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Non-Invasive Ventilation
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18 public communities
Non Hodgkin's Lymphoma Friends
1,772 members
Patient Empowerment Network (PEN) is honored to offer a peer-support community for those living with Non-Hodgkin's Lymphoma, their families and their loved ones. Connect with patients like you and share your experiences. Discuss treatment, recovery, diagnoses, and help other patients through their journey. PEN is a nonprofit (501(c)(3) Public Charity) based in the US that works to help you gain confidence and strength to get yourself the best care and most personalized treatment. We are here to help you stand up and advocate for yourself and become informed so that you can make the right decisions for you. Giving medical advice or promoting alternative treatment that is not proven by clinical trials and approved by regulatory agencies is prohibited. Your participation should be respectful, honest and in the spirit of supporting and learning from others
Cure Arthritis Community
2,788 members
We’re a US-based non-profit searching for a cure to help an estimated 50 million Americans and 300,000 children afflicted with various forms of arthritis. This arthritis foundation is focused entirely on research. The Arthritis National Research Foundation is committed to funding cutting-edge research and pushing the field of arthritis research forward!
It's Time Texas
98 members
It's Time Texas is a non-profit which focuses on providing Texans with the tools and support necessary to lead healthier lives and build healthier communities. If you would like to receive health coaching or are just curious about it, go to: livinghealthier.itstimetexas.org. Additionally, we are currently offering virtual fitness/wellness classes. Check them out at https://strongeraustin.org/activities/
HFI Connect - Hepatitis
959 members
We are a peer support community for people affected by hepatitis. It is run by The Hepatitis Foundation International (HFI), a non-profit organization established in 1994 working to eradicate chronic hepatitis for 500 million people globally. Here you can connect with others like you, ask questions, share your experiences and support one another. HFI also runs a community for people living with HepC: https://healthunlocked.com/hepatitisc-chat
L-W-O Community
163 members
Welcome to the L-W-O Community. We are a non-profit group set up in September 2013 for anyone who lives with lymphoedema or a lymphatic malformation. L-W-O is based in the UK, but we do have a global following. There is thought to be over 400,000 people in the UK living with lymphoedema. We are an established Community who provide non-medical tips and advice for our members. Lymphoedema takes a while to come to terms with, as you do, the more positive you can be about your condition then the easier it becomes to live with. Please remember that lymphoedema is manageable with the right treatment. L-W-O’s aim is: A community that brings people together for a common cause and shared interest in lymphoedema Promote self-care and positivity To encourage you to become your own advocate Share stories about the lives of those living with lymphoedema Share new research, campaigns and debates from the lymphoedema community Voice loud and clear - Lymphoedema exists, we exist
FABED
213 members
FABED was founded in 2005 by 2 families with a total of 5 Eosinophilic Children. We are a UK based non profit Charity who strive to raise funds to further the awareness, education and support for families and professionals who deal with Eosinophilic disorders on a daily basis. We feel it is essential for families living with these disorders to be able to access support and information to aid early diagnosis and the correct medical support.
Help with Healthcare Costs
151 members
Welcome to the conversation! NeedyMeds is a national non-profit organization that maintains a website of free information on programs that help people who can't afford medications and healthcare costs in the United States. More than 1.3 million patients, family members, healthcare professionals, social workers and patient advocates use the NeedyMeds website each year. We regularly update data on over 9,000 assistance programs, 15,000 free/low-cost/sliding scale clinics and nearly 1,500 drug discount coupons. We also publish information about resources for specific diseases.
Cancer Thrivers
358 members
This community, Cancer Thrivers along with our non-profit Cancer ABCs (www.CancerABCs.org) facilitates tangible improvements in the lives of people who have been affected by cancer(s) by providing them and their loved ones the necessary tools, education, support, and advocacy so that they can become responsible for and take an active role in their own medical care, wellbeing, and their life. Our goal is to teach and support people diagnosed with cancer, including those with multiple and rare cancers, to not just be a cancer survivor, but to become a CANCER THRIVER.
Sensitive Issues for Men
3,008 members
Men's Health Network (MHN) is a non-profit organization whose mission is to reach men, boys, and their families where they live, work, play, and pray with health awareness and disease prevention messages and more. This community has been set up to have a dialogue about the different sensitive health issues that men struggle with in their everyday lives. Some of topics we will be discussing include: Prostate Cancer, Erectile Dysfunction (ED), Incontinence, Peyronie's Disease, Testicular Cancer, Low Testosterone, Hemorrhoids, and more. This community is run by Sean M.
HepCBC Hepatitis C Education & Prevention Society
208 members
Welcome to the online support forum of HepCBC Hepatitis C Education and Prevention Society! We are based in British Columbia, Canada, but our outreach efforts are open to anyone in the world struggling with this disease. We've been incorporated since 1996 and a registered Canadian charity since 2001. Our MISSION: HepCBC is a non-profit organization run by and for people infected and affected by hepatitis C. Our mission is to provide education, prevention and support to those living with HCV. Our POSITIVE PHILOSOPHY is: Although we are constantly dealing with the challenge of a relentless disease, and people who are hurting, HepCBC always tries to improve people’s lives, and have a positive attitude: All services are provided for free. Preserving client confidentiality is a key goal. We understand HCV stigma and we respect that your HCV status, health, and contact information must only be disclosed by you, when you want to do it, to whom you want to disclose only, and with no outside pressure. We strive to be respectful and non-judgemental while exploring differences in experiences and insights. Our concern is helping as many HCV+ people as possible, not dwelling on how they contracted the disease. We provide the most current research results about testing and treatment options. We want you to be able to make informed decisions according to your own unique circumstances. HepCBC will strive to appoint volunteers with excellent knowledge and experience to manage this online forum. For more information, please visit our website!
Wessex Cancer Trust
70 members
Welcome to Wessex Cancer Trust online community. Here you can openly talk to other people affected by cancer – whether you are going through your own cancer journey or supporting a family member or friend. We will support you through the highs and lows, help you prepare for surgery or treatment, and give you the confidence to talk to your loved ones about cancer. We can empower you to feel strong enough to make your own choices, whether you are moving on from cancer or making difficult decisions about a terminal diagnosis. We offer practical, emotional and physical support at a time when nothing seems to be in your control. All of our Support Centres will welcome you into a calm and non-clinical space in your local community, somewhere familiar and safe.
Living with Lyme Disease UK
233 members
Welcome to LWLD community! :) Here you can share your experiences about living with Lyme Disease in a non-judgemental friendly environment. The philosophy of the group to treat one another with respect & understanding focusing on bringing the Lyme community together to support each other. We aim to post relevant information or signpost members to other organisations that may give the appropriate advice. We are passionate about raising awareness & share relevant campaigns to help spread the word. Please can we kindly ask you adhere to the guidelines to make the community a supportive place for one & all. Any questions pleases contact our Volunteer Admin or alternatively email lwlymedisease@gmail.com. IMPORTANT: Living with Lyme Disease UK is NOT associated with any UK charities for Lyme disease and are an independent group for those living with Lyme Disease.
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