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Qmiiz ODT
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OVM 200 clinical trial on TV
https://www.newscientist.com/article/2375922-advancing-immunology-the-future-of-vaccine-innovations/ at 6.25 mins is a bit of info about the trial I volunteered for. The ‘shout out’ is for ovarian cancers so I may not have had an immune response but I have heard nothing formally except last weeks scans
https://www.newscientist.com/article/2375922-advancing-immunology-the-future-of-vaccine-innovations/ at 6.25 mins is a bit of info about the trial I volunteered for. The ‘shout out’ is for ovarian cancers so I may not have had an immune response but I have heard nothing formally except last weeks scans
Brysonal
in
Fight Prostate Cancer
1 year ago
ADT before and after IMRT
So my husband had 5 Cycles of Taxotere in 2019, was first line treatment, started Lupron fall of 2019, then PSA creeped up and MO started him on Casadex. Worked till 2022 when PSMA scan showed lymph nodes, started Zytiga in November 2022 , started with 44 Tomotherapy/IMRT in Feb 2023, My question is
So my husband had 5 Cycles of Taxotere in 2019, was first line treatment, started Lupron fall of 2019, then PSA creeped up and MO started him on Casadex. Worked till 2022 when PSMA scan showed lymph nodes, started Zytiga in November 2022 , started with 44 Tomotherapy/IMRT in Feb 2023, My question is
Keeper70
in
Prostate Cancer Network
1 year ago
’Perfect’ bloods but gaining weight and feeling rubbish
Hello lovely people I think my thyroid meds have stopped working. I have been steadily gaining weight (6kg in 6 months, which is more than 10% of my weight!!) and am feeling tired, frustrated, tearful and don’t enjoy my life (which is really good). I am always hungry but monitor calories and don’
Hello lovely people I think my thyroid meds have stopped working. I have been steadily gaining weight (6kg in 6 months, which is more than 10% of my weight!!) and am feeling tired, frustrated, tearful and don’t enjoy my life (which is really good). I am always hungry but monitor calories and don’
PixieElv
in
Thyroid UK
1 year ago
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My brother has advanced Prostate cancer
Hi everyone, I attached previous post about my brother. Since then he had one more PSA test which came back at 17! He has CT scan and bone scan, he had some new mets on his bones(spine) and they are suspected to some lymph nodes of chest. Currently he has hormone therapy every 3 months and Nubeqa
Hi everyone, I attached previous post about my brother. Since then he had one more PSA test which came back at 17! He has CT scan and bone scan, he had some new mets on his bones(spine) and they are suspected to some lymph nodes of chest. Currently he has hormone therapy every 3 months and Nubeqa
rasher1
in
Advanced Prostate Cancer
1 year ago
Optimal ADT length of time along with radiation for a recurrence 5 years post surgery-research or studies please.
I know there are folks on here that can put their fingers on this quicker than I. There was a gentleman in the prostate cancer support group that I facilitate last evening with a recurrence of Gleason 4 + 5 , five years post-surgery. Could you please provide me with research studies or data indicating
I know there are folks on here that can put their fingers on this quicker than I. There was a gentleman in the prostate cancer support group that I facilitate last evening with a recurrence of Gleason 4 + 5 , five years post-surgery. Could you please provide me with research studies or data indicating
wilcoxsaw
in
Advanced Prostate Cancer
1 year ago
42 yr old prostate cancer
I am looking for some relatable experiences. My husband was diagnosed with prostate cancer in February. He is 42 years old. His Gleason score was 9, PSA 17.8. He had surgery in March. He had multiple positive margins and one positive lymph node. He started hormone therapy 1 month prior to surgery. We
I am looking for some relatable experiences. My husband was diagnosed with prostate cancer in February. He is 42 years old. His Gleason score was 9, PSA 17.8. He had surgery in March. He had multiple positive margins and one positive lymph node. He started hormone therapy 1 month prior to surgery. We
Footballlover
in
Advanced Prostate Cancer
1 year ago
Supplier of NDT
Would you give me the name of a supplier of NDT Thyroid S . Please reply by PM only. Thank you
Would you give me the name of a supplier of NDT Thyroid S . Please reply by PM only. Thank you
delboy25
in
Thyroid UK
1 year ago
Adjuvant ADT
Hi everybody, this is the first time I post on (any) PC-forum. I can honestly tell you, for me you are a great support! Thank you! I am 76 years (now). Quite fit. May 2021 I was diagnosed with Gleason 9 PC. Tumor was slightly outside the prostate, but no metastasis. Got ADT (june 2021) and two weeks
Hi everybody, this is the first time I post on (any) PC-forum. I can honestly tell you, for me you are a great support! Thank you! I am 76 years (now). Quite fit. May 2021 I was diagnosed with Gleason 9 PC. Tumor was slightly outside the prostate, but no metastasis. Got ADT (june 2021) and two weeks
Nomiskneh
in
Prostate Cancer Network
1 year ago
2 years into Stage 4 Treatment
Hello all, I’m writing for some help regarding my dad. 2 years ago he was diagnosed prostate adenocarcinoma Gleason 5+4 with PSA 146 and Mets to ischium, sacrum and one rib. He started on Zytiga, Lupron and Prednisone and received 20 treatments of radiation to a cumulative dose of 60 Gy. Overall
Hello all, I’m writing for some help regarding my dad. 2 years ago he was diagnosed prostate adenocarcinoma Gleason 5+4 with PSA 146 and Mets to ischium, sacrum and one rib. He started on Zytiga, Lupron and Prednisone and received 20 treatments of radiation to a cumulative dose of 60 Gy. Overall
petdoc
in
Advanced Prostate Cancer
1 year ago
How is thyroid hormone prescribed across the US?
I suspect there might be a few comments on this just-posted thread: [i]Matt Ettleson[/i] [i]Ed: @NorthwesternU[/i] [i]/@NUFeinbergMed[/i] [i]. Former resident/CMR @UMIntMed[/i] [i]. Clinical Instructor @uchicagomed[/i] [i]. Focus: improving care of thyroid disease.[/i] [i]Chicago, IL[/i] [i]1h
I suspect there might be a few comments on this just-posted thread: [i]Matt Ettleson[/i] [i]Ed: @NorthwesternU[/i] [i]/@NUFeinbergMed[/i] [i]. Former resident/CMR @UMIntMed[/i] [i]. Clinical Instructor @uchicagomed[/i] [i]. Focus: improving care of thyroid disease.[/i] [i]Chicago, IL[/i] [i]1h
helvella
Thyroid UK
in
Thyroid UK
1 year ago
How am I supposed to function on 50mcg levo (base dose) daily without a thyroid?
Hello all, last week GP reduced levo from 75/50mcg alternate days to 50mcg daily. It's only a small reduction but I am really feeling the impact over past couple of days. Lack of energy, sleeping during the day, can't think, etc. Feel tired upon waking. GP reduced levo because T4 was slightly over
Hello all, last week GP reduced levo from 75/50mcg alternate days to 50mcg daily. It's only a small reduction but I am really feeling the impact over past couple of days. Lack of energy, sleeping during the day, can't think, etc. Feel tired upon waking. GP reduced levo because T4 was slightly over
DizzyD
in
Thyroid UK
1 year ago
PTEN loss is not a determinant of time to castration-resistance following androgen-deprivation therapy in prostate cancer
Abdallah Alzoubi 1 2 , Samir Al Bashir 3 , Aya Smairat 4 , Ahmad Alrawashdeh 5 , Husam Haddad 6 , Khalid Kheirallah 7 Affiliations PMID: 37305830 PMCID: PMC10251393 DOI: 10.25122/jml-2023-0034 Free PMC article Abstract Androgen deprivation therapy (ADT) remains the principal
Abdallah Alzoubi 1 2 , Samir Al Bashir 3 , Aya Smairat 4 , Ahmad Alrawashdeh 5 , Husam Haddad 6 , Khalid Kheirallah 7 Affiliations PMID: 37305830 PMCID: PMC10251393 DOI: 10.25122/jml-2023-0034 Free PMC article Abstract Androgen deprivation therapy (ADT) remains the principal
Magnus1964
in
Advanced Prostate Cancer
1 year ago
End of holiday??
Hi everybody, was wondering if you could share your experiences to help me decide the end of my ADT holiday. In short: PCA found in 10/2019, PSA=49, Gleason=8, mets in local + infra/para aortal lymph nodes, started ADT 11/2019, radiotherapy 01/2020, undetectable PSA 09/2020, started holiday 05/2022
Hi everybody, was wondering if you could share your experiences to help me decide the end of my ADT holiday. In short: PCA found in 10/2019, PSA=49, Gleason=8, mets in local + infra/para aortal lymph nodes, started ADT 11/2019, radiotherapy 01/2020, undetectable PSA 09/2020, started holiday 05/2022
R1166
in
Advanced Prostate Cancer
1 year ago
Need help to fight fatigue from Radium 223
Stage 4 for last 3 years. Had 6 cycles of Chemo and then Abiraterone for 18+ months until it stopped being effective. Currently part of trial with Radium 223. Had 4 cycles already and 2 more to go. After this will likely have to switch to Enzalutamide and ADT. Now having bad fatigue issues; on scale
Stage 4 for last 3 years. Had 6 cycles of Chemo and then Abiraterone for 18+ months until it stopped being effective. Currently part of trial with Radium 223. Had 4 cycles already and 2 more to go. After this will likely have to switch to Enzalutamide and ADT. Now having bad fatigue issues; on scale
Ronnie7C
in
Advanced Prostate Cancer
1 year ago
Levo side effects
so was on ndt for ages but felt it wasn’t working as well and swapped for my usual 100 levothyroxine but for over the past week I have been having a tight feeling in my throat. I stopped taking my thyroid meds and it subsided but it’s taking days to go away. Is this due to having too much T4 as I was
so was on ndt for ages but felt it wasn’t working as well and swapped for my usual 100 levothyroxine but for over the past week I have been having a tight feeling in my throat. I stopped taking my thyroid meds and it subsided but it’s taking days to go away. Is this due to having too much T4 as I was
Carriebaby
in
Thyroid UK
1 year ago
What are capsule shells made of?
A few months ago a post mentioned capsule shells. They said that there is an ingredient which is not allowed in the UK but is allowed abroad. I'm asking because my doctor recommended an NDT from Germany. I reacted badly to it and the only thing we could think of was that it might be caused by the
A few months ago a post mentioned capsule shells. They said that there is an ingredient which is not allowed in the UK but is allowed abroad. I'm asking because my doctor recommended an NDT from Germany. I reacted badly to it and the only thing we could think of was that it might be caused by the
Anthea55
in
Thyroid UK
1 year ago
PSMA PET Scan Shows no mets?!
I have/had Stage 4, Gleason 8/9 prostate cancer now for 2 years. 5 mets including 4 rib and 1 shoulder blade. Possible lymph node involvement. Went on Lupron and Zytiga. Radiation of prostate after 8 months of ADT. I've had now 4 PET scans. The latest was yesterday, as reported below. It says
I have/had Stage 4, Gleason 8/9 prostate cancer now for 2 years. 5 mets including 4 rib and 1 shoulder blade. Possible lymph node involvement. Went on Lupron and Zytiga. Radiation of prostate after 8 months of ADT. I've had now 4 PET scans. The latest was yesterday, as reported below. It says
groth12345
in
Advanced Prostate Cancer
1 year ago
2 Questions
Background: 45 yo, athletic with no comorbidities. Gleason 9, metastatic with 5 bone mets, node mets, and BRCA2. No surgeries or radiation. I’ve been on ADT since Jan 30, 2023. PSA at time of first Firmagon shot was 78. one month later it at 2nd shot it was 5. On Mar 1, 2023 it was 1.5. started Zytiga
Background: 45 yo, athletic with no comorbidities. Gleason 9, metastatic with 5 bone mets, node mets, and BRCA2. No surgeries or radiation. I’ve been on ADT since Jan 30, 2023. PSA at time of first Firmagon shot was 78. one month later it at 2nd shot it was 5. On Mar 1, 2023 it was 1.5. started Zytiga
revchris77
in
Advanced Prostate Cancer
1 year ago
Just a little update - Cautious optimism...!
Hi all, Just wanted to update in case it's helpful for anyone. 4 weeks and 2 days ago I started taking 125mcg levo and 20mcg T3 a day, split as levo & 10mcg T3 in the morning and 10mcg T3 at 2:30/3ish. (I was previously taking 50mcg Levo/10mcg T3/60mg Erfa NDT.) Week 1: Fine - no real obvious difference
Hi all, Just wanted to update in case it's helpful for anyone. 4 weeks and 2 days ago I started taking 125mcg levo and 20mcg T3 a day, split as levo & 10mcg T3 in the morning and 10mcg T3 at 2:30/3ish. (I was previously taking 50mcg Levo/10mcg T3/60mg Erfa NDT.) Week 1: Fine - no real obvious difference
Hidden
in
Thyroid UK
1 year ago
Anyone have a high testosterone after SBRT?
In September 2022 I had image guided SBRT utilizing ViewRay Technology for a 3+4 gleason grade, low decipher score, PSA 2.7 before treatment, on Avodart for BPH. Been monitoring PSAs and Testosterone every three months, and remaining on Avodart. During this time my PSAs and Testosterone values have
In September 2022 I had image guided SBRT utilizing ViewRay Technology for a 3+4 gleason grade, low decipher score, PSA 2.7 before treatment, on Avodart for BPH. Been monitoring PSAs and Testosterone every three months, and remaining on Avodart. During this time my PSAs and Testosterone values have
Yearofthecow
in
Prostate Cancer Network
1 year ago
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