Experiences with

Malignant brain tumour

My son had a craniotomy following a TBI in December 2021, he subsequently had a cranioplasty using his bone flap in May 2022. He usually isn't aware of his scar but in the last week or so has had a tingling sensation in his scar and headaches. I'll be mentioning this at his appointment in early March

I've had the same now for about 15 years. I've been referred to 4 consultants over that time and nothing clears it completely. Antibiotics ease it for a short time. I have a daily nasal spray Nasonex and antihistamines prescribed by GP. I use a Neti pot with Neil Med sachets when it gets really bad and

hello, i’m still feeling very upset about my brain injury (undiagnosed), after taking roaccutane all that time ago. i feel like ibe lost a part of myself. life’s been such a struggle since experiencing the nasty long term side effects, and i just don’t feel like myself since then, more than half a

Hi, further to my first post a few days ago, I’ve received the below report from my mri with contrast. has anyone else suffered a mild TBI and also had a large cyst with the below findings? I’m worried if I risk surgery I will only see minor improvement due to TBI or could be hopeful removing the

Hi, this is my first post but I have been reading others as sometimes they help confirm how I feel. In August 2023 I was hit by a drunk driver and still suffer with mild TBI issues with cognition, memory, fatigue, vistibular issues and pressure around my ears. Everything is worse when tired or any

Hi, this is my first post but I have been reading others as sometimes they help confirm how I feel. In August 2023 I was hit by a drunk driver and still suffer with mild TBI issues with cognition, memory, fatigue, vistibular issues and pressure around my ears. Everything is worse when tired or any

Sharing, how in life something can simply change your life. And do the best we can to carry on, the way we are now in life! That was a the day , a decision for operation date. Did have a further MRI in August ,before operation 3 September 2018, Eye sight was fine until 2 weeks before op ,my left eye

Hi, I read this forum every day, and always have a takeaway from it about something I didn't know, so I'm hoping the group can help me with this new, delightful (ha!) ringing in my left ear that started about six weeks ago. I saw an ENT on Tuesday, and was diagnosed with Tinnitus. I had an audiogram

is two weeks now i raised euthyrox from 75 yo 100mg and i dont think i can tolerate twice i tried and got hbp that even pills dont take it down

I just want to share my thoughts about DBS. I’m going to be in absolute agony for 2 more weeks. My DBS equipment is implanted, but it can not be turned on for two weeks. My symptoms are now so painful and debilitating. It’s not funny. Awful painful constant dystonia! I started the process nine months

Hey really need to find others who have mollaret meningitis. Had it 6 times in 5 years, each time is a longer stay in hospital and the after effects are real. I'm in uk, would love to chat about our experiences

After the successful surgery on new years eve. I went for the 'switch on' this week. The process was exciting and much quicker than I had expected. The Dbs nurse connected her medtronics setup software to a device that I held over my inserted DBS implant. She ran a couple of routines where the software

I am travelling to India for a two week holiday. I have had all the NHS vaccinations. However the travel nurse suggested I also consider the jabs for rabies and Japanese encephalitis. I have spoken to a private travel clinic who have recommended rabies shots. However reading various studies the medications

My husband has PD ( 9 years now) hes 63. He has DBS and it was very successful in treating tremor, stiffness, slowness. However he has a new symptom and we are not sure what it is...its just been a few days...He feels a tightening and cramping sensation in his thigh and calf muscle. We wondered if it

On December 13, 2022, The Today Show aired an amazing story about Dr. Tass's Stanford Gloves for the treatment of Parkinsons. The gloves worked to relieve many of the symptoms of PD through stimulating the brain non-invasively with gentle vibrational pulses administered in a special pattern to the wearer's

I asked it "how to treat bradykinesia naturally" and his reply was "While **natural approaches** can support symptom management for bradykinesia (slow movement), it’s important to note that they should complement—not replace—medical treatment, especially if bradykinesia is linked to Parkinson’s disease

https://www.bbc.co.uk/news/articles/ckgn49r069wo

Hi Doc, I gave the Rytary idea a go. To refresh, take 45 rytary at bedtime to hopefully give me a base to then add sinemet ir thru the day. It didn't go well. In fact, the rytary just made me feel awful in my head and gut so I aborted. I resumed the sinemet regiment of basically 1/2 and 3/4 doses

Hi Folks, Has anyone here read and had success with the plan of treatment recommended by Howard Shifke in his book, "Fighting Parkinson's...and Winning: A memoir of my recovery from Parkinson's Disease." I'm quite skeptical of the claims that he's making of not taking any PD medications or using any

Hi I am wondering if anyone who has had STN deep brain stimulation had noticed any symptoms worsen in the weeks between surgery and switch on.It seems to be quite a few years ago that I had tremor so bad at night that it kept me awake. But this last week I've had strong right arm and jaw tremor wake