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severe neck pain
I’m a couple of months in on eligard,abiraterone and
prednisone
(5mg).
I’m a couple of months in on eligard,abiraterone and
prednisone
(5mg).
Tommyj2
in
Advanced Prostate Cancer
5 months ago
A few developments - anybody got similar
Don’t want to bore you all but I have had a couple of developments recently apart from having my Rituximab extended for another year. Firstly I am on statins since last Thursday, I am fit, I get out, eat a low carb/high fibre diet but my cholesterol is around 7 so it just shows you. No after effects
Don’t want to bore you all but I have had a couple of developments recently apart from having my Rituximab extended for another year. Firstly I am on statins since last Thursday, I am fit, I get out, eat a low carb/high fibre diet but my cholesterol is around 7 so it just shows you. No after effects
Investigator1
in
Vasculitis UK
5 hours ago
Prednisolone and Dsyphagia
Hi Has any had any swallowing issues while reducing from prednisolone. That seems to be my latest annoying problem. It seems to be getting worse.
Hi Has any had any swallowing issues while reducing from prednisolone. That seems to be my latest annoying problem. It seems to be getting worse.
Raewynne
in
PMRGCAuk
1 day ago
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Why is the pain and stiffness much worse in the morning
I find that pain and stiffness lasts all morning but seems to improve if i have a rest after lunch. This does seem to have got worse since I reduced a paltry 1/2 mg to 10.5mg which i was determined to stick to but I have been so struggling to walk or get up the stairs in the morning for the last couple
I find that pain and stiffness lasts all morning but seems to improve if i have a rest after lunch. This does seem to have got worse since I reduced a paltry 1/2 mg to 10.5mg which i was determined to stick to but I have been so struggling to walk or get up the stairs in the morning for the last couple
RachelJDH
in
PMRGCAuk
1 day ago
New to PMR
I have recently been diagnosed with PMR, symptoms cleared up dramatically on 20mg prednisolone, slowing reducing and now on 12.5mg. I am having some muscle stiffness in the morning after doing exercise, mainly from doing workouts with light weights. Should I continue or just do body weight workout? Any
I have recently been diagnosed with PMR, symptoms cleared up dramatically on 20mg prednisolone, slowing reducing and now on 12.5mg. I am having some muscle stiffness in the morning after doing exercise, mainly from doing workouts with light weights. Should I continue or just do body weight workout? Any
PurplePiggies
in
PMRGCAuk
2 days ago
Shocking turn of events and I'm terrified- reassurance appreciated
Hi - sorry in advance for long post!I've had a really shocking turn of events this week (I'm normally on the other forum) and hoping I can get some reassurance. The context is that I've been TTC for 5 years and have tried IVF multiple times. Had an early natural miscarriage back in 2020. In 2021 for
Hi - sorry in advance for long post!I've had a really shocking turn of events this week (I'm normally on the other forum) and hoping I can get some reassurance. The context is that I've been TTC for 5 years and have tried IVF multiple times. Had an early natural miscarriage back in 2020. In 2021 for
Skittles11
in
Fertility Network UK - Pregnancy Support
2 days ago
GCA and prednisolone reduction while taking Leflunomide
Hi everyone, I thought I'd give you an update (while apologising for not being around recently). GCA diagnosed last December (PMR previously diagnosed 2020). 60mg pred for a few days then reduced to 40mg and then reductions down to 25mg by the end of January when I started 10mg Leflunomide. After a
Hi everyone, I thought I'd give you an update (while apologising for not being around recently). GCA diagnosed last December (PMR previously diagnosed 2020). 60mg pred for a few days then reduced to 40mg and then reductions down to 25mg by the end of January when I started 10mg Leflunomide. After a
DogAgilityObsessed
in
PMRGCAuk
2 days ago
Advice please re steroid dose following fall, facial lacerations, broken nose etc…
Hi all, yesterday I stupidly trotted across a road, my leg gave way and I ended up sliding across on my face, hitting my cheek/nose on the kerb. Been to A&E, all sorted apart from sore shoulder which is a little better today. The pain feels very specific in that I feel it only in certain positions or
Hi all, yesterday I stupidly trotted across a road, my leg gave way and I ended up sliding across on my face, hitting my cheek/nose on the kerb. Been to A&E, all sorted apart from sore shoulder which is a little better today. The pain feels very specific in that I feel it only in certain positions or
Tribie
in
PMRGCAuk
3 days ago
Rituximab effects
I've given consent to try Rituximab after Prednisolone isn't getting ra under control. I've learnt will be 4/5 hour infusion at hospital. And clothing tip, and food tips thanks peeps. Question is. Can I go to and from hospital by public transport or do I have to have someone collect me? Thanks everyone
I've given consent to try Rituximab after Prednisolone isn't getting ra under control. I've learnt will be 4/5 hour infusion at hospital. And clothing tip, and food tips thanks peeps. Question is. Can I go to and from hospital by public transport or do I have to have someone collect me? Thanks everyone
SALI
in
NRAS
3 days ago
Neck Crepitus: Is this onset of GCA?
I'm tapering down since my original diagnosis back in January when I was on 15mg of Prednisolone and am now down to 8Mg going down 1mg every 4 weeks at present. My progress has been great. No Carb diet meant I lost about 21 lbs and I've been training 3 times per week at the gym. I mostly stick to Cardio
I'm tapering down since my original diagnosis back in January when I was on 15mg of Prednisolone and am now down to 8Mg going down 1mg every 4 weeks at present. My progress has been great. No Carb diet meant I lost about 21 lbs and I've been training 3 times per week at the gym. I mostly stick to Cardio
Lickle
in
PMRGCAuk
3 days ago
inflammation on hydroxychloroquine and 5mg of prednisolone
hello, I saw my rheumatologist today after complaining about my painful hands and wrists. The doctor mentioned that I don’t show any signs of inflammation on my hands or anywhere else. The reason I am confused is because I have been on hydroxychloroquine and prednisolone since September of last year
hello, I saw my rheumatologist today after complaining about my painful hands and wrists. The doctor mentioned that I don’t show any signs of inflammation on my hands or anywhere else. The reason I am confused is because I have been on hydroxychloroquine and prednisolone since September of last year
Morepasta
in
Scleroderma & Raynaud's UK (SRUK)
5 days ago
Stopping prednisolone/steroids
Hi, I have RA and had flare up for the.last 3 months , so doctor prescribed me prednisolone 40gm for 10 weeks ( staggered down every 2 weeks) .The inflammation stopped after day 1 on steroids but I am too scared of the side effects ( putting on weight, moods...) and now think I don't want to take that
Hi, I have RA and had flare up for the.last 3 months , so doctor prescribed me prednisolone 40gm for 10 weeks ( staggered down every 2 weeks) .The inflammation stopped after day 1 on steroids but I am too scared of the side effects ( putting on weight, moods...) and now think I don't want to take that
virginied
in
NRAS
5 days ago
PMR - Tales of the Unexpected
I’d been suffering with what I thought was a severe PMR flare for weeks and weeks (very stiff leg muscles and sharp cramps especially in the thighs). I was of 5mg Prednisolone daily and was hoping as with past incidents it would settle down and things would return to normal. It didn’t so I eventually
I’d been suffering with what I thought was a severe PMR flare for weeks and weeks (very stiff leg muscles and sharp cramps especially in the thighs). I was of 5mg Prednisolone daily and was hoping as with past incidents it would settle down and things would return to normal. It didn’t so I eventually
7DaysinMay
in
PMRGCAuk
5 days ago
Meniscus tear/PMR flare update
I am following PMRpro’s advice and this morning dropped to 6mg prednisolone. I had requested more 5mg pred tablets on the MyGP app and last Friday got a call from the pharmacist at my GP surgery to say doctor wants me to drop to 4mg for 4 weeks then taper down every four weeks!! This was the GP who
I am following PMRpro’s advice and this morning dropped to 6mg prednisolone. I had requested more 5mg pred tablets on the MyGP app and last Friday got a call from the pharmacist at my GP surgery to say doctor wants me to drop to 4mg for 4 weeks then taper down every four weeks!! This was the GP who
Mfaepink1973
in
PMRGCAuk
7 days ago
Sorolla
Hello all of you brave, kind people. PMR began January 2022, diagnosed August 2023 when I started taking 10mg prednisolone. I have managed to taper to 2.5, which on the basis of all that I have read here, was good going but then I felt the return of pain as I tried to go below that. My doctor recommended
Hello all of you brave, kind people. PMR began January 2022, diagnosed August 2023 when I started taking 10mg prednisolone. I have managed to taper to 2.5, which on the basis of all that I have read here, was good going but then I felt the return of pain as I tried to go below that. My doctor recommended
Sorolla
in
PMRGCAuk
8 days ago
Prednislone reducing and increased glaucoma
Hi I am down to 3.5mg Pred from 100mg for Temporal Arteritis. My vision has got extremely bad.I have Steroid induced glaucoma.I saw a chemist.She thinks I need to go to emergency at hospital but I have my reservations..I wondering if it's another side effect of reducing prednisolone and if I should
Hi I am down to 3.5mg Pred from 100mg for Temporal Arteritis. My vision has got extremely bad.I have Steroid induced glaucoma.I saw a chemist.She thinks I need to go to emergency at hospital but I have my reservations..I wondering if it's another side effect of reducing prednisolone and if I should
Raewynne
in
PMRGCAuk
9 days ago
gastric upset
Good afternoon wise people, I gave been on Prednisolone for almost 2 years , stopped my Lansoprazole 9 months ago with no ill effects . Now over the last 4 weeks I have bloating ,nausea and burping and it’s quite intense . Is it possible it’s caused by long term usage of Prednisolone ? Dont understand
Good afternoon wise people, I gave been on Prednisolone for almost 2 years , stopped my Lansoprazole 9 months ago with no ill effects . Now over the last 4 weeks I have bloating ,nausea and burping and it’s quite intense . Is it possible it’s caused by long term usage of Prednisolone ? Dont understand
5goFlotilla
in
PMRGCAuk
10 days ago
Prednisolone tapering below 3mgs
Over 3 years have tapered between 30mgs and zero, at which point suffered a flare up having reduced by 1 mg a month once I reached 5 mgs . Recently tapering alternate days 3/2 mgs, felt like flare up again so OK going back to 3 mgs. Now want to taper more slowly.... any suggestions please?
Over 3 years have tapered between 30mgs and zero, at which point suffered a flare up having reduced by 1 mg a month once I reached 5 mgs . Recently tapering alternate days 3/2 mgs, felt like flare up again so OK going back to 3 mgs. Now want to taper more slowly.... any suggestions please?
moconnolly
in
PMRGCAuk
10 days ago
Haz58
Hello Haz58, I’m sorry you are having such a rotten time in sorting out the medications which you can tolerate. I could not take Azapriothine or Methotrexate but have settled reasonably happily with a daily routine of Bisoprolol, Levothyroxine, Amlodipine, Prednisolone, Ursodeoxycholic Acid, Losartan
Hello Haz58, I’m sorry you are having such a rotten time in sorting out the medications which you can tolerate. I could not take Azapriothine or Methotrexate but have settled reasonably happily with a daily routine of Bisoprolol, Levothyroxine, Amlodipine, Prednisolone, Ursodeoxycholic Acid, Losartan
Katiecatweazel
in
NRAS
11 days ago
high inflammation markers but no pain.
I was on Prednisolone for about 6 years. For the last year I have been on zero with no recurrent symptoms of PMR. I have recently had a number of blood tests as I had been to the doctor complaining about lethargy and tiredness. I remain active, going to the gym 3x a week although struggling somewhat
I was on Prednisolone for about 6 years. For the last year I have been on zero with no recurrent symptoms of PMR. I have recently had a number of blood tests as I had been to the doctor complaining about lethargy and tiredness. I remain active, going to the gym 3x a week although struggling somewhat
Cycleman
in
PMRGCAuk
12 days ago
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