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GCA relapse ?
I have been on prednisolone for the last two years for PMR i was on 4mg ,in March diagnosed with GCA had a temporal biopsy and ultrasound both with negative results. My Rheumatologist put my steroids up to 40mg a day now Reduced to 15mg but think headache and scalp sore coming back . Won’t see my
I have been on prednisolone for the last two years for PMR i was on 4mg ,in March diagnosed with GCA had a temporal biopsy and ultrasound both with negative results. My Rheumatologist put my steroids up to 40mg a day now Reduced to 15mg but think headache and scalp sore coming back . Won’t see my
Buster1610
in
PMRGCAuk
3 months ago
feel so helpless#meds#scaring#things to avoid#recovery#help
I am a mother of a 20 year-old daughter who was diagnosed with IGAv/HSP In February 2024. Her first flareup was very bad, ulcerated and has left pretty bad scarring all up legs which seems to be taking a very long time to heal and fade. She’s been having flareup approximately every two weeks, not as
I am a mother of a 20 year-old daughter who was diagnosed with IGAv/HSP In February 2024. Her first flareup was very bad, ulcerated and has left pretty bad scarring all up legs which seems to be taking a very long time to heal and fade. She’s been having flareup approximately every two weeks, not as
Dizzyliddy
in
Vasculitis UK
3 months ago
Cortisol test before or after Prednisolone
Been taking Prednisolone for 18months or so and am currently working my way down from 3mg to 2mg . So far apart from a couple of mini flea . I am doing OK. Recently went to see my GP to arrange the usually CRP and EST blood tests and she thought I should do a morning Cortisol test. I was however puzzled
Been taking Prednisolone for 18months or so and am currently working my way down from 3mg to 2mg . So far apart from a couple of mini flea . I am doing OK. Recently went to see my GP to arrange the usually CRP and EST blood tests and she thought I should do a morning Cortisol test. I was however puzzled
Amerloque
in
PMRGCAuk
3 months ago
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Newly diagnosed PMR
Hello. I’ve joined here because it is mentioned in many of the sources I haven been using trying to make sense of what I’m going through. So I’m newly diagnosed and on day 6 of prednisolone. My symptoms are so much better in the afternoons and evenings but I’m still in so much pain and have very little
Hello. I’ve joined here because it is mentioned in many of the sources I haven been using trying to make sense of what I’m going through. So I’m newly diagnosed and on day 6 of prednisolone. My symptoms are so much better in the afternoons and evenings but I’m still in so much pain and have very little
NewPMR53
in
PMRGCAuk
3 months ago
PMR diagnosis
Hi, this is the first time posting on this platform as I have just had a diagnosis of PMR after four years. (I am not complaining as I realise it can be extremely difficult to diagnose with all the complexities of autoimmune conditions) I became very unwell in January 2020 and was hospitalised with
Hi, this is the first time posting on this platform as I have just had a diagnosis of PMR after four years. (I am not complaining as I realise it can be extremely difficult to diagnose with all the complexities of autoimmune conditions) I became very unwell in January 2020 and was hospitalised with
Hightower62
in
PMRGCAuk
3 months ago
Anyone developed type 2 diabetes from steroids? wondering if maybe this is a developing problem for me - I have a high dose steroid inhaler.
just wondered if anyone had experienced this? I’ve just had a short course of prednisolone and feeling very fatigued.
just wondered if anyone had experienced this? I’ve just had a short course of prednisolone and feeling very fatigued.
Ladypig8
in
Asthma Community Forum
3 months ago
Steroid Injection
Hi All, I'm feeling very confused after my last Rheumatology appointment. I first saw the Rheumatologist in February and was diagnosed Sjorgen's and possible PMR. I was put on 15mg prednisolone and had managed to taper to 13mg. I saw a different rheumatologist at my appt this week who threw me a complete
Hi All, I'm feeling very confused after my last Rheumatology appointment. I first saw the Rheumatologist in February and was diagnosed Sjorgen's and possible PMR. I was put on 15mg prednisolone and had managed to taper to 13mg. I saw a different rheumatologist at my appt this week who threw me a complete
Hidden
in
PMRGCAuk
3 months ago
Variable periods of bloating, constipation and normal bowel function.
Currently at 5/5.5 mg prednisolone, and tapering very slowly. I'm in my third year since PMR diagnosis having started on 15 mg.I enjoy a healthy diet with regular exercise, dancing, table tennis and walking, varying the pace with varying pain levels. Grateful for any suggestions for a quick remedy/relief
Currently at 5/5.5 mg prednisolone, and tapering very slowly. I'm in my third year since PMR diagnosis having started on 15 mg.I enjoy a healthy diet with regular exercise, dancing, table tennis and walking, varying the pace with varying pain levels. Grateful for any suggestions for a quick remedy/relief
waltztherapy
in
PMRGCAuk
3 months ago
light at the end of the tunnel
I have posted a few times and have been very impatient with how long it was taking to be pain free especially at night. I was diagnosed in December and put on 15mg of prednisolone, which had. Been reduced to 7.5mg by April. Pain had increased by middle of April so towards the end of the month contacted
I have posted a few times and have been very impatient with how long it was taking to be pain free especially at night. I was diagnosed in December and put on 15mg of prednisolone, which had. Been reduced to 7.5mg by April. Pain had increased by middle of April so towards the end of the month contacted
lynda1955
in
PMRGCAuk
3 months ago
Does anyone take 15mg Bisoprol daily?
I recently posted a question about taking a medication to shorten an AFib episode and received some really helpful replies- thanks to everyone who replied. I was surprised that a few people were amazed that one of the blood pressure medications I take is 15mg of Bisoprol per day and say they would not
I recently posted a question about taking a medication to shorten an AFib episode and received some really helpful replies- thanks to everyone who replied. I was surprised that a few people were amazed that one of the blood pressure medications I take is 15mg of Bisoprol per day and say they would not
Jomaur
in
Atrial Fibrillation Support
3 months ago
Off pred
Well I've now finally come off prednisolone after 3.5 years and I found you very helpful and supportive. Unfortunately I've had to join the afib support group because just as I've finished with pred I've now had to start beta blockers and blood thinners. I think I'd rather be on Pred. One thing after
Well I've now finally come off prednisolone after 3.5 years and I found you very helpful and supportive. Unfortunately I've had to join the afib support group because just as I've finished with pred I've now had to start beta blockers and blood thinners. I think I'd rather be on Pred. One thing after
Exhiker
in
PMRGCAuk
3 months ago
Covid vax?
I’ve been invited for a COVID vax booster due to PMR/ Prednisolone. Anyone want to comment?
I’ve been invited for a COVID vax booster due to PMR/ Prednisolone. Anyone want to comment?
Oshmar
in
PMRGCAuk
3 months ago
burning Ali g spine
I have been diagnosed with GCA Dec 22, started prednisolone 30mg and have tapered a few times but have struggled below 12 and a half, I have recently had to go back to 15mg as recently had headaches and neck pain, things seemed to have settled, but I am now experiencing a burning sensation in my spine
I have been diagnosed with GCA Dec 22, started prednisolone 30mg and have tapered a few times but have struggled below 12 and a half, I have recently had to go back to 15mg as recently had headaches and neck pain, things seemed to have settled, but I am now experiencing a burning sensation in my spine
Mumdadlove
in
PMRGCAuk
3 months ago
Dealing with an AFib episode without meds.
I was diagnosed with Paroxysmal AFib by an Energency Dept Consultant who ordered certain tests to be done in the future and sent me home with Anticoagulants. I wasn’t given any advice on how to manage an AFib episode or a follow up consultation just a letter to say my test results were OK.A year later
I was diagnosed with Paroxysmal AFib by an Energency Dept Consultant who ordered certain tests to be done in the future and sent me home with Anticoagulants. I wasn’t given any advice on how to manage an AFib episode or a follow up consultation just a letter to say my test results were OK.A year later
Jomaur
in
Atrial Fibrillation Support
3 months ago
A few developments - anybody got similar
Don’t want to bore you all but I have had a couple of developments recently apart from having my Rituximab extended for another year. Firstly I am on statins since last Thursday, I am fit, I get out, eat a low carb/high fibre diet but my cholesterol is around 7 so it just shows you. No after effects
Don’t want to bore you all but I have had a couple of developments recently apart from having my Rituximab extended for another year. Firstly I am on statins since last Thursday, I am fit, I get out, eat a low carb/high fibre diet but my cholesterol is around 7 so it just shows you. No after effects
Investigator1
in
Vasculitis UK
3 months ago
treatment of prednisone side affects
My rheumatologist has not agreed to taper my 20:mg dosage of
prednisone
yet , ( 6 months on this dose) Ive had two doses of Kevzara and all labs are normal,but IL-6 is increasing . He says soon we will taper slowly .
My rheumatologist has not agreed to taper my 20:mg dosage of
prednisone
yet , ( 6 months on this dose) Ive had two doses of Kevzara and all labs are normal,but IL-6 is increasing . He says soon we will taper slowly .
GMA74
in
PMRGCAuk
1 year ago
Prednisolone and Dsyphagia
Hi Has any had any swallowing issues while reducing from prednisolone. That seems to be my latest annoying problem. It seems to be getting worse.
Hi Has any had any swallowing issues while reducing from prednisolone. That seems to be my latest annoying problem. It seems to be getting worse.
Raewynne
in
PMRGCAuk
3 months ago
Why is the pain and stiffness much worse in the morning
I find that pain and stiffness lasts all morning but seems to improve if i have a rest after lunch. This does seem to have got worse since I reduced a paltry 1/2 mg to 10.5mg which i was determined to stick to but I have been so struggling to walk or get up the stairs in the morning for the last couple
I find that pain and stiffness lasts all morning but seems to improve if i have a rest after lunch. This does seem to have got worse since I reduced a paltry 1/2 mg to 10.5mg which i was determined to stick to but I have been so struggling to walk or get up the stairs in the morning for the last couple
RachelJDH
in
PMRGCAuk
3 months ago
PMR or Fibromyalgia?
I am tapering my
prednisone
but am having a hard time determining if I have a FM or PMR flare. Do any of you have both and, if so, how do you know which is which? Thank you in advance!
I am tapering my
prednisone
but am having a hard time determining if I have a FM or PMR flare. Do any of you have both and, if so, how do you know which is which? Thank you in advance!
emmamom
in
PMRGCAuk
1 year ago
New to PMR
I have recently been diagnosed with PMR, symptoms cleared up dramatically on 20mg prednisolone, slowing reducing and now on 12.5mg. I am having some muscle stiffness in the morning after doing exercise, mainly from doing workouts with light weights. Should I continue or just do body weight workout? Any
I have recently been diagnosed with PMR, symptoms cleared up dramatically on 20mg prednisolone, slowing reducing and now on 12.5mg. I am having some muscle stiffness in the morning after doing exercise, mainly from doing workouts with light weights. Should I continue or just do body weight workout? Any
PurplePiggies
in
PMRGCAuk
3 months ago
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