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Sznurkowski JJ. To Bev or Not to Bev during Ovarian Cancer Maintenance Therapy? Cancers (Basel). 2023 May 30;15(11):2980. doi: 10.3390/cancers15112980. PMID: 37296941; PMCID: PMC10251846. I feel people are often wondering why they can’t have Avastin or PARPs again and this article gives good scientific
Sznurkowski JJ. To Bev or Not to Bev during Ovarian Cancer Maintenance Therapy? Cancers (Basel). 2023 May 30;15(11):2980. doi: 10.3390/cancers15112980. PMID: 37296941; PMCID: PMC10251846. I feel people are often wondering why they can’t have Avastin or PARPs again and this article gives good scientific
delia2
in
My Ovacome
2 months ago
Hair, brows and eyelashes!
Hi All! I was diagnosed in Nov of 2022 with stage 4b lung cancer and later, in May of 2023 with ovarian cancer. Not a metastisis but a second primary cancer. I’ve been a runner my whole life - almost 60 - and have lived a pretty “clean” life. So…all of this was pretty crazy. I had to go off the targeted
Hi All! I was diagnosed in Nov of 2022 with stage 4b lung cancer and later, in May of 2023 with ovarian cancer. Not a metastisis but a second primary cancer. I’ve been a runner my whole life - almost 60 - and have lived a pretty “clean” life. So…all of this was pretty crazy. I had to go off the targeted
SuziSch
in
My Ovacome
2 months ago
Clear Cell Progression
Here is an update on my treatment for ovarian clear cell carcinoma, which I guess has now moved into Stage IV (started 1a). My taxol/carboplatin & Avastin chemotherapy treatment was discontinued after 3 infusions, as CT scan showed progression of tumors, and invasion into my liver. The doctors at UCSF
Here is an update on my treatment for ovarian clear cell carcinoma, which I guess has now moved into Stage IV (started 1a). My taxol/carboplatin & Avastin chemotherapy treatment was discontinued after 3 infusions, as CT scan showed progression of tumors, and invasion into my liver. The doctors at UCSF
Susi3
in
SHARE Ovarian Cancer Support
2 months ago
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Hernia from debulking
Greeting all. I had debulking in October. Now on avastin maintenance every 3 weeks. In late February I developed incisional hernia. By march it was huge. Dr stopped avastin and sent me to a surgeon. Surgeon said he could not safely do it. Told me to wear a wrap. Do you have experience with
Greeting all. I had debulking in October. Now on avastin maintenance every 3 weeks. In late February I developed incisional hernia. By march it was huge. Dr stopped avastin and sent me to a surgeon. Surgeon said he could not safely do it. Told me to wear a wrap. Do you have experience with
chocolatemilk44
in
My Ovacome
2 months ago
Carbo/Gem
Stage 3 primary peritoneal diagnosed October 2021. Previously: Carbo/taxol/avastin, carbo/caelyx, Niraparib. I have just had treatment 2 of cycle 1 of carbo/gem and I have a very itchy red rash between my neck and just below my breast. I am using e45 and taking anti histamine at present. Has
Stage 3 primary peritoneal diagnosed October 2021. Previously: Carbo/taxol/avastin, carbo/caelyx, Niraparib. I have just had treatment 2 of cycle 1 of carbo/gem and I have a very itchy red rash between my neck and just below my breast. I am using e45 and taking anti histamine at present. Has
NewtonEmma1900
in
My Ovacome
3 months ago
immunotherapy for OVCA
just wanted to provide an update on using immunotherapy, in my case Opdivo and Yervoy. Some background: 6 years after my initial diagnosis of OVCA, it was discovered via a raised CA125 and subsequent CT Scan, that I had developed 3 tumors on my Psoas muscle of my back. These were classified as ovarian
just wanted to provide an update on using immunotherapy, in my case Opdivo and Yervoy. Some background: 6 years after my initial diagnosis of OVCA, it was discovered via a raised CA125 and subsequent CT Scan, that I had developed 3 tumors on my Psoas muscle of my back. These were classified as ovarian
Leniko
in
My Ovacome
3 months ago
Avastin + Taxol + Carbo & eye problems
Hello ladies I am on the above drug combination for stage 4 clear cell cancer, & have been getting eye floaters whilst on treatment. Atm, I have just 1 huge floater thats driving me mad! Anyone else experience this? I had a head scan which came back normal. 4 days ago had round 5, so currently suffering
Hello ladies I am on the above drug combination for stage 4 clear cell cancer, & have been getting eye floaters whilst on treatment. Atm, I have just 1 huge floater thats driving me mad! Anyone else experience this? I had a head scan which came back normal. 4 days ago had round 5, so currently suffering
Kazzh
in
My Ovacome
3 months ago
Had enough
I’ve not posted before but have read a lot of your messages over the last two and a half years . I think you are all stronger , braver and more positive than I am / have been and am in awe of how you all cope so well . I had stage 4 ovarian ( high grade carcinosarcoma which is rare and doesn’t even
I’ve not posted before but have read a lot of your messages over the last two and a half years . I think you are all stronger , braver and more positive than I am / have been and am in awe of how you all cope so well . I had stage 4 ovarian ( high grade carcinosarcoma which is rare and doesn’t even
PWT1
in
My Ovacome
3 months ago
GemCarbo and picc line advice please!
Hi ladies, I've seen my oncologist today (well, one of his minions anyway) to find out about my treatment plan for my first recurrence. They've told me that I'll have gemcitabine with carboplatin this time round, so I was just wondering if anyone had any advice about this regime please? Even though carbotaxol
Hi ladies, I've seen my oncologist today (well, one of his minions anyway) to find out about my treatment plan for my first recurrence. They've told me that I'll have gemcitabine with carboplatin this time round, so I was just wondering if anyone had any advice about this regime please? Even though carbotaxol
Kjpip
in
My Ovacome
3 months ago
4th round chemo worse since surgery, started feeling sick & stomach pains 😫
Hello lovely ladies I had 3 rounds of chemo along with Avastin & although I had many side effects, I was fortunate that sickness/nausea wasn't one of them. 5 weeks post interval surgery, I had round 4 (no Avastin this round) but tummy issues (swinging from diarrhea to constipation constantly) and nausea
Hello lovely ladies I had 3 rounds of chemo along with Avastin & although I had many side effects, I was fortunate that sickness/nausea wasn't one of them. 5 weeks post interval surgery, I had round 4 (no Avastin this round) but tummy issues (swinging from diarrhea to constipation constantly) and nausea
Kazzh
in
My Ovacome
3 months ago
Recurrence :(
Hi ladies,I haven't posted on here for a while, but I've just found out that my cancer has come back. I was initially diagnosed in October 2021 with stage 4 HGSOC and had 6 rounds of carbotaxol with a total abdominal hysterectomy and omentectomy after the 3rd cycle. I then went on to Olaparib, initially
Hi ladies,I haven't posted on here for a while, but I've just found out that my cancer has come back. I was initially diagnosed in October 2021 with stage 4 HGSOC and had 6 rounds of carbotaxol with a total abdominal hysterectomy and omentectomy after the 3rd cycle. I then went on to Olaparib, initially
Kjpip
in
My Ovacome
3 months ago
Ascites coming back,primary peritoneal
Hi everyone. I was hoping I could ask for some information. For a bit of background, I am supporting my Mum (76) who was diagnosed with primary peritoneal cancer almost two years ago after ascites discovered and drain needed. Initially thought was stage 3c and as it had affected a lymph node it was then
Hi everyone. I was hoping I could ask for some information. For a bit of background, I am supporting my Mum (76) who was diagnosed with primary peritoneal cancer almost two years ago after ascites discovered and drain needed. Initially thought was stage 3c and as it had affected a lymph node it was then
SupportingmyMum
in
My Ovacome
3 months ago
conflict of opinion
So, following my last scan, the radiographer says progressive disease, MDT say stable. Any observations please or anyone had similar experience? Am on Avastin and Olaparib. My CA125 is slowly decreasing but I am still somewhat concerned by the differing opinions x
So, following my last scan, the radiographer says progressive disease, MDT say stable. Any observations please or anyone had similar experience? Am on Avastin and Olaparib. My CA125 is slowly decreasing but I am still somewhat concerned by the differing opinions x
Beaver54
in
My Ovacome
3 months ago
Vental hernia
Hello all. Had a cat scan yesterday. Report shows "huge" vental hernia. Dr.said largest he had seen. Has anyone else had this experience. They are planning surgery when I am off avastin 6 weeks.
Hello all. Had a cat scan yesterday. Report shows "huge" vental hernia. Dr.said largest he had seen. Has anyone else had this experience. They are planning surgery when I am off avastin 6 weeks.
chocolatemilk44
in
My Ovacome
4 months ago
carbo/gem
I was diagnosed high grade stage 3c peritoneal in Autumn 2021, I have had carbo/taxol/avastin, debulking surgery. Followed by avastin alone which did not work, then carbo/caelyx which worked very well. I have had just over a year on Niraparib but sadly it is no longer working. I am due to start
I was diagnosed high grade stage 3c peritoneal in Autumn 2021, I have had carbo/taxol/avastin, debulking surgery. Followed by avastin alone which did not work, then carbo/caelyx which worked very well. I have had just over a year on Niraparib but sadly it is no longer working. I am due to start
NewtonEmma1900
in
My Ovacome
4 months ago
Normal/not normal?
Just a question? I'm back worrying about little niggling aches in my pelvis, and I'm peeing again in the night about 3 times. My Ca-125 is still at 7. I'm also getting really strange brain fog where I feel really heavy headed! I've got 2 more avastin to go and I'm on lynpraza still. I haven't had a
Just a question? I'm back worrying about little niggling aches in my pelvis, and I'm peeing again in the night about 3 times. My Ca-125 is still at 7. I'm also getting really strange brain fog where I feel really heavy headed! I've got 2 more avastin to go and I'm on lynpraza still. I haven't had a
Newbery3
in
My Ovacome
5 months ago
Anybody self funding Bevacizumab/Avastin treatment?
This was mentioned by my oncologist as an option for second line treatment. I’ve heard that it’s super expensive, but in searching for info’ it seems that some are finding it less expensive than it was. Does anybody have any experience of self funding avastin?
This was mentioned by my oncologist as an option for second line treatment. I’ve heard that it’s super expensive, but in searching for info’ it seems that some are finding it less expensive than it was. Does anybody have any experience of self funding avastin?
Emmacrispins
in
My Ovacome
5 months ago
XB0002-101 trial ( jewel??)
Ladies, anyone with any info or on this trial? Have just attended appt for this and offered it. It would be the solo drug for me, not the other arms of the trial which includes avastin and nivolumab in conjunction with trial drug. Thanks
Ladies, anyone with any info or on this trial? Have just attended appt for this and offered it. It would be the solo drug for me, not the other arms of the trial which includes avastin and nivolumab in conjunction with trial drug. Thanks
Laz66
in
My Ovacome
5 months ago
Scan shows spreading despite chemo but surgery going ahead..confused 🤔
Hello alI I have stage 4 clear cell carcinoma, had a scan this week and got the results today. My gynae nurse said she could only tell me what was written on a scrap bit of paper which left me with more questions than answers (not impressed with this). I will call again next week but meantime wondered
Hello alI I have stage 4 clear cell carcinoma, had a scan this week and got the results today. My gynae nurse said she could only tell me what was written on a scrap bit of paper which left me with more questions than answers (not impressed with this). I will call again next week but meantime wondered
Kazzh
in
My Ovacome
5 months ago
Lowered CA125 and a nugget of hope 🙏
After 2 chemo sessions of carbo & taxol plus Avastin, my blood test level has reduced from 750 to 586 which is the first positive news I have received since diagnosis mid December 👏 it has given me a huge boost! My CT scan is Tuesday 20 Feb to see if my huge mass has shrunk enough for surgery, if so
After 2 chemo sessions of carbo & taxol plus Avastin, my blood test level has reduced from 750 to 586 which is the first positive news I have received since diagnosis mid December 👏 it has given me a huge boost! My CT scan is Tuesday 20 Feb to see if my huge mass has shrunk enough for surgery, if so
Kazzh
in
My Ovacome
5 months ago
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