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Covid Anti-body Tests through LLS
The Leukemia and Lymphoma Society has set up a registry and is offering a testing program to patients. Sign up through the LLS COVID -19 Patient Registry at: https://www.ciitizen.com/lls/
The Leukemia and Lymphoma Society has set up a registry and is offering a testing program to patients. Sign up through the LLS COVID -19 Patient Registry at: https://www.ciitizen.com/lls/
michaeledward
in
CLL Support
3 years ago
Tocilizumab
I am seeing a new rheumatologist following an urgent referral from the hospital tomorrow, Thursday 16th, afternoon. It has been suggested by the hospital registrar, he rang before 9.00am on Monday to see how I was after my emergency visit last Thursday and increased to 60mgs from 5mgs dose of pred.,
I am seeing a new rheumatologist following an urgent referral from the hospital tomorrow, Thursday 16th, afternoon. It has been suggested by the hospital registrar, he rang before 9.00am on Monday to see how I was after my emergency visit last Thursday and increased to 60mgs from 5mgs dose of pred.,
MavisEllen
in
PMRGCAuk
3 years ago
Tocilizumab & Covid vaccine
I seem to remember that I delayed my Toc jab when I had my Phizer jab. Is that correct? If so, by a day or a week? Getting booster today when I’d normally inject Toc.
I seem to remember that I delayed my Toc jab when I had my Phizer jab. Is that correct? If so, by a day or a week? Getting booster today when I’d normally inject Toc.
Bachblues
in
PMRGCAuk
3 years ago
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Pfizer buys a company
They bought Trillium. I mention this because this company has a few blood cancer treatments in its pipeline including one that targets TP-53 mutation but for AML and NOT CLL, at least not yet. Still, with their expertise in the realm of treatments for blood cancers and now with the added resources of
They bought Trillium. I mention this because this company has a few blood cancer treatments in its pipeline including one that targets TP-53 mutation but for AML and NOT CLL, at least not yet. Still, with their expertise in the realm of treatments for blood cancers and now with the added resources of
Luap001
in
CLL Support
3 years ago
Senolytic combo Dasatinib + Quercetin
Nalakrats has in two major posts shared fascinating insights on senescence and senolytics, drugs that selectively clear senescent cells. I am most grateful to him for this, which set me off on a journey the results of which I sum up in this post. Senescence has also recently been well reported on by
Nalakrats has in two major posts shared fascinating insights on senescence and senolytics, drugs that selectively clear senescent cells. I am most grateful to him for this, which set me off on a journey the results of which I sum up in this post. Senescence has also recently been well reported on by
Purple-Bike
in
Advanced Prostate Cancer
3 years ago
CLL Transform to Lymphoma?
My ophthalmologist specialist is pretty sure I have ocular lymphoma. I will have a biopsy on August 25th. Does anyone have background on CLL combining with lymphoma?
My ophthalmologist specialist is pretty sure I have ocular lymphoma. I will have a biopsy on August 25th. Does anyone have background on CLL combining with lymphoma?
cll2013
in
CLL Support
3 years ago
CAR-T post 9 months
Hi all Just the latest update on me - I’m still MRD negative 9 months after my CAR-T for aggressive CLL at the Peter Mac in Melbourne. Sadly the trial has now closed its CLL arm so only 9 of us in the world got this treatment for CLL. Here’s a more detailed update shared with the Leukaemia Foundation
Hi all Just the latest update on me - I’m still MRD negative 9 months after my CAR-T for aggressive CLL at the Peter Mac in Melbourne. Sadly the trial has now closed its CLL arm so only 9 of us in the world got this treatment for CLL. Here’s a more detailed update shared with the Leukaemia Foundation
Debinoz
in
CLL Support
3 years ago
Lactase Dehydogenase level high!
I started seeing an MPN specialist on July 1. He tested for lactase dehydrogenase and in was 242. I just had it repeated and it is now 327. My platelets rose from 648 to 725, wbc went from 13 to 16. HCT went down a little bit from 48.3 to 47.5 which I think both are high for female. I am really bothered
I started seeing an MPN specialist on July 1. He tested for lactase dehydrogenase and in was 242. I just had it repeated and it is now 327. My platelets rose from 648 to 725, wbc went from 13 to 16. HCT went down a little bit from 48.3 to 47.5 which I think both are high for female. I am really bothered
Wewo01
in
MPN Voice
3 years ago
31 year old facing AML fight.
Evening everyone. In the last few days ive had to come to terms that i will be battling AML. But sadly there isnt much information out there regarding its effects on younger people. It seems to be all info regarding 65+ years old. No treatment has been started yet, still waiting on results coming back
Evening everyone. In the last few days ive had to come to terms that i will be battling AML. But sadly there isnt much information out there regarding its effects on younger people. It seems to be all info regarding 65+ years old. No treatment has been started yet, still waiting on results coming back
NathaN89
in
Leukaemia Support
3 years ago
How Good is the Level of Scientific Evidence Underlying the National Comprehensive Cancer Network Clinical Practice (NCCN) CLL Guidelines?
Our community support team take pride in maintaining reliable content in this community. When your life depends on it, you need confidence that what you are reading will give you the information you need. That way you can intelligently question your medical support team for reassurance that they are
Our community support team take pride in maintaining reliable content in this community. When your life depends on it, you need confidence that what you are reading will give you the information you need. That way you can intelligently question your medical support team for reassurance that they are
AussieNeil
Partner
in
CLL Support
3 years ago
Advice dealing with chronic GVHD in the eyes and skin while trying to withdraw steroids
Hello everyone! I had a stem cell transplant last year and I am dealing with very uncomfortable Graft Versus Host Disease in my eyes and skin. The one in the eyes is the worse! I need to have drops every 10mins. Punctal ducts were helpful for three weeks only. I am waiting for some stem cell eye drops
Hello everyone! I had a stem cell transplant last year and I am dealing with very uncomfortable Graft Versus Host Disease in my eyes and skin. The one in the eyes is the worse! I need to have drops every 10mins. Punctal ducts were helpful for three weeks only. I am waiting for some stem cell eye drops
lifeafterSCT
in
MPN Voice
3 years ago
CLL Diet
My Oncologist told me diet has no effect on CLL. Does anyone have input as to a good diet while undergoing treatment now that it is soon to start for me? Even though we need Lipids, cutting back on them may help. Anybody heard that too? I gained too much weight during 2020 pandemic, and feel that will
My Oncologist told me diet has no effect on CLL. Does anyone have input as to a good diet while undergoing treatment now that it is soon to start for me? Even though we need Lipids, cutting back on them may help. Anybody heard that too? I gained too much weight during 2020 pandemic, and feel that will
Hugo51
in
CLL Support
3 years ago
Webinar 11th August 12.30pm, CAR - T therapy update
Please join the expert panel as they update on progress with this revolutionary new therapy. Register here https://us02web.zoom.us/webinar/register/WN_4bIwhnFYQNeKpvxmGhRrsQ This webinar will update on advances in chimeric antigen receptor t-cell therapy, (CAR-T therapy). The expert panel will explain
Please join the expert panel as they update on progress with this revolutionary new therapy. Register here https://us02web.zoom.us/webinar/register/WN_4bIwhnFYQNeKpvxmGhRrsQ This webinar will update on advances in chimeric antigen receptor t-cell therapy, (CAR-T therapy). The expert panel will explain
HAIRBEAR_UK
in
Leukaemia Support
3 years ago
Clarifying the problem of T-cell 'exhaustion'
Researchers in the Perelman School of Medicine at the University of Pennsylvania have illuminated an important limitation of the immune system in prolonged battles against cancers or viruses: T cells, which are among the most powerful weapons in the immune systems of humans and other vertebrates, remain
Researchers in the Perelman School of Medicine at the University of Pennsylvania have illuminated an important limitation of the immune system in prolonged battles against cancers or viruses: T cells, which are among the most powerful weapons in the immune systems of humans and other vertebrates, remain
2greys
in
Lung Conditions Community Forum
3 years ago
Share your story for our Spot Leukaemia campaign in September for Blood Cancer Awareness Month.
We’re looking for someone who was diagnosed with a chronic leukaemia at age 65+ who would like to share your story for our Spot Leukaemia campaign, raising awareness of the symptoms of leukaemia. If you wish to share your story with us for online, video, podcast or the press to help raise awareness.
We’re looking for someone who was diagnosed with a chronic leukaemia at age 65+ who would like to share your story for our Spot Leukaemia campaign, raising awareness of the symptoms of leukaemia. If you wish to share your story with us for online, video, podcast or the press to help raise awareness.
HAIRBEAR_UK
in
Leukaemia Support
3 years ago
Webinar 3.30pm Thursday 29th July - Use of blood products for the care of leukaemia patients
The aim of this webinar is to discuss the importance of blood product transfusions and infusions during the care of leukaemia patients. You can register here: https://us02web.zoom.us/webinar/register/WN_ytvdsGgJTP-v9ZTiOKYIyQ The webinar will explain what blood products are, how, when and why they
The aim of this webinar is to discuss the importance of blood product transfusions and infusions during the care of leukaemia patients. You can register here: https://us02web.zoom.us/webinar/register/WN_ytvdsGgJTP-v9ZTiOKYIyQ The webinar will explain what blood products are, how, when and why they
HAIRBEAR_UK
Founder Admin
in
CLL Support
3 years ago
Webinar 3.30pm Thursday 29th July - Use of blood products for the care of leukaemia patients
The aim of this webinar is to discuss the importance of blood product transfusions and infusions during the care of leukaemia patients. You can register here: https://us02web.zoom.us/webinar/register/WN_ytvdsGgJTP-v9ZTiOKYIyQ The webinar will explain what blood products are, how, when and why they are
The aim of this webinar is to discuss the importance of blood product transfusions and infusions during the care of leukaemia patients. You can register here: https://us02web.zoom.us/webinar/register/WN_ytvdsGgJTP-v9ZTiOKYIyQ The webinar will explain what blood products are, how, when and why they are
HAIRBEAR_UK
in
Leukaemia Support
3 years ago
Skin barnacles ??
CLL and Bladder cancer , past used Ibrutinib, Acalabrutinib and Gyzava … all worked in controlling CLL … BCG infusions for Bladder cancer working , I think…. I have developed what Dermatologist calls .. skin barnacles … she says it from past sun exposure… Anyone have this problem ?? I suspect it
CLL and Bladder cancer , past used Ibrutinib, Acalabrutinib and Gyzava … all worked in controlling CLL … BCG infusions for Bladder cancer working , I think…. I have developed what Dermatologist calls .. skin barnacles … she says it from past sun exposure… Anyone have this problem ?? I suspect it
fish61
in
CLL Support
3 years ago
Myelofibrosis Treatment Option
Just saw this Webinar announced. Thought it might be of interest to some. Note that it is sponsored by a pharmaceutical company, so will likely focus on something they have in development. Welcome to this live expert webinar,
sponsored by Bristol-Myers Squibb.
Topics of discussion at this
Just saw this Webinar announced. Thought it might be of interest to some. Note that it is sponsored by a pharmaceutical company, so will likely focus on something they have in development. Welcome to this live expert webinar,
sponsored by Bristol-Myers Squibb.
Topics of discussion at this
hunter5582
in
MPN Voice
3 years ago
Pelabresib May Represent Optimal Partner for JAK Inhibition in Myelofibrosis
The benefits yielded with the BET inhibitor pelabresib (formerly CPI-0610) in patients with myelofibrosis are multifold, and the agent’s potential to improve disease biology and overcome shortcomings faced with JAK inhibitors make it a strong partner for combinations and a stand-out option vs other agents
The benefits yielded with the BET inhibitor pelabresib (formerly CPI-0610) in patients with myelofibrosis are multifold, and the agent’s potential to improve disease biology and overcome shortcomings faced with JAK inhibitors make it a strong partner for combinations and a stand-out option vs other agents
Manouche
in
MPN Voice
3 years ago
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