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Pegasys
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Finally failed at side-stepping the “rona”
The day before I tested positive I had my
Pegasys
injection and I am curious to see if the Peg will help once it reaches its peak of release ( from past experience with Peg first dose side effects , apparently I am textbook with 36 hours).
The day before I tested positive I had my
Pegasys
injection and I am curious to see if the Peg will help once it reaches its peak of release ( from past experience with Peg first dose side effects , apparently I am textbook with 36 hours).
Aldebaran25
in
MPN Voice
5 months ago
Am I at a higher risk from Covid ?
I have ET which is currently being treated with
Pegasys
and Aspirin. Am I classed as vulnerable? There is an option at work to have a special risk assessment if i am. I didnt ask my consultant and now wont see him till December. Thanks
I have ET which is currently being treated with
Pegasys
and Aspirin. Am I classed as vulnerable? There is an option at work to have a special risk assessment if i am. I didnt ask my consultant and now wont see him till December. Thanks
Scarlett500
in
MPN Voice
9 months ago
Leg Cramps
Could this be a symptom of PV or a side effect of
Pegasys
? Taking extra magnesium doesn’t seem to help unfortunately. Seeing my Haematologist in 10 days so I will be asking her advice then.
Could this be a symptom of PV or a side effect of
Pegasys
? Taking extra magnesium doesn’t seem to help unfortunately. Seeing my Haematologist in 10 days so I will be asking her advice then.
21Rosie
in
MPN Voice
8 months ago
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Pegasys and increasingly low haemoglobin count
Has anyone else experienced a steady drop in haemoglobin counts whilst on
pegasys
, after a similar period of time (5 years)? Did reducing the dosage reverse the situation? Thanks in advance. Pete
Has anyone else experienced a steady drop in haemoglobin counts whilst on
pegasys
, after a similar period of time (5 years)? Did reducing the dosage reverse the situation? Thanks in advance. Pete
PT99
in
MPN Voice
10 months ago
Pegasys treatment
Hi there,I am about to start my PV treatment with
Pegasys
. My doctor says to start at 90 mg as that's minimum dosage. However, I noticed others start at 45mg due to side effects and so to let the body get use to it. How was your experience with
Pegasys
?
Hi there,I am about to start my PV treatment with
Pegasys
. My doctor says to start at 90 mg as that's minimum dosage. However, I noticed others start at 45mg due to side effects and so to let the body get use to it. How was your experience with
Pegasys
?
kamiilos
in
MPN Voice
10 months ago
Looking for an MPN specialist near Washington DC
Currently on very low dose of
Pegasys
that might be working *too* well, and need to figure out next steps. Willing to drive a reasonable distance (4-5 hours is acceptable) for the right doc!
Currently on very low dose of
Pegasys
that might be working *too* well, and need to figure out next steps. Willing to drive a reasonable distance (4-5 hours is acceptable) for the right doc!
110srh
in
MPN Voice
9 months ago
2 months on pegasys - first follow up
Started
pegasys
2 months ago and platelets were in the 900 range with 2x500mg HU daily. Platelets were 1.2m before starting HU. Hoping this means I can start to ween off HU! 🎉 hope everyone is doing ok. Hang in there, good things can happen!
Started
pegasys
2 months ago and platelets were in the 900 range with 2x500mg HU daily. Platelets were 1.2m before starting HU. Hoping this means I can start to ween off HU! 🎉 hope everyone is doing ok. Hang in there, good things can happen!
dbus1417
in
MPN Voice
9 months ago
A bit worried
I’ve been on
Pegasys
for a few years and with ET CALR2. Platelets are well controlled at 329 but these results have WBC at 10.9. This is still only just in the normal range but previous results in March this year were a WBC OF 4.9. I’m worried that it has gone up so much.
I’ve been on
Pegasys
for a few years and with ET CALR2. Platelets are well controlled at 329 but these results have WBC at 10.9. This is still only just in the normal range but previous results in March this year were a WBC OF 4.9. I’m worried that it has gone up so much.
hall2
in
MPN Voice
9 months ago
Risks of Pegasus?
I asked my consultant about changing to
Pegasys
but she said that interferons are not advised for the over-60s. Is this right? Why would my age make any difference? And will I be risking my health if I go ahead with
Pegasys
?
I asked my consultant about changing to
Pegasys
but she said that interferons are not advised for the over-60s. Is this right? Why would my age make any difference? And will I be risking my health if I go ahead with
Pegasys
?
Sivasi
in
MPN Voice
11 months ago
Drug insurance that covers Pegasys in US
Does anyone in US on Medicare have a drug plan that covers
Pegasys
or has a low copay? I need to change my drug plan this year.
Does anyone in US on Medicare have a drug plan that covers
Pegasys
or has a low copay? I need to change my drug plan this year.
Doxy46
in
MPN Voice
10 months ago
jakafi and Pegasys combination for Myelofibrosis
Does anyone have both Jakafi and
Pegasys
? My Mpn has hinted that this might be a good combination. I think there have been trials but I can’t find them now!
Does anyone have both Jakafi and
Pegasys
? My Mpn has hinted that this might be a good combination. I think there have been trials but I can’t find them now!
Yanico
in
MPN Voice
10 months ago
Big Question
I have been in complete haematologic remission on
Pegasys
(45 ug every 2 weeks for the last year). I have never had an official allele burden as it is not available here. Though I did send saliva and nail clippings to the study in California on familial MPNs under Dr. Angela Fleischman.
I have been in complete haematologic remission on
Pegasys
(45 ug every 2 weeks for the last year). I have never had an official allele burden as it is not available here. Though I did send saliva and nail clippings to the study in California on familial MPNs under Dr. Angela Fleischman.
Planti
in
MPN Voice
8 months ago
Tolerant to Hydrea, giving Pegasys another try....
I got off of
Pegasys
in March because I was starting to feel "down" and massive fatigue, but we are giving it another try on a low dose. We think I'm growing tolerant to Hydrea. My Dr said that they are seeing this a lot with ET patients. But we want to try
Pegasys
again before Anagrelide.
I got off of
Pegasys
in March because I was starting to feel "down" and massive fatigue, but we are giving it another try on a low dose. We think I'm growing tolerant to Hydrea. My Dr said that they are seeing this a lot with ET patients. But we want to try
Pegasys
again before Anagrelide.
Zeppelin11
in
MPN Voice
11 months ago
Outcome after 4 years of weekly Pegasys injections for PV.
After 4 years of weekly injections of
Pegasys
, the JAK2 VAF is now down to 2.3%. No phlebotomies needed since 2019. Pruritis or fatigue is gone. No objective symptoms.
After 4 years of weekly injections of
Pegasys
, the JAK2 VAF is now down to 2.3%. No phlebotomies needed since 2019. Pruritis or fatigue is gone. No objective symptoms.
Manouche
in
MPN Voice
9 months ago
Quarterly follow up - switching to interferon
My hematologist wants to begin
Pegasys
in conjunction with HU for a bit and gradually transition to
pegasys
only. Any of my CALR people have experience with
pegasys
? I am interested in what to expect..
My hematologist wants to begin
Pegasys
in conjunction with HU for a bit and gradually transition to
pegasys
only. Any of my CALR people have experience with
pegasys
? I am interested in what to expect..
dbus1417
in
MPN Voice
1 year ago
Drop Hydroxy for Pegasus?
I started on
Pegasys
, 45mg, six weeks ago and my consultant told me to continue with Hydroxy also, 500mg daily. After the first 4 weeks my platelets were up to 810. He's now increased the dose to 90mg Peg and told me to stop taking the Hydroxy.
I started on
Pegasys
, 45mg, six weeks ago and my consultant told me to continue with Hydroxy also, 500mg daily. After the first 4 weeks my platelets were up to 810. He's now increased the dose to 90mg Peg and told me to stop taking the Hydroxy.
Sivasi
in
MPN Voice
9 months ago
Pegasys --> Besremi and HCT
I recently made the jump from
Pegasys
to Besremi. I was on 135ug every 9 days without need of supporting venesection (at least for the last 8 months or so).
I recently made the jump from
Pegasys
to Besremi. I was on 135ug every 9 days without need of supporting venesection (at least for the last 8 months or so).
Swede99
in
MPN Voice
11 months ago
ET/PV/MPN-U
I have now started
Pegasys
45mcg every other week- on the suggestion to go low and slow.. If I had relied solely on information on the web the possible side effects would have terrified me but the supportive forum here gave me the confidence to give it a go.
I have now started
Pegasys
45mcg every other week- on the suggestion to go low and slow.. If I had relied solely on information on the web the possible side effects would have terrified me but the supportive forum here gave me the confidence to give it a go.
Mookat4
in
MPN Voice
7 months ago
pegasys and migraines
I never had migraines prior to taking
Pegasys
. I will speak to the hematologist, but I need some thoughts before I do that. Thanks for any input.
I never had migraines prior to taking
Pegasys
. I will speak to the hematologist, but I need some thoughts before I do that. Thanks for any input.
Smithjoa
in
MPN Voice
11 months ago
castor, oil patch
I’m not sure if we can do this being on
pegasys
just interested if anyone has done this
I’m not sure if we can do this being on
pegasys
just interested if anyone has done this
Nc3500
in
MPN Voice
11 months ago
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