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Ruxolitinib
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ET progressed to Myelofibrosis
I have started
Ruxolitinib
and will be having weekly blood tests and platelet transfusions for a few weeks but hoping things will improve when my spleen shrinks. Thanks in advance. I am so thankful for this forum.
I have started
Ruxolitinib
and will be having weekly blood tests and platelet transfusions for a few weeks but hoping things will improve when my spleen shrinks. Thanks in advance. I am so thankful for this forum.
Otterfield
in
MPN Voice
4 years ago
has anyone been on exjade
I have benefited from the development of both imatinib and
ruxolitinib
so fell I have a duty to pay back to those patients willing and brave enough to go through trials to develop those drugs.
I have benefited from the development of both imatinib and
ruxolitinib
so fell I have a duty to pay back to those patients willing and brave enough to go through trials to develop those drugs.
skodaguy
in
MPN Voice
4 years ago
Milburn.
My consultant is advising me to go onto either Busulfan or
Ruxolitinib
but concerned that either of these would reduce my immunity.
My consultant is advising me to go onto either Busulfan or
Ruxolitinib
but concerned that either of these would reduce my immunity.
Milburn
in
MPN Voice
4 years ago
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Ruxolitinib plus Pegasys for MF: anyone else on this combination? Oxford meet up.
Am taking
ruxolitinib
, and for the last month pegasys as well. Would be interested to make contact with anyone else taking this combination I’m sending this post while sitting in the university parks on a shady bench.
Am taking
ruxolitinib
, and for the last month pegasys as well. Would be interested to make contact with anyone else taking this combination I’m sending this post while sitting in the university parks on a shady bench.
Rachelthepotter
in
MPN Voice
4 years ago
Ruxolitinib
I was just wondering if anyone with PV and on
ruxolitinib
who experienced horrible itching before taking it has found that it is coming back despite blood counts normal. I’ve been in it for 18 months Anna x
I was just wondering if anyone with PV and on
ruxolitinib
who experienced horrible itching before taking it has found that it is coming back despite blood counts normal. I’ve been in it for 18 months Anna x
S031251
in
MPN Voice
4 years ago
Shielding with PV
Husband has PV MPN taking
Ruxolitinib
15grms twice daily. Great news about Shielders yesterday!!!! not sure now as they are saying anyone with a blood cancer should be very careful and maybe wait for further news. I have been shielding with him.
Husband has PV MPN taking
Ruxolitinib
15grms twice daily. Great news about Shielders yesterday!!!! not sure now as they are saying anyone with a blood cancer should be very careful and maybe wait for further news. I have been shielding with him.
waddles22
in
MPN Voice
4 years ago
Calling for a revolution in the treatment of MPNs?
I would guess that even low-dose Interferon +
Ruxolitinib
would cost a lot more than Aspirin + Hydroxycarbamide ...
I would guess that even low-dose Interferon +
Ruxolitinib
would cost a lot more than Aspirin + Hydroxycarbamide ...
JaK2ET
in
MPN Voice
4 years ago
Ruxolitinib and Covid-19 - Trial
Scientists want to see whether
Ruxolitinib
can reduce complications in deteriorating Covid-19 patients. They believe it could reduce the need for treatment in intensive care and in some cases save lives.
Scientists want to see whether
Ruxolitinib
can reduce complications in deteriorating Covid-19 patients. They believe it could reduce the need for treatment in intensive care and in some cases save lives.
Hidden
in
MPN Voice
4 years ago
Shielding, update
patient guidance: • “Myeloproliferative: Patients with MF on
Ruxolitinib
, steroids or regular transfusions Patients with Mastocytosis Patients with PRV/ ET not on treatment and those stable on HU and interferon do not need to shield” This is from Leicester Royal Infirmary...
patient guidance: • “Myeloproliferative: Patients with MF on
Ruxolitinib
, steroids or regular transfusions Patients with Mastocytosis Patients with PRV/ ET not on treatment and those stable on HU and interferon do not need to shield” This is from Leicester Royal Infirmary...
shiftzz
in
MPN Voice
4 years ago
The Myeloproliferative Neoplasm Landscape: A Patient’s Eye View
Targeted drugs, such as
ruxolitinib
, treat MPNs and reduce symptoms, but do not cure the disease. Patients frequently want to play a bigger part in decisions about their treatment.
Targeted drugs, such as
ruxolitinib
, treat MPNs and reduce symptoms, but do not cure the disease. Patients frequently want to play a bigger part in decisions about their treatment.
socrates_8
in
MPN Voice
4 years ago
Jakafi for Patients with COVID-19
. » https://www.cancernetwork.com/news/planned-phase-iii-trial-
ruxolitinib
-plus-standard-care-patients-covid-19
. » https://www.cancernetwork.com/news/planned-phase-iii-trial-
ruxolitinib
-plus-standard-care-patients-covid-19
Manouche
in
MPN Voice
4 years ago
COVID-19 a planned trial for Ruxolitinib (Jakavi) to treat patients
Managed Access Program (MAP) for Patients Diagnosed With Severe/Very Severe COVID-19 Illness The purpose of this Cohort Treatment Plan is to allow access to
ruxolitinib
for eligible patients diagnosed with severe/very severe COVID-19 illness.
Managed Access Program (MAP) for Patients Diagnosed With Severe/Very Severe COVID-19 Illness The purpose of this Cohort Treatment Plan is to allow access to
ruxolitinib
for eligible patients diagnosed with severe/very severe COVID-19 illness.
Mazcd
MPNVoice
in
MPN Voice
4 years ago
Considering ruxolitinib for MF
Now 75 years old, oncologist recommending
ruxolitinib
for MF. What was your experience?
Now 75 years old, oncologist recommending
ruxolitinib
for MF. What was your experience?
Pte82
in
MPN Voice
4 years ago
Scotland - NHS letters for MF?
Has anyone in Scotland with MF Intermediate 2 or High Risk and on
Ruxolitinib
had a letter from NHS Scotland about being extremely vulnerable?
Has anyone in Scotland with MF Intermediate 2 or High Risk and on
Ruxolitinib
had a letter from NHS Scotland about being extremely vulnerable?
Hidden
in
MPN Voice
4 years ago
Does Ruxolitinib make you "extremely vulnerable"?
I understood it did, because it depresses the immune system. But there's no sign of a letter from NHS/government. My friend who has a lung condition had hers last week. Am I making an unnecessary fuss, shielding?
I understood it did, because it depresses the immune system. But there's no sign of a letter from NHS/government. My friend who has a lung condition had hers last week. Am I making an unnecessary fuss, shielding?
Oscara
in
MPN Voice
4 years ago
CORONA VIRUS
Husband is JAX-2-V617 mutation positive MPN consistent with Polycythaemia Vera
Ruxolitinib
15grms twice a day. Is he classed in the current situation as vulnerable.
Husband is JAX-2-V617 mutation positive MPN consistent with Polycythaemia Vera
Ruxolitinib
15grms twice a day. Is he classed in the current situation as vulnerable.
waddles22
in
MPN Voice
4 years ago
COVID-19 and Ruxolitnib
Article I read on Rux and COVID_19: https://www.targetedonc.com/news/phase-iii-trial-planned-for-
ruxolitinib
-to-treat-covid19related-cytokine-storm.
Article I read on Rux and COVID_19: https://www.targetedonc.com/news/phase-iii-trial-planned-for-
ruxolitinib
-to-treat-covid19related-cytokine-storm.
Elizka
in
MPN Voice
4 years ago
Coronavirus (COVID19) - ADVICE FROM THE MEDICAL TEAM
Probably the bigger risk would be for patients taking
ruxolitinib
, this is because
Ruxolitinib
is a slightly more powerful immunosuppressing drug, but overall it improves patients' fitness which is important to bear in mind.
Probably the bigger risk would be for patients taking
ruxolitinib
, this is because
Ruxolitinib
is a slightly more powerful immunosuppressing drug, but overall it improves patients' fitness which is important to bear in mind.
Mazcd
MPNVoice
in
MPN Voice
4 years ago
MPN News for treatment primary myelofibrosis, post-PVMF, Post ET-MF and Primary myelofibrosis
The investigators concluded that the combination of panobinostat and
ruxolitinib
was feasible in the patient population. Multiple combination trials were initiated during the time period that this trial was launched, limiting patient enrollment for this trial, wrote the authors.
The investigators concluded that the combination of panobinostat and
ruxolitinib
was feasible in the patient population. Multiple combination trials were initiated during the time period that this trial was launched, limiting patient enrollment for this trial, wrote the authors.
mammared
in
MPN Voice
4 years ago
Update
I have tried various treatments -
Ruxolitinib
, HU and a combination of both but nothing really touched my platelets but since going to the QE in Birmingham I have been taking Pegasys 45 Mcg weekly and have now achieved complete haematological response 😊 I haven't been feeling well with stomach issues
I have tried various treatments -
Ruxolitinib
, HU and a combination of both but nothing really touched my platelets but since going to the QE in Birmingham I have been taking Pegasys 45 Mcg weekly and have now achieved complete haematological response 😊 I haven't been feeling well with stomach issues
Graham7694
in
MPN Voice
4 years ago
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