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Yellow Card Scheme Reporting
Pramipexole, the
Neupro
patch or other dopamine agonists, PLEASE REPORT it via https://yellowcard.mhra.gov.uk/ Unless and until the authorities and medical profession see the scale of suffering, these drugs will keep being prescribed and we will not get the help we need during withdrawal.
Pramipexole, the
Neupro
patch or other dopamine agonists, PLEASE REPORT it via https://yellowcard.mhra.gov.uk/ Unless and until the authorities and medical profession see the scale of suffering, these drugs will keep being prescribed and we will not get the help we need during withdrawal.
Joolsg
in
Restless Legs Syndrome
2 years ago
RLS & Severe Knee Pain
During lockdown I augmented on the
Neupro
Patch and was suicidal. I knew I had to get off the patch as I had already augmented on Pramipexole. This I did by cutting the patches until I was taking less & less. It was as I reduced the patch that the pain in my knees started.
During lockdown I augmented on the
Neupro
Patch and was suicidal. I knew I had to get off the patch as I had already augmented on Pramipexole. This I did by cutting the patches until I was taking less & less. It was as I reduced the patch that the pain in my knees started.
Noddedoffagain
in
Restless Legs Syndrome
2 years ago
Iron Infusion
After years of RLS, several years of struggling on ropinerole, and the last 2 years on
Neupro
patches & Topiramate. Yesterday I was given my first Iron Infusion as a treatment option for RLS.
After years of RLS, several years of struggling on ropinerole, and the last 2 years on
Neupro
patches & Topiramate. Yesterday I was given my first Iron Infusion as a treatment option for RLS.
nosleep1969
in
Restless Legs Syndrome
2 years ago
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Returning to Gabapentin
I have recently been in touch with Professor Walker’s clinic because I was considering a private consultation, however, after reading other’s experiences it seems, over the past years, I have tried pretty much all that’s available including, initially, the dreaded
Neupro
patches.
I have recently been in touch with Professor Walker’s clinic because I was considering a private consultation, however, after reading other’s experiences it seems, over the past years, I have tried pretty much all that’s available including, initially, the dreaded
Neupro
patches.
Mulberry100
in
Restless Legs Syndrome
2 years ago
Lyrica ocular side effects and more
I was off the dopamine agonist for two years before starting
Neupro
patch a few months ago. I did take low dose Synamet (Carbodopa/Levodopa} with some limited help. Methadone (15mg nightly) helps the intensity of symptoms but not some much the frequency.
I was off the dopamine agonist for two years before starting
Neupro
patch a few months ago. I did take low dose Synamet (Carbodopa/Levodopa} with some limited help. Methadone (15mg nightly) helps the intensity of symptoms but not some much the frequency.
WelbyB
in
Restless Legs Syndrome
2 years ago
How to cut Neupro 1mg patch for gradual tapering?
Right now I take
Neupro
1mg and 400mg Gabapentin, and my RLS symptoms are still an issue at night and often times they start up in the afternoon (legs only). I believe I'm experiencing augmentation cause I never had daytime symptoms till recently. Been on
Neupro
1mg for 3.5 years.
Right now I take
Neupro
1mg and 400mg Gabapentin, and my RLS symptoms are still an issue at night and often times they start up in the afternoon (legs only). I believe I'm experiencing augmentation cause I never had daytime symptoms till recently. Been on
Neupro
1mg for 3.5 years.
Discopage
in
Restless Legs Syndrome
2 years ago
pramipexole and nasal congestion.
I’m on Pramipexole (after being on
Neupro
patch for ten years though I tried many medications to even get there) .
I’m on Pramipexole (after being on
Neupro
patch for ten years though I tried many medications to even get there) .
HelenJS
in
Restless Legs Syndrome
2 years ago
Increase Neupro dosage or take Horizant or Requip?
My neurologist recommended I start taking
Neupro
2mg patches or remain on
Neupro
1mg and also take Horizant, a long active form of Gabapentin. I’m concerned about taking a bigger dose of
Neupro
.
My neurologist recommended I start taking
Neupro
2mg patches or remain on
Neupro
1mg and also take Horizant, a long active form of Gabapentin. I’m concerned about taking a bigger dose of
Neupro
.
Discopage
in
Restless Legs Syndrome
2 years ago
another new trial for me neupro 4mg /24 h other name known as rotigotine
it only seems to make freezing worse and i can not say it has helped me in any way at all ANY ONE KNOW WHY
it only seems to make freezing worse and i can not say it has helped me in any way at all ANY ONE KNOW WHY
elsidwarrior
in
Cure Parkinson's
2 years ago
Sleep issues
Recently Neuro started me on
Neupro
patch (2 mg/24 hrs) n I feel tht my sleep has deteriorated. Melatonin doesn’t work on me too. Any suggestions? I really need my shut eye.. thank you for your help!
Recently Neuro started me on
Neupro
patch (2 mg/24 hrs) n I feel tht my sleep has deteriorated. Melatonin doesn’t work on me too. Any suggestions? I really need my shut eye.. thank you for your help!
Divii
in
Cure Parkinson's
2 years ago
Managing RLS through hip surgery
I’ve recently reduced my
Neupro
patch from 3mg to 1mg, and plan to slowly reduce that with cutting it by 1/4mg but need to time that after an iron infusion which I need about every three months. Also I think surgery should be timed a few weeks after an infusion when my ferritin level is up.
I’ve recently reduced my
Neupro
patch from 3mg to 1mg, and plan to slowly reduce that with cutting it by 1/4mg but need to time that after an iron infusion which I need about every three months. Also I think surgery should be timed a few weeks after an infusion when my ferritin level is up.
Deesee
in
Restless Legs Syndrome
2 years ago
Dopamine Patch versus tablets your experience?
I was diagnosed with PD 6 years ago and my Neurologist has suggested a
Neupro
patch 2mg/24h because I reported no real on and off periods on the Madopar tablets and no real difference in my left side tremor.
I was diagnosed with PD 6 years ago and my Neurologist has suggested a
Neupro
patch 2mg/24h because I reported no real on and off periods on the Madopar tablets and no real difference in my left side tremor.
Coling
in
Cure Parkinson's
2 years ago
Ropinorole and Neupro
I’ve been on Ropinorole 3mg and
neupro
3 mg patch combination for more than 15 years and have lead a normal life I tried getting off them about 2 years ago and almost went crazy I had to go back the positive thing about going through that ordeal is I went from a 5 mg dose to a 3 mg patch is there an
I’ve been on Ropinorole 3mg and
neupro
3 mg patch combination for more than 15 years and have lead a normal life I tried getting off them about 2 years ago and almost went crazy I had to go back the positive thing about going through that ordeal is I went from a 5 mg dose to a 3 mg patch is there an
Bat3353
in
Restless Legs Syndrome
2 years ago
Finally, I have found relief
I continue to use a 2mg transdermal
neupro
patch, Not all physicians are licensed to prescribe this medication because it is controlled. I hope this information helps someone else.
I continue to use a 2mg transdermal
neupro
patch, Not all physicians are licensed to prescribe this medication because it is controlled. I hope this information helps someone else.
mjc9906
in
Restless Legs Syndrome
2 years ago
Monitoring PLM episodes
I have RLS and PLMD and use a
Neupro
patch and gabapentin at bedtime to control symptoms. Curious how folks are monitoring the number of their nightly PLM episodes. This would be of great help when adjusting nightly gabapentin doses. Thank you! Lunadog
I have RLS and PLMD and use a
Neupro
patch and gabapentin at bedtime to control symptoms. Curious how folks are monitoring the number of their nightly PLM episodes. This would be of great help when adjusting nightly gabapentin doses. Thank you! Lunadog
LunaDog31
in
Restless Legs Syndrome
3 years ago
Living with RLS
one day while watching tv I see a commercial and it said do yo suffer from this it might be RLS I went to a neurologist and bingo I’ll never forget I drank a primopixole and my leg stopped moving after awhile I augmented and switched to ropinorole at night for more than 2.0 plus years I added the
neupro
one day while watching tv I see a commercial and it said do yo suffer from this it might be RLS I went to a neurologist and bingo I’ll never forget I drank a primopixole and my leg stopped moving after awhile I augmented and switched to ropinorole at night for more than 2.0 plus years I added the
neupro
Bat3353
in
Restless Legs Syndrome
2 years ago
Any scientific papers on DAWS (Dopamine Agonist Withdrawal Syndrome) and/or withdrawing off or tapering down dopamine agonists?
I had an appointment with my neurologist last week and finally convinced her that I should try reducing my Rotigotine (
Neupro
patch) medication (currently at 4mg). However, I am not happy with her suggestion/recommendation that I just drop down to 3mg patches.
I had an appointment with my neurologist last week and finally convinced her that I should try reducing my Rotigotine (
Neupro
patch) medication (currently at 4mg). However, I am not happy with her suggestion/recommendation that I just drop down to 3mg patches.
YodaDog
in
Restless Legs Syndrome
2 years ago
Is an opiate the way to go?
I currently take 100mg Pregabalin and use 2mg
Neupro
patch (Rotigotine) and these are to control my RLS.
I currently take 100mg Pregabalin and use 2mg
Neupro
patch (Rotigotine) and these are to control my RLS.
ELECTRONTRAV
in
Restless Legs Syndrome
3 years ago
Neupro patch tips
Hi everyone i recently posted about the
neupro
patches and i was able to get help getting them, now i just want to see if anyone using them or used them previously could give me some tips. like where to put them tips on keeping them on for 24hrs without them coming off. best areas to put them best time
Hi everyone i recently posted about the
neupro
patches and i was able to get help getting them, now i just want to see if anyone using them or used them previously could give me some tips. like where to put them tips on keeping them on for 24hrs without them coming off. best areas to put them best time
RS313
in
Cure Parkinson's
3 years ago
Neupro patch
Hello friends my neurologist wants to put me on the
neupro
patch but my insurance cost is very expensive does anyone out there have any information on where I could get some assistance with the cost of the
neupro
patches.ty for any help
Hello friends my neurologist wants to put me on the
neupro
patch but my insurance cost is very expensive does anyone out there have any information on where I could get some assistance with the cost of the
neupro
patches.ty for any help
RS313
in
Cure Parkinson's
3 years ago
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