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Ruxolitinib
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My Covid-19 experience – so far
Is it the
Ruxolitinib
that reduced my immune system and allowed me to catch the Covid-19 and that lowered my immune system even more and so the Shingles woke up and hit me? Its a big question.
Is it the
Ruxolitinib
that reduced my immune system and allowed me to catch the Covid-19 and that lowered my immune system even more and so the Shingles woke up and hit me? Its a big question.
MichaelS
in
MPN Voice
4 years ago
Joint pain/Bone pain with MF
I will be able to ask my consultant about it next week but I wondered if this is common with MF or possibly to do with
Ruxolitinib
. I'm not clear on what bone pain would feel like. It seems to happen more when I'm tired or cold and is easily eased with Paracetamol.
I will be able to ask my consultant about it next week but I wondered if this is common with MF or possibly to do with
Ruxolitinib
. I'm not clear on what bone pain would feel like. It seems to happen more when I'm tired or cold and is easily eased with Paracetamol.
Otterfield
in
MPN Voice
4 years ago
MF for 30 years
I am now in my late 60s and on a low dose of
ruxolitinib
thanks to wonderful NHS. I have an enlarged spleen which makes me look pregnant, but it doesn't give me much trouble and I wear baggy clothes to disguise it. I have a pretty good quality of life and am able to do most of the things I want.
I am now in my late 60s and on a low dose of
ruxolitinib
thanks to wonderful NHS. I have an enlarged spleen which makes me look pregnant, but it doesn't give me much trouble and I wear baggy clothes to disguise it. I have a pretty good quality of life and am able to do most of the things I want.
Bullace
in
MPN Voice
4 years ago
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Are immature cells bad and why do I need another bone marrow biopsy?
Have been MF for 15 months and being treated with
Ruxolitinib
. Not showing any symptoms and feel well, other than an enlarged spleen. Blood counts are good, except for a slightly lower Haemaglobin concentrate, and slightly increased white cells.
Have been MF for 15 months and being treated with
Ruxolitinib
. Not showing any symptoms and feel well, other than an enlarged spleen. Blood counts are good, except for a slightly lower Haemaglobin concentrate, and slightly increased white cells.
billybrock
in
MPN Voice
4 years ago
ET progressed to Myelofibrosis
I have started
Ruxolitinib
and will be having weekly blood tests and platelet transfusions for a few weeks but hoping things will improve when my spleen shrinks. Thanks in advance. I am so thankful for this forum.
I have started
Ruxolitinib
and will be having weekly blood tests and platelet transfusions for a few weeks but hoping things will improve when my spleen shrinks. Thanks in advance. I am so thankful for this forum.
Otterfield
in
MPN Voice
4 years ago
has anyone been on exjade
I have benefited from the development of both imatinib and
ruxolitinib
so fell I have a duty to pay back to those patients willing and brave enough to go through trials to develop those drugs.
I have benefited from the development of both imatinib and
ruxolitinib
so fell I have a duty to pay back to those patients willing and brave enough to go through trials to develop those drugs.
skodaguy
in
MPN Voice
4 years ago
Milburn.
My consultant is advising me to go onto either Busulfan or
Ruxolitinib
but concerned that either of these would reduce my immunity.
My consultant is advising me to go onto either Busulfan or
Ruxolitinib
but concerned that either of these would reduce my immunity.
Milburn
in
MPN Voice
4 years ago
Ruxolitinib plus Pegasys for MF: anyone else on this combination? Oxford meet up.
Am taking
ruxolitinib
, and for the last month pegasys as well. Would be interested to make contact with anyone else taking this combination I’m sending this post while sitting in the university parks on a shady bench.
Am taking
ruxolitinib
, and for the last month pegasys as well. Would be interested to make contact with anyone else taking this combination I’m sending this post while sitting in the university parks on a shady bench.
Rachelthepotter
in
MPN Voice
4 years ago
Ruxolitinib
I was just wondering if anyone with PV and on
ruxolitinib
who experienced horrible itching before taking it has found that it is coming back despite blood counts normal. I’ve been in it for 18 months Anna x
I was just wondering if anyone with PV and on
ruxolitinib
who experienced horrible itching before taking it has found that it is coming back despite blood counts normal. I’ve been in it for 18 months Anna x
S031251
in
MPN Voice
4 years ago
Shielding with PV
Husband has PV MPN taking
Ruxolitinib
15grms twice daily. Great news about Shielders yesterday!!!! not sure now as they are saying anyone with a blood cancer should be very careful and maybe wait for further news. I have been shielding with him.
Husband has PV MPN taking
Ruxolitinib
15grms twice daily. Great news about Shielders yesterday!!!! not sure now as they are saying anyone with a blood cancer should be very careful and maybe wait for further news. I have been shielding with him.
waddles22
in
MPN Voice
4 years ago
Calling for a revolution in the treatment of MPNs?
I would guess that even low-dose Interferon +
Ruxolitinib
would cost a lot more than Aspirin + Hydroxycarbamide ...
I would guess that even low-dose Interferon +
Ruxolitinib
would cost a lot more than Aspirin + Hydroxycarbamide ...
JaK2ET
in
MPN Voice
4 years ago
Ruxolitinib and Covid-19 - Trial
Scientists want to see whether
Ruxolitinib
can reduce complications in deteriorating Covid-19 patients. They believe it could reduce the need for treatment in intensive care and in some cases save lives.
Scientists want to see whether
Ruxolitinib
can reduce complications in deteriorating Covid-19 patients. They believe it could reduce the need for treatment in intensive care and in some cases save lives.
Hidden
in
MPN Voice
4 years ago
Shielding, update
patient guidance: • “Myeloproliferative: Patients with MF on
Ruxolitinib
, steroids or regular transfusions Patients with Mastocytosis Patients with PRV/ ET not on treatment and those stable on HU and interferon do not need to shield” This is from Leicester Royal Infirmary...
patient guidance: • “Myeloproliferative: Patients with MF on
Ruxolitinib
, steroids or regular transfusions Patients with Mastocytosis Patients with PRV/ ET not on treatment and those stable on HU and interferon do not need to shield” This is from Leicester Royal Infirmary...
shiftzz
in
MPN Voice
4 years ago
The Myeloproliferative Neoplasm Landscape: A Patient’s Eye View
Targeted drugs, such as
ruxolitinib
, treat MPNs and reduce symptoms, but do not cure the disease. Patients frequently want to play a bigger part in decisions about their treatment.
Targeted drugs, such as
ruxolitinib
, treat MPNs and reduce symptoms, but do not cure the disease. Patients frequently want to play a bigger part in decisions about their treatment.
socrates_8
in
MPN Voice
4 years ago
Jakafi for Patients with COVID-19
. » https://www.cancernetwork.com/news/planned-phase-iii-trial-
ruxolitinib
-plus-standard-care-patients-covid-19
. » https://www.cancernetwork.com/news/planned-phase-iii-trial-
ruxolitinib
-plus-standard-care-patients-covid-19
Manouche
in
MPN Voice
4 years ago
COVID-19 a planned trial for Ruxolitinib (Jakavi) to treat patients
Managed Access Program (MAP) for Patients Diagnosed With Severe/Very Severe COVID-19 Illness The purpose of this Cohort Treatment Plan is to allow access to
ruxolitinib
for eligible patients diagnosed with severe/very severe COVID-19 illness.
Managed Access Program (MAP) for Patients Diagnosed With Severe/Very Severe COVID-19 Illness The purpose of this Cohort Treatment Plan is to allow access to
ruxolitinib
for eligible patients diagnosed with severe/very severe COVID-19 illness.
Mazcd
MPNVoice
in
MPN Voice
4 years ago
Considering ruxolitinib for MF
Now 75 years old, oncologist recommending
ruxolitinib
for MF. What was your experience?
Now 75 years old, oncologist recommending
ruxolitinib
for MF. What was your experience?
Pte82
in
MPN Voice
4 years ago
Does Ruxolitinib make you "extremely vulnerable"?
I understood it did, because it depresses the immune system. But there's no sign of a letter from NHS/government. My friend who has a lung condition had hers last week. Am I making an unnecessary fuss, shielding?
I understood it did, because it depresses the immune system. But there's no sign of a letter from NHS/government. My friend who has a lung condition had hers last week. Am I making an unnecessary fuss, shielding?
Oscara
in
MPN Voice
4 years ago
Scotland - NHS letters for MF?
Has anyone in Scotland with MF Intermediate 2 or High Risk and on
Ruxolitinib
had a letter from NHS Scotland about being extremely vulnerable?
Has anyone in Scotland with MF Intermediate 2 or High Risk and on
Ruxolitinib
had a letter from NHS Scotland about being extremely vulnerable?
Hidden
in
MPN Voice
5 years ago
CORONA VIRUS
Husband is JAX-2-V617 mutation positive MPN consistent with Polycythaemia Vera
Ruxolitinib
15grms twice a day. Is he classed in the current situation as vulnerable.
Husband is JAX-2-V617 mutation positive MPN consistent with Polycythaemia Vera
Ruxolitinib
15grms twice a day. Is he classed in the current situation as vulnerable.
waddles22
in
MPN Voice
5 years ago
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