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Qmiiz ODT
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HRT, low white blood cell count & NDT
I have been having appointments with my GP to try and get an HRT prescription. She wanted a blood test doing first - I have been taking NDT for about 8 years (doing really well on it) and basically my GP didn't understand it, stopped calling me in for blood tests and I haven't been for years. The blood
I have been having appointments with my GP to try and get an HRT prescription. She wanted a blood test doing first - I have been taking NDT for about 8 years (doing really well on it) and basically my GP didn't understand it, stopped calling me in for blood tests and I haven't been for years. The blood
Raucous
in
Thyroid UK
2 months ago
What is the recommended medication to start on please?
I'm having a telephone consultation with my endocrinologist tonight & after a lot of reading (on this site as well) I'm considering asking for NDT? This will be my first time being medicated so would really appreciate any advice from you? You all have far more experience than I & have been invaluable
I'm having a telephone consultation with my endocrinologist tonight & after a lot of reading (on this site as well) I'm considering asking for NDT? This will be my first time being medicated so would really appreciate any advice from you? You all have far more experience than I & have been invaluable
Elle137
in
Thyroid UK
2 months ago
Hypogonadal - 4 months Orgovyxx- 1 year later- No recovery to baseline 286 only at 98- No libido- TRT?
Gleason 7 4-3..IMRT 20 txs finished 2/28 No after effects went fine except for 4 months adt (orgovyxx) ..still little recovery (T-98) 1 year after ending adt 5/23 recovery only to 98 in one year , baseline before adt 286 with everything working fine. Stopped 5/23 Orgovyxx Still Hypogonadal ( T-98) 1
Gleason 7 4-3..IMRT 20 txs finished 2/28 No after effects went fine except for 4 months adt (orgovyxx) ..still little recovery (T-98) 1 year after ending adt 5/23 recovery only to 98 in one year , baseline before adt 286 with everything working fine. Stopped 5/23 Orgovyxx Still Hypogonadal ( T-98) 1
JWS13
in
Advanced Prostate Cancer
2 months ago
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Getting head around what to expect
I like to have facts. In times of stress I think Facts are our friend. Better to be prepared, mentally, physically, financially, with support systems, etc.. so looking for any insights as to what I should expect and prepare my husband, myself and my kids/family for in the weeks and months, years ahead
I like to have facts. In times of stress I think Facts are our friend. Better to be prepared, mentally, physically, financially, with support systems, etc.. so looking for any insights as to what I should expect and prepare my husband, myself and my kids/family for in the weeks and months, years ahead
Melzer2169
in
Advanced Prostate Cancer
2 months ago
Apalutamide/ADT Confers 100% Recurrence-Free Survival in High-Risk Prostate Cancer
https://www.oncnursingnews.com/view/apalutamide-adt-confers-100-recurrence-free-survival-in-high-risk-prostate-cancer So if I have this right high risk patients who got RP are put on adt and apalutamide for 12 months and after two years, now with recovered tst none have had a recurrence. am a little
https://www.oncnursingnews.com/view/apalutamide-adt-confers-100-recurrence-free-survival-in-high-risk-prostate-cancer So if I have this right high risk patients who got RP are put on adt and apalutamide for 12 months and after two years, now with recovered tst none have had a recurrence. am a little
street-air
in
Advanced Prostate Cancer
2 months ago
Need help with understanding my daily 2:30 pm episodes
Hey everyone, I've been having a difficult time lately. I started getting these episodes around 2:30 pm where I'd become blurred out, fatigued, breathless, puffy, shaky, dehydrated etc. This has been going for about 6 months daily, it's exhausting, I have no life after 2 pm. I take 2.5 Armour + 7.5
Hey everyone, I've been having a difficult time lately. I started getting these episodes around 2:30 pm where I'd become blurred out, fatigued, breathless, puffy, shaky, dehydrated etc. This has been going for about 6 months daily, it's exhausting, I have no life after 2 pm. I take 2.5 Armour + 7.5
Incoguto
in
Thyroid UK
2 months ago
T3 (Cytomel): How would you fit it in these results? Or would you? And all the mistakes I have made on this journey
Latest results (overjoyed to be finally here) - TSH .74 (.32 to 4) T4 14 (9 to 19) T3 4.2 (2.6 to 5.8) I am on 262.5 mcg levothyroxine (Note: In 50s so 50×5 & 1/4 of a 50) I feel what I would deem pleasantly okay. Always have felt the best on NDT, but I needed so much I could no longer afford it. And
Latest results (overjoyed to be finally here) - TSH .74 (.32 to 4) T4 14 (9 to 19) T3 4.2 (2.6 to 5.8) I am on 262.5 mcg levothyroxine (Note: In 50s so 50×5 & 1/4 of a 50) I feel what I would deem pleasantly okay. Always have felt the best on NDT, but I needed so much I could no longer afford it. And
Litatamon
in
Thyroid UK
2 months ago
PSA from .08 to 2.1, after 2yrs ADT with zytiga and RT @59 yr
so seems to be back and waiting on PSMA PER SCAN. From what I understand, they usually look for something and do a scavenge RT treatment. Anyone who’s gone through this did you have to go back on ADT because that just sucks.. I had high risk Gleason score 9 anybody deal with this? I’m sure. Let me know
so seems to be back and waiting on PSMA PER SCAN. From what I understand, they usually look for something and do a scavenge RT treatment. Anyone who’s gone through this did you have to go back on ADT because that just sucks.. I had high risk Gleason score 9 anybody deal with this? I’m sure. Let me know
Eieio
in
Advanced Prostate Cancer
2 months ago
Pulmonary Node revealed with PET scan not growing
During my treatment for PC the first Pet scan showed a pulmonary node. There were no Mets beyound the prostate. Three DRs., Urologist, Oncologist and Pulmonary, did not attribute the node to the PC, since it was so far removed and there were no other mets revealed. A subsquent MRI 3 months later indicated
During my treatment for PC the first Pet scan showed a pulmonary node. There were no Mets beyound the prostate. Three DRs., Urologist, Oncologist and Pulmonary, did not attribute the node to the PC, since it was so far removed and there were no other mets revealed. A subsquent MRI 3 months later indicated
Eadgbe
in
Advanced Prostate Cancer
2 months ago
Confused
I have just received the results of my advanced thyroid blood test. My last test was in January and my results were: TSH .005 (.27 - 4.2) T4 17.5 (12 - 22) T3 5.4 (3.1 - 6.8) I take 2.75 grains of NDT Today's results are: TSH .005 T4 25.1 (12 - 22) T3 15.8 (3.1 -6.8) I don't understand
I have just received the results of my advanced thyroid blood test. My last test was in January and my results were: TSH .005 (.27 - 4.2) T4 17.5 (12 - 22) T3 5.4 (3.1 - 6.8) I take 2.75 grains of NDT Today's results are: TSH .005 T4 25.1 (12 - 22) T3 15.8 (3.1 -6.8) I don't understand
dottyb09
in
Thyroid UK
2 months ago
Proton Beam radiation
83 ys old, gleason 9, ADT since Feb 22=6 sessions until now. No prostatectomie. Proton beam radiation: 30 sessions = 72 Gy, result PSA 0,014 (undetectable), minor inkontinence (pads). I am very happy about the outcome. Living in Germany: insurances cover the cost( approx 50k)
83 ys old, gleason 9, ADT since Feb 22=6 sessions until now. No prostatectomie. Proton beam radiation: 30 sessions = 72 Gy, result PSA 0,014 (undetectable), minor inkontinence (pads). I am very happy about the outcome. Living in Germany: insurances cover the cost( approx 50k)
EBBEFLUT
in
Advanced Prostate Cancer
2 months ago
Decided on brachyboost plus 6 months ADT
My husband made his treatment decision today. After a lot of research, questions and consults, he has decided on brachyboost (EBRT plus brachytherapy) plus 6 months of ADT. It was a tough decision and we both know way more about prostate cancer now that we ever wanted to, but I am glad we did our due
My husband made his treatment decision today. After a lot of research, questions and consults, he has decided on brachyboost (EBRT plus brachytherapy) plus 6 months of ADT. It was a tough decision and we both know way more about prostate cancer now that we ever wanted to, but I am glad we did our due
EvFC
in
Advanced Prostate Cancer
2 months ago
Pulmonary Complications Post Lutetium-177-PSMA-617 Therapy in Metastatic Castration-Resistant Prostate Cancer #Pluvicto
We present the case of a patient with heavily pretreated metastatic castration-resistant prostate cancer (mCRPC) who underwent treatment with lutetium Lu-177 vipivotide tetraxetan (also known as 177Lu-PSMA-617) due to progressive disease despite multiple lines of therapy, including chemotherapy, hormonal
We present the case of a patient with heavily pretreated metastatic castration-resistant prostate cancer (mCRPC) who underwent treatment with lutetium Lu-177 vipivotide tetraxetan (also known as 177Lu-PSMA-617) due to progressive disease despite multiple lines of therapy, including chemotherapy, hormonal
God_Loves_Me
in
Advanced Prostate Cancer
2 months ago
Amiodarone.....again! Sorry....
Hi Everyone,Appreciate your thoughts suggestion on this as am stuck....thank you. I was put on Amiodarone for 4 weeks post surgery last September. So Amiodarone was stopped 7 months ago. I was on 3 3/4 grains of Armour Thyroid for Hypothyroidism before surgery. Been stable for years on this dose. 16yrs
Hi Everyone,Appreciate your thoughts suggestion on this as am stuck....thank you. I was put on Amiodarone for 4 weeks post surgery last September. So Amiodarone was stopped 7 months ago. I was on 3 3/4 grains of Armour Thyroid for Hypothyroidism before surgery. Been stable for years on this dose. 16yrs
waveylines
in
Thyroid UK
2 months ago
Charged for importing 1 bottle of NDT
Has this happened to anyone else? I've been charged nearly £50 by Royal Mail for one bottle of Erfa 1 grain! I got the email from R.M this morning This has never happened before (I've only ever purchased Erfa once previously some years ago from the same place, and was not charged) I've not been charged
Has this happened to anyone else? I've been charged nearly £50 by Royal Mail for one bottle of Erfa 1 grain! I got the email from R.M this morning This has never happened before (I've only ever purchased Erfa once previously some years ago from the same place, and was not charged) I've not been charged
Alanna012
in
Thyroid UK
2 months ago
For anyone who is on T3 only... When did you realise you needed it?
Hi everyone. I've been on a real journey since January with Hashimoto's. I started on levothyroxine and it made me feel a lot worse. I started seeing a private thyroid doctor who looked at my bloods and saw my T3 had dropped on levo, and with my symptoms she decided levo was not right for me and put
Hi everyone. I've been on a real journey since January with Hashimoto's. I started on levothyroxine and it made me feel a lot worse. I started seeing a private thyroid doctor who looked at my bloods and saw my T3 had dropped on levo, and with my symptoms she decided levo was not right for me and put
rosael56
in
Thyroid UK
2 months ago
Making a Case for Intermittent ADT in Metastatic Hormone Sensitive Prostate Cancer
FPC'ers, Many times, we hear people claim that you should only stop ADT if you can't tolerate it any longer, and that it will not slow castrate resistance; that it increases risk for stroke, and heart attack; that it will likely take years for your testosterone to recover; that it increases mortality
FPC'ers, Many times, we hear people claim that you should only stop ADT if you can't tolerate it any longer, and that it will not slow castrate resistance; that it increases risk for stroke, and heart attack; that it will likely take years for your testosterone to recover; that it increases mortality
NPfisherman
in
Fight Prostate Cancer
2 months ago
Phase III Study: Saruparib Combo with New Hormonal Agents in mCSPC +/- HRR Mutations: AUA 2024 EvoPAR-Prostate01 Trial
AUA 2024: EvoPAR-Prostate01: Phase III, Double-Blind, Placebo-Controlled, 2-Cohort, Randomized Study of Saruparib (AZD5305) in Combination with New Hormonal Agents in Patients with mCSPC +/- HRR Mutations (UroToday.com) The 2024 American Urological Association (AUA) annual meeting featured a session
AUA 2024: EvoPAR-Prostate01: Phase III, Double-Blind, Placebo-Controlled, 2-Cohort, Randomized Study of Saruparib (AZD5305) in Combination with New Hormonal Agents in Patients with mCSPC +/- HRR Mutations (UroToday.com) The 2024 American Urological Association (AUA) annual meeting featured a session
God_Loves_Me
in
Advanced Prostate Cancer
2 months ago
Any guidance appreciated!
Hi everyone, My Dad (77) diagnosed in January w/ stage 4 PC, mets to L5 spine. PET scan showed no other spots elsewhere. PSA was 19 at time of diagnosis, Gleason 10. BRCA negative. PSA is now at 0.2 since starting hormone therapy. Feeling good, no pain. Still works (owns his own company). Started
Hi everyone, My Dad (77) diagnosed in January w/ stage 4 PC, mets to L5 spine. PET scan showed no other spots elsewhere. PSA was 19 at time of diagnosis, Gleason 10. BRCA negative. PSA is now at 0.2 since starting hormone therapy. Feeling good, no pain. Still works (owns his own company). Started
LDC2024
in
Advanced Prostate Cancer
2 months ago
oligometastic
I had a PSMA scan that found 3 small spots. My MO and Radiation O decided to radiate the spots without ADT. PSA is 0.28
I had a PSMA scan that found 3 small spots. My MO and Radiation O decided to radiate the spots without ADT. PSA is 0.28
Howard53545
in
Advanced Prostate Cancer
2 months ago
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