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Newly diagnosed with CLL and wondering what tests to request.
Hi all, I didn't feel well after partial thyroidectomy. Had some teats and was told I have cll. Was told just to watch and be retested every three months. I was tested for CBC and differential. From reading some of these posts, it looks like there is a genetic test available. I have my first appt.
Hi all, I didn't feel well after partial thyroidectomy. Had some teats and was told I have cll. Was told just to watch and be retested every three months. I was tested for CBC and differential. From reading some of these posts, it looks like there is a genetic test available. I have my first appt.
montieth
in
CLL Support
2 years ago
Final Day to submit your comment! If you live in the US - Arrhythmia Alliance need your help urgently!
If you are a person with AF on Medicare (in the US and 65 or more) or a caregiver of someone with AF, we are calling on you to take immediate action to help you and others like you, to be able to access catheter ablation treatment if needed. There is a real threat as AF catheter ablations may become
If you are a person with AF on Medicare (in the US and 65 or more) or a caregiver of someone with AF, we are calling on you to take immediate action to help you and others like you, to be able to access catheter ablation treatment if needed. There is a real threat as AF catheter ablations may become
TracyAdmin
ArrhythmiaAlliance
in
Arrhythmia Alliance
2 years ago
Final Day to submit your comment! If you live in the US - AF Association need your help urgently!
If you are a person with AF on Medicare (in the US and 65 or more) or a caregiver of someone with AF, we are calling on you to take immediate action to help you and others like you, to be able to access catheter ablation treatment if needed. There is a real threat as AF catheter ablations may become
If you are a person with AF on Medicare (in the US and 65 or more) or a caregiver of someone with AF, we are calling on you to take immediate action to help you and others like you, to be able to access catheter ablation treatment if needed. There is a real threat as AF catheter ablations may become
TracyAdmin
Partner
in
AF Association
2 years ago
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New Skin lesions-- with metastatic breast cancer
I just passed my 26 years since diagnosis and 6 years since metastatic in multiple bones. Mutiple early-stage drugs and chemo and mastectomy. I have now been 6 years on Ibrance with varied combo drugs including Exemestane, letrozole and Faslodex,. Numbers on my PET scan are increasing so the onc is looking
I just passed my 26 years since diagnosis and 6 years since metastatic in multiple bones. Mutiple early-stage drugs and chemo and mastectomy. I have now been 6 years on Ibrance with varied combo drugs including Exemestane, letrozole and Faslodex,. Numbers on my PET scan are increasing so the onc is looking
caw517
in
SHARE Metastatic Breast Cancer
2 years ago
I'm a Newbie and a Breast Cancer Survivor 😊
Hi everybody! I am a firm believer in the power of peer groups and I am sooo happy I found you! I was just diagnosed in late April and had a modified radical mastectomy (aka double mastectomy) May 25th of this year. With an absolute belief in faith and with the grace God, I think I've sailed through
Hi everybody! I am a firm believer in the power of peer groups and I am sooo happy I found you! I was just diagnosed in late April and had a modified radical mastectomy (aka double mastectomy) May 25th of this year. With an absolute belief in faith and with the grace God, I think I've sailed through
mmb12497
in
SHARE Breast Cancer Support
2 years ago
Brachycardia attacks help.2 days on the trot.In persistent AFib.Dont know how to deal with it.
I have been in persistent AFib for 18 months and HR has been fairly Stable.Last 2days I have over excercised HR Up to140 temporarily with twinges in my chest. I rested until down to normal and few hours later Dizzy spells Visual migraine aura & HR 58 to 6 0.Should I be contacting anyone? Or shall
I have been in persistent AFib for 18 months and HR has been fairly Stable.Last 2days I have over excercised HR Up to140 temporarily with twinges in my chest. I rested until down to normal and few hours later Dizzy spells Visual migraine aura & HR 58 to 6 0.Should I be contacting anyone? Or shall
kkatz
in
Atrial Fibrillation Support
2 years ago
Cardiac Care
Hi there ! Is everyone with A/F supposed to have access to have a cardiologist or access to an A/F nurse? I was diagnosed with A/F in 2011 and have not seen a cardiologist since. I paid for a private consultation with an EP who was keen for an ablation - I was not at that time - and I haven’t
Hi there ! Is everyone with A/F supposed to have access to have a cardiologist or access to an A/F nurse? I was diagnosed with A/F in 2011 and have not seen a cardiologist since. I paid for a private consultation with an EP who was keen for an ablation - I was not at that time - and I haven’t
123Elizabeth
in
AF Association
2 years ago
5 years and still here!
Well there was a time early on when I wondered if I’d make it this far. I was diagnosed 3a in 2017 aged 47. It was in one ovary and lymph nodes. Had the full debulking op and chemo. I’ve had great treatment down here in Kent and have nothing but praise for my Onc Dr W who has put up with my endless
Well there was a time early on when I wondered if I’d make it this far. I was diagnosed 3a in 2017 aged 47. It was in one ovary and lymph nodes. Had the full debulking op and chemo. I’ve had great treatment down here in Kent and have nothing but praise for my Onc Dr W who has put up with my endless
Emsymits
in
My Ovacome
2 years ago
Update
I diagnosed with Flutter end of June 22 after a couple of trips to A&E. prescribed Edoxaban 30mg with Bisosporol 2.5 daily reduced to 1.25 mg daily as I already have low BP. Episodes of possible Flutter are happening at least once a week. I do have etopics apparently and one ECG showed narrow tachycardia
I diagnosed with Flutter end of June 22 after a couple of trips to A&E. prescribed Edoxaban 30mg with Bisosporol 2.5 daily reduced to 1.25 mg daily as I already have low BP. Episodes of possible Flutter are happening at least once a week. I do have etopics apparently and one ECG showed narrow tachycardia
fairyfeathers
in
Heart Rhythm Disorders Support
2 years ago
nefopam and acute angle closure glaucoma
Hello, I am a health care worker and I have just been diagnosed with arthritis in my hips. My gp has just prescribed nefopam and since starting them I have not been able to sleep. I have acute glaucoma and I am worried that taking this medication might damage my eyesight further. Has anyone else had
Hello, I am a health care worker and I have just been diagnosed with arthritis in my hips. My gp has just prescribed nefopam and since starting them I have not been able to sleep. I have acute glaucoma and I am worried that taking this medication might damage my eyesight further. Has anyone else had
Sickofpain140
in
British Liver Trust
2 years ago
If you live in the US - Arrhythmia Alliance need your help urgently!
If you are a person with AF on Medicare (in the US and 65 or more) or a caregiver of someone with AF, we are calling on you to take immediate action to help you and others like you, to be able to access catheter ablation treatment if needed. There is a real threat as AF catheter ablations may become
If you are a person with AF on Medicare (in the US and 65 or more) or a caregiver of someone with AF, we are calling on you to take immediate action to help you and others like you, to be able to access catheter ablation treatment if needed. There is a real threat as AF catheter ablations may become
TracyAdmin
ArrhythmiaAlliance
in
Arrhythmia Alliance
2 years ago
If you live in the US - AF Association need your help urgently!
If you are a person with AF on Medicare (in the US and 65 or more) or a caregiver of someone with AF, we are calling on you to take immediate action to help you and others like you, to be able to access catheter ablation treatment if needed. There is a real threat as AF catheter ablations may become
If you are a person with AF on Medicare (in the US and 65 or more) or a caregiver of someone with AF, we are calling on you to take immediate action to help you and others like you, to be able to access catheter ablation treatment if needed. There is a real threat as AF catheter ablations may become
TracyAdmin
Partner
in
AF Association
2 years ago
Unusual AF episode
I went out to post a letter this afternoon and was out for about 15 minutes. On my return I experienced what I thought were ectopics with some very mild chest discomfort. I took a 1lead Kardia to check and was surprised to see the "Atrial Fibrillation" indication with a heart rate of 93bpm. The AF
I went out to post a letter this afternoon and was out for about 15 minutes. On my return I experienced what I thought were ectopics with some very mild chest discomfort. I took a 1lead Kardia to check and was surprised to see the "Atrial Fibrillation" indication with a heart rate of 93bpm. The AF
Samazeuilh2
in
Atrial Fibrillation Support
2 years ago
Stroke risk overstated for healthy people with AFib?
I am not on an anti-coagulant, and was trying to find out what the actual risk of stroke is. There's another afib forum called afibbers.org whose leaders don't believe that otherwise healthy afibbers need anti-coagulants, and that the 5X stroke risk that is cited really only applies to older people
I am not on an anti-coagulant, and was trying to find out what the actual risk of stroke is. There's another afib forum called afibbers.org whose leaders don't believe that otherwise healthy afibbers need anti-coagulants, and that the 5X stroke risk that is cited really only applies to older people
WildIris
in
Atrial Fibrillation Support
2 years ago
My first cardioversion. Couple of questions. Thanks.
Oct 10 having a cardioversion for Atrial Flutter. Its been bothering me for about 2 years. Fairly well controlled with • DilTIAZem (Eqv-Tiazac) 180 mg/24 hours oral capsule, extended release but still feel extremely fatigued sometimes so I am finally going to take the cardiologists recommendation.
Oct 10 having a cardioversion for Atrial Flutter. Its been bothering me for about 2 years. Fairly well controlled with • DilTIAZem (Eqv-Tiazac) 180 mg/24 hours oral capsule, extended release but still feel extremely fatigued sometimes so I am finally going to take the cardiologists recommendation.
Hydroplane
in
AF Association
2 years ago
A tale of caution.
My FIL, whom also has AFIB, was recently switched from warfarin to xeralto. He did not tolerate it well, so while waiting for a Dr. appt to find something easier, he decided...without informing anyone, to reduce the dosage by half. Bad idea. He suffered an ocular stroke and has lost the sight in his
My FIL, whom also has AFIB, was recently switched from warfarin to xeralto. He did not tolerate it well, so while waiting for a Dr. appt to find something easier, he decided...without informing anyone, to reduce the dosage by half. Bad idea. He suffered an ocular stroke and has lost the sight in his
beach_bum
in
AF Association
2 years ago
If you live in the US - AF Association need your help urgently!
If you are a person with AF on Medicare (in the US and 65 or more) or a caregiver of someone with AF, we are calling on you to take immediate action to help you and others like you, to be able to access catheter ablation treatment if needed. There is a real threat as AF catheter ablations may become
If you are a person with AF on Medicare (in the US and 65 or more) or a caregiver of someone with AF, we are calling on you to take immediate action to help you and others like you, to be able to access catheter ablation treatment if needed. There is a real threat as AF catheter ablations may become
TracyAdmin
Partner
in
AF Association
2 years ago
If you live in the US - Arrhythmia Alliance need your help urgently!
If you are a person with AF on Medicare (in the US and 65 or more) or a caregiver of someone with AF, we are calling on you to take immediate action to help you and others like you, to be able to access catheter ablation treatment if needed. There is a real threat as AF catheter ablations may become
If you are a person with AF on Medicare (in the US and 65 or more) or a caregiver of someone with AF, we are calling on you to take immediate action to help you and others like you, to be able to access catheter ablation treatment if needed. There is a real threat as AF catheter ablations may become
TracyAdmin
ArrhythmiaAlliance
in
Arrhythmia Alliance
2 years ago
New 2 atrial fibrillation
New to atrial fibrillation. Heart catheter was great! No issues with echocardiogram. Have tried meds & cardio version so far scheduled for ablation in November soonest appointment
New to atrial fibrillation. Heart catheter was great! No issues with echocardiogram. Have tried meds & cardio version so far scheduled for ablation in November soonest appointment
FromNY
in
AF Association
2 years ago
BEFORE MD NO TO MASTECTOMY NOW RECOMMENDING
a very close friend had MBC HER2 + last 2 years ago with fractured 11 bones, she underwent radiation, IV chemo, ibrance, falsodex, xgeva she was a mess. Not knowing if she's going to survived and by a miracle from above she is on remission. Oncologist and surgeon onc. recommending to have her mastectomy
a very close friend had MBC HER2 + last 2 years ago with fractured 11 bones, she underwent radiation, IV chemo, ibrance, falsodex, xgeva she was a mess. Not knowing if she's going to survived and by a miracle from above she is on remission. Oncologist and surgeon onc. recommending to have her mastectomy
wmaker
in
SHARE Metastatic Breast Cancer
2 years ago
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