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Experiences with
Prednisone
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Completed Camino de Santiago š
Remained on 5mg of
prednisone
without issue. Next step, re-evaluation. Thank you for the support.
Remained on 5mg of
prednisone
without issue. Next step, re-evaluation. Thank you for the support.
SMH4CRNA
in
PMRGCAuk
1 year ago
Right hip and shoulder pain
I have been on
Prednisone
for two and half years and have slowly reduced to 2and half mg. Now got pain in Rt hip and the outside of the thigh. Also a slight pain in right shoulder. I have had a relatively pain free reduction and have continued with yoga and kayaking.
I have been on
Prednisone
for two and half years and have slowly reduced to 2and half mg. Now got pain in Rt hip and the outside of the thigh. Also a slight pain in right shoulder. I have had a relatively pain free reduction and have continued with yoga and kayaking.
UmiMck
in
PMRGCAuk
1 year ago
Serious Dry Eyes
I have been using eye drops but now I am seriously using eye dropsā¦Refresh eye drops 6x during the day,
prednisone
drops 2x a day, gel drops at night, moist heat eye compress 1x a day, new humidifier plus I have seriously cut down on using my ceiling fans (not easy to do in Phoenix, AZā¦home of the over
I have been using eye drops but now I am seriously using eye dropsā¦Refresh eye drops 6x during the day,
prednisone
drops 2x a day, gel drops at night, moist heat eye compress 1x a day, new humidifier plus I have seriously cut down on using my ceiling fans (not easy to do in Phoenix, AZā¦home of the over
MaryAZ
in
My MSAA Community
1 year ago
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Been doing great lately, reduced again from 10 to 7.5mg prednisone. My crp is under 10 from 103
Other great thing is I am now taking too much insulin and today had a very low gucose experience due to the lower
prednisone
levels in my system. Which honestly is good news as I can cut back on insulin use. I hope to be able to keep reducing
prednisone
over the next 2 months.
Other great thing is I am now taking too much insulin and today had a very low gucose experience due to the lower
prednisone
levels in my system. Which honestly is good news as I can cut back on insulin use. I hope to be able to keep reducing
prednisone
over the next 2 months.
sdowney717
in
PMRGCAuk
1 year ago
35mg Pred after a year of GCA,PMR
I'm on Actemra and
prednisone
. I was reducing and got down to 12.5mg three months ago. But the symptoms came roaring back and I kept having to increase the dose. I've been on 35mg for one month. I tried to reduce by 2.5mg but the unbearable headache came back.
I'm on Actemra and
prednisone
. I was reducing and got down to 12.5mg three months ago. But the symptoms came roaring back and I kept having to increase the dose. I've been on 35mg for one month. I tried to reduce by 2.5mg but the unbearable headache came back.
potterylady
in
PMRGCAuk
1 year ago
Can pred cause dementia-like symptoms?
Is this
prednisone
or the disease? I do not think it is actual dementia. I am only 53, and when I am not working I can think clearly. It's more like an inability to cope with any kind of challenge. Can I or should I start another class of immune suppressants to reduce the amount of pred I take?
Is this
prednisone
or the disease? I do not think it is actual dementia. I am only 53, and when I am not working I can think clearly. It's more like an inability to cope with any kind of challenge. Can I or should I start another class of immune suppressants to reduce the amount of pred I take?
sferios
in
PMRGCAuk
1 year ago
Blood Test
I have been on prednisolone for PMR since June 24 2024, I am due to have blood tests on 29 August 2024 what tests should I be aware of that need to be taken, I am also having Thyroid bloods TSH and Free t4 tested as readings were out of range on last test.
I have been on prednisolone for PMR since June 24 2024, I am due to have blood tests on 29 August 2024 what tests should I be aware of that need to be taken, I am also having Thyroid bloods TSH and Free t4 tested as readings were out of range on last test.
Blodders2
in
PMRGCAuk
2 days ago
On 45mg Prednisolone. Doc just told me to miss a day.
I'm so frightened. I have got totally confused. Confusion started when I got diagnosed with GCA and put on Prednisolone 50 mg, along with Apixaban, Lanzoprazole, coleocalciferol, something that's vit D complex plus calcium (forgotton the name), simavastin and Bisoprolol. Then I had afall, got taken
I'm so frightened. I have got totally confused. Confusion started when I got diagnosed with GCA and put on Prednisolone 50 mg, along with Apixaban, Lanzoprazole, coleocalciferol, something that's vit D complex plus calcium (forgotton the name), simavastin and Bisoprolol. Then I had afall, got taken
Blondgrassblowing
in
PMRGCAuk
2 days ago
steroid reduction setback
i was diagnosed with PMR beginning of June and started on 15mg Prednisolone which immediately brought about huge improvement to the point where after a couple of weeks I had no pain. After 4 weeks, and with inflammatory markers down from 70s to normal, GP reduced dose to 14 mg. I found no deterioration
i was diagnosed with PMR beginning of June and started on 15mg Prednisolone which immediately brought about huge improvement to the point where after a couple of weeks I had no pain. After 4 weeks, and with inflammatory markers down from 70s to normal, GP reduced dose to 14 mg. I found no deterioration
Crosswordsolver
in
PMRGCAuk
2 days ago
IBS-C - have had this for life and is playing up again now
I remember being taken to hospital at a pre-school age because I had a 'blockage.' After that my mother gave me castor oil, enos, sennapods, that Ex-Lax chocolate that would not fool a 4 year old, prunes. You name it I had it and I can never remember having a bowel movement normally. I could go for
I remember being taken to hospital at a pre-school age because I had a 'blockage.' After that my mother gave me castor oil, enos, sennapods, that Ex-Lax chocolate that would not fool a 4 year old, prunes. You name it I had it and I can never remember having a bowel movement normally. I could go for
Miserere
in
IBS Network
4 days ago
Hydrocortisone Tablets
Hello everyone, hope all good & well with you all.. I have been on Hydrocortisone tablets for adrenal insufficiency for about 1 year now, I had been on prednisolone for many years quite a high dose & when I developed adrenal insufficiency I was put on a much lower dose of Hydrocortisone 10 mg morning
Hello everyone, hope all good & well with you all.. I have been on Hydrocortisone tablets for adrenal insufficiency for about 1 year now, I had been on prednisolone for many years quite a high dose & when I developed adrenal insufficiency I was put on a much lower dose of Hydrocortisone 10 mg morning
primrose123
in
Lung Conditions Community Forum
6 days ago
Good diet so no need for Adcal?
I asked my GP (again!)about taking Adcal and explained that a lot of people on this forum were automatically prescribed it when put on steroids. GP asked about my diet and said I was getting plenty of calcium in my diet. He said calcium and Vitamin D levels were good on my last blood test and the DEXA
I asked my GP (again!)about taking Adcal and explained that a lot of people on this forum were automatically prescribed it when put on steroids. GP asked about my diet and said I was getting plenty of calcium in my diet. He said calcium and Vitamin D levels were good on my last blood test and the DEXA
Mfaepink1973
in
PMRGCAuk
6 days ago
adrenals struggling and diarrhoea
hi, I am down to 3.5mg of prednisolone and struggling with some stomach issues and fatigue. last night I had awful stomach cramps, nausea and diarrhoea that lasted all night and into today and felt quite weak. I am wondering what people take to help with this. Thank you for any help
hi, I am down to 3.5mg of prednisolone and struggling with some stomach issues and fatigue. last night I had awful stomach cramps, nausea and diarrhoea that lasted all night and into today and felt quite weak. I am wondering what people take to help with this. Thank you for any help
Koalajane
in
PMRGCAuk
6 days ago
Hello fellow sufferers
I've just found this forum (all new to me posting on a forum), as I have been diagnosed with PMR recently and am finding dealing with the symptoms a struggle. I don't have any tips currently but am looking forward to reading about other people's experiences with the condition. I'm in the early stages
I've just found this forum (all new to me posting on a forum), as I have been diagnosed with PMR recently and am finding dealing with the symptoms a struggle. I don't have any tips currently but am looking forward to reading about other people's experiences with the condition. I'm in the early stages
greencyclist62
in
PMRGCAuk
7 days ago
Prednisolone enquiry
Presently as well as PMR I am being treated for Vasculitis. The regimen was high doses of prednisolone with mecophenolate and rituzimab infusions. My consultant on reducing the pred is suggesting 5mg on alternate days instead of 2.5mg daily. Any ideas of the reasoning behind that?
Presently as well as PMR I am being treated for Vasculitis. The regimen was high doses of prednisolone with mecophenolate and rituzimab infusions. My consultant on reducing the pred is suggesting 5mg on alternate days instead of 2.5mg daily. Any ideas of the reasoning behind that?
HamishPMR
in
PMRGCAuk
7 days ago
Thyroxine and methylprednisolone
Can I take my prednisolone and levothyroxine together or better one hour apart ?
Can I take my prednisolone and levothyroxine together or better one hour apart ?
Lasagne777
in
PMRGCAuk
7 days ago
Reducing Prednisolone question
I have had PMR since October 2017 now, and gradually reducing fairly successfully. Twice before I had a problem at 3.5mg , and could not get any lower, having a couple of flares. Now I have just got down to 2.75mg by the slow method at the rate of .25mg over a six week period. So it has taken me a long
I have had PMR since October 2017 now, and gradually reducing fairly successfully. Twice before I had a problem at 3.5mg , and could not get any lower, having a couple of flares. Now I have just got down to 2.75mg by the slow method at the rate of .25mg over a six week period. So it has taken me a long
Purplegloss
in
PMRGCAuk
8 days ago
Flare protocol
What exactly is the 'flare protocol'? I am trying to get off prednisolone due to the side effects, but as I am now on 5mg (reducing by 1mg a month) & I am beginning to get some shoulder/upper arm pain, I wondered if I should up the dose, but by how much & for how long? I know it isn't a race, but
What exactly is the 'flare protocol'? I am trying to get off prednisolone due to the side effects, but as I am now on 5mg (reducing by 1mg a month) & I am beginning to get some shoulder/upper arm pain, I wondered if I should up the dose, but by how much & for how long? I know it isn't a race, but
Potter100
in
PMRGCAuk
9 days ago
Tapering on split dose
Hi all, Iām so thankful for this forum and all the knowledgeable people, hoping for more good adviceā¦Started on split dose of 10mgs Prednisolone morning and evening in January this year. After 4 weeks I started tapering my evening dose by 1 mg every 2-3 weeks with no problems or recurrence of pain, am
Hi all, Iām so thankful for this forum and all the knowledgeable people, hoping for more good adviceā¦Started on split dose of 10mgs Prednisolone morning and evening in January this year. After 4 weeks I started tapering my evening dose by 1 mg every 2-3 weeks with no problems or recurrence of pain, am
Tribie
in
PMRGCAuk
9 days ago
Sleuthing - Natural Killer Cells way too high
Hi All, So far on my journey, some interesting developments; I have scheduled
intraovarian PRP
(Platelet-rich plasma) and
LLLT
(Low-level laser therapy) to commence 100 days prior to my next round of IVF....... I was told the eggs renew every 100 days. During analysis (which I had done
Hi All, So far on my journey, some interesting developments; I have scheduled
intraovarian PRP
(Platelet-rich plasma) and
LLLT
(Low-level laser therapy) to commence 100 days prior to my next round of IVF....... I was told the eggs renew every 100 days. During analysis (which I had done
AnotherLaura
in
Fertility Network UK
10 days ago
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