Experiences with

Privigen

Now maximum Revolade 75 mg, 30 mg Prednisolone, Privigen + infusion thrombocytes to be able to install Piccline. Now 38 plt since a few days.. Ramping up Venetoclax again to treat CLL. Specialist dr mentioned maybe try N-plate (other trombopotein) if thrombocytes start to fall again.

Was on Wait & Wacht until November26th 2023 when they diagnosed hypoimmunoglobulinemia IgG and started GAMMA IV with 45 g of IgG (Privigen every 4 weeks). Use to have MANY pneumonia and exacerbations that was getting me hospitalised every 3 to 6 weeks. Now NO MORE hospitalisation.

Was on W & W until November26th 2023 when they started [u]GAMMA IV[/u] with 45 g of IgG ( every 4 weeks. Anybody is or was on that treatment.

Has anybody experienced a severe adverse skin reaction after a Privigen plasma infusion . This has happened to my husband , 80% of his body has swelled , blistered and is extremely red. Any help or information would be very much appreciated.

Hi, I was diagnosed with CLL 17 years ago, and am now on Ibrutinib and Privigen. To prevent lung infections, I take dapsone, (allergic to Septrin). Does anyone with Diabetes and on Dapsone, have a problem with HBA1c test results being too low?

I am already on Ibrutinib and privigen and have been for nearly two years. Thanking you in anticipation. Really sad to hear about Chris. He will be greatly missed.

Hi everyone, anyone out there on Ibrutinib together with Privigen. What to expect? Thanks in anticipation.

They then decided he should have more Privigen of which he had numerous doses,  on one occasion they infused 11 bottles over 17 hours which I though was far too much over such a short period of time but it did work they got his count upto about 100, only to drop again after a few days.