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update from Ruffabug (End of life plan)
A big thank you to those who kindly replied to my post of a couple weeks ago entitled HELP PLEASE TO REDUCE DOSE OF
NEUPRO
.To remind you I have terminal cancer with roughly six to nine months life expectancy.
A big thank you to those who kindly replied to my post of a couple weeks ago entitled HELP PLEASE TO REDUCE DOSE OF
NEUPRO
.To remind you I have terminal cancer with roughly six to nine months life expectancy.
Ruffabug
in
Restless Legs Syndrome
4 months ago
Help please to reduce dose of Neupro
My legs were really bad last year, and because of my terminal diagnosis, the neurologist raised my dose by putting me on the 4mg
Neupro
patch. I had been on Ropinerole 4mg. I’ve had more augmentation and since then I have resorted to taking 1.5 mg Ropinerole at bedtime plus the patch.
My legs were really bad last year, and because of my terminal diagnosis, the neurologist raised my dose by putting me on the 4mg
Neupro
patch. I had been on Ropinerole 4mg. I’ve had more augmentation and since then I have resorted to taking 1.5 mg Ropinerole at bedtime plus the patch.
Ruffabug
in
Restless Legs Syndrome
5 months ago
Update on My Neupro Withdrawal
Last night, the 5th without the
Neupro
patch was pretty awful. Every time I fell asleep, a pain would attack both thighs waking me and sending me walking until the attack subsided. The episodes lasted between 45 minutes and an hour and a half.
Last night, the 5th without the
Neupro
patch was pretty awful. Every time I fell asleep, a pain would attack both thighs waking me and sending me walking until the attack subsided. The episodes lasted between 45 minutes and an hour and a half.
RiversW
in
Restless Legs Syndrome
6 months ago
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Buprenorphine and constipation.
I don’t need it yet, but will do when the augmentation from the
Neupro
patches gets bad. As I am terminally ill, he is not concerned about what I take, he just wants to keep me comfortable. I am in UK and he says if my GP won’t prescribe it then he will write a script himself for me.
I don’t need it yet, but will do when the augmentation from the
Neupro
patches gets bad. As I am terminally ill, he is not concerned about what I take, he just wants to keep me comfortable. I am in UK and he says if my GP won’t prescribe it then he will write a script himself for me.
Ruffabug
in
Restless Legs Syndrome
4 months ago
restless legs in Turkey
Thank you for any advice on the
Neupro
you might have.
Thank you for any advice on the
Neupro
you might have.
Jrskyhook32
in
Restless Legs Syndrome
8 months ago
Seeking input: taking Gabapentin 600mg nightly, RLS symptoms persist
I was on
Neupro
for several years and tapered off about 5 months ago. Since then I’ve just been on Gabapentin 300mg x 2 nightly. My RLS symptoms persist though they haven’t been worse than they were when I was experiencing augmentation from
Neupro
.
I was on
Neupro
for several years and tapered off about 5 months ago. Since then I’ve just been on Gabapentin 300mg x 2 nightly. My RLS symptoms persist though they haven’t been worse than they were when I was experiencing augmentation from
Neupro
.
Discopage
in
Restless Legs Syndrome
9 months ago
Last step of Neupro withdrawal
I am in the final stage of withdrawing from
Neupro
. For the last week I have been applying a 1/2 mg patch a night. My symptoms have been mild to moderate. A couple of nights with the classic jumpy sensation and a couple of nights with aches and burning.
I am in the final stage of withdrawing from
Neupro
. For the last week I have been applying a 1/2 mg patch a night. My symptoms have been mild to moderate. A couple of nights with the classic jumpy sensation and a couple of nights with aches and burning.
RiversW
in
Restless Legs Syndrome
7 months ago
is Gabapentin helping me?
So I am now on a 4 mg
Neupro
patch plus 2 mg Ropinerole. My neurologist is letting me increase the dose as the augmentation kicks in as I only have a few months left to live. My question is do I really need to be also taking the 1200 mg of Gabapentin as well?
So I am now on a 4 mg
Neupro
patch plus 2 mg Ropinerole. My neurologist is letting me increase the dose as the augmentation kicks in as I only have a few months left to live. My question is do I really need to be also taking the 1200 mg of Gabapentin as well?
Ruffabug
in
Restless Legs Syndrome
3 months ago
Neupro Patch Weaning
I’ve read most of the forum’s input regarding
Neupro
Patches and relayed the information to the physician. He has decided to optimize the Gabapentin dose and discontinue the patch. A bit of history…….. the patch was started 12/19/23…10 days ago.
I’ve read most of the forum’s input regarding
Neupro
Patches and relayed the information to the physician. He has decided to optimize the Gabapentin dose and discontinue the patch. A bit of history…….. the patch was started 12/19/23…10 days ago.
Busunsc713
in
Restless Legs Syndrome
8 months ago
Trying to determine the right pace for tapering use of Neupro
This time
Neupro
. The first attempt was Mirapex. SueJohnson suggested I switch to different medication, but an appointment with my neurologist here in Brasil is not so easy to get so I would like to continue to decrease my intake of
Neupro
until I can discuss switching meds with my neurologist.
This time
Neupro
. The first attempt was Mirapex. SueJohnson suggested I switch to different medication, but an appointment with my neurologist here in Brasil is not so easy to get so I would like to continue to decrease my intake of
Neupro
until I can discuss switching meds with my neurologist.
RiversW
in
Restless Legs Syndrome
7 months ago
Another Withdrawing from Dopamine Agonist Question
I am at day 4 without the
Neupro
patch and RLS symptoms have made for a bumpy ride, but so far nothing I could not tolerate. I am not getting more than 3 hours of solid sleep a night and when I wake I am often in a bit of discomfort.
I am at day 4 without the
Neupro
patch and RLS symptoms have made for a bumpy ride, but so far nothing I could not tolerate. I am not getting more than 3 hours of solid sleep a night and when I wake I am often in a bit of discomfort.
RiversW
in
Restless Legs Syndrome
6 months ago
Dealing with painful dopamine agonist withdrawal: advice needed
Each time I reduce my dose of
Neupro
, my condition worsens over 7-10 days to culminate into pure medieval torture -what I call "the peak". It can last about a week before cooling down.
Each time I reduce my dose of
Neupro
, my condition worsens over 7-10 days to culminate into pure medieval torture -what I call "the peak". It can last about a week before cooling down.
Mikatrap
in
Restless Legs Syndrome
5 months ago
ropinirole for PD and melanoma risk
My Neuro suggested replacing
neupro
with ropinirole to help reduce dyskinesia. But reading about ropinirole side effects concerned me. Especially the warning about increased melanoma risk.
My Neuro suggested replacing
neupro
with ropinirole to help reduce dyskinesia. But reading about ropinirole side effects concerned me. Especially the warning about increased melanoma risk.
craigwharris
in
Cure Parkinson's
8 months ago
Iron levels checked
Have tried every crazy idea and used requip, mirapex, and
neupro
and gabapentin with no relief. Take no meds now.
Have tried every crazy idea and used requip, mirapex, and
neupro
and gabapentin with no relief. Take no meds now.
lanie136
in
Restless Legs Syndrome
8 months ago
Rotigotine/Neupro patches causing deep drowsiness after food
I've recently been ramping up to my current 8mg of
neupro
. However now I'm noticing that an hour after any significant food I get a deep sleepiness to the point I'm almost asleep on the spot. Any one else get this? Is this just temporary?
I've recently been ramping up to my current 8mg of
neupro
. However now I'm noticing that an hour after any significant food I get a deep sleepiness to the point I'm almost asleep on the spot. Any one else get this? Is this just temporary?
Jefferami
in
Cure Parkinson's
9 months ago
Uncontrolled RLS
Has anyone ever successfully weaned off a
Neupro
Patch?
Has anyone ever successfully weaned off a
Neupro
Patch?
Busunsc713
in
Restless Legs Syndrome
8 months ago
Insomnia caused by neupro/rotigotine
Been taking
neupro
patches up to 8mg for 8 weeks now and from day one had significant issues with sleep. I normally would fall asleep and wake up 4 to 6 hours later. Now it's often just an hour later and im fully awake. Anyone else got this from their meds?
Been taking
neupro
patches up to 8mg for 8 weeks now and from day one had significant issues with sleep. I normally would fall asleep and wake up 4 to 6 hours later. Now it's often just an hour later and im fully awake. Anyone else got this from their meds?
Jefferami
in
Cure Parkinson's
8 months ago
Levodopa just for exercise?
I'm on
neupro
which has helped live a regular daily life but still very dystonic and stiff for full on exercise and wondering if I could get a temporary boost to get through full on exercise?
I'm on
neupro
which has helped live a regular daily life but still very dystonic and stiff for full on exercise and wondering if I could get a temporary boost to get through full on exercise?
Jefferami
in
Cure Parkinson's
9 months ago
Gabapentin or Pregabalin?
I put weight on before I started taking Gabapentin ( I was on Ropinirole for a while, augmented badly on it, then
Neupro
(Rotigotine) patch which worked for years then ‘stopped’ working, tried Pramipexole but was really scared about augmenting again though I didn’t but the worry was enough, so tried
I put weight on before I started taking Gabapentin ( I was on Ropinirole for a while, augmented badly on it, then
Neupro
(Rotigotine) patch which worked for years then ‘stopped’ working, tried Pramipexole but was really scared about augmenting again though I didn’t but the worry was enough, so tried
HelenJS
in
Restless Legs Syndrome
1 month ago
Had enough
I'm on the mac dose now of the
Neupro
patch. I've tried oils, creams, vitamins. Only thing that seems to help is a electric massage wrap.
I'm on the mac dose now of the
Neupro
patch. I've tried oils, creams, vitamins. Only thing that seems to help is a electric massage wrap.
Labradormummy
in
Restless Legs Syndrome
10 months ago
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