the news about the mutations, my prognosis was a mean lfe expectancy of 4 years, but
Ruxolitinib
, my current medication could prolong that period. However, now being rated as a highj risk, I am assuming my life expectancy is now less than 4 years.
Before receiving the news about the mutations, my prognosis was a mean lfe expectancy of 4 years, but
Ruxolitinib
, my current medication could prolong that period. However, now being rated as a highj risk, I am assuming my life expectancy is now less than 4 years.
billybrock
in
MPN Voice
4 years ago
SMC decision regarding Ruxolitinib (Jakavi) for PV patients in Scotland
MPN Voice asked for your help and feedback in August to support an application to the SMC regarding the prescribing of
Ruxolitinib
(Jakavi) to patients living in Scotland, as it was only available to PV patients via a clinical trial.
MPN Voice asked for your help and feedback in August to support an application to the SMC regarding the prescribing of
Ruxolitinib
(Jakavi) to patients living in Scotland, as it was only available to PV patients via a clinical trial.
Mazcd
MPNVoice
in
MPN Voice
5 years ago
COVID-19 Outbreak: Advice for Patients with Myeloproliferative Neoplasms (MPNs) 30th March 2020
Patients with myelofibrosis and those taking
ruxolitinib
have a weakened immune system and severe infections from other viruses have previously been reported in this patient group.
Patients with myelofibrosis and those taking
ruxolitinib
have a weakened immune system and severe infections from other viruses have previously been reported in this patient group.
Mazcd
MPNVoice
in
MPN Voice
4 years ago
Blood Pressure
have many patients had blood pressure problems since being diagnosed with PV and MPN also when taking
Ruxolitinib
have many patients had blood pressure problems since being diagnosed with PV and MPN also when taking
Ruxolitinib
waddles22
in
MPN Voice
5 years ago
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