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Lung lobectomy
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Durvalumab not working, based on Guardant 360 Tumor Response Map...
Hello All, I've been a frequent reader/follower of this discussion forum, albeit never poster (until now), but just want to let everyone know I'm very appreciative of all the technical advice and positive supportive messages that are shared on a daily basis here. I've finally decided to jump in and
Hello All, I've been a frequent reader/follower of this discussion forum, albeit never poster (until now), but just want to let everyone know I'm very appreciative of all the technical advice and positive supportive messages that are shared on a daily basis here. I've finally decided to jump in and
yenlilly
in
Lung Cancer Support
2 years ago
Lung transplant clinic appointment
Thankyou for all your good wishes. Well my first visit to Harefield was quite overwhelming. I only learnt as we were traveling down on Tuesday that I wld be having 'some' tests. Some! A lung function test, ecg, chest xray, blood pressure and sats, urine test and I couldn't count the number of vials
Thankyou for all your good wishes. Well my first visit to Harefield was quite overwhelming. I only learnt as we were traveling down on Tuesday that I wld be having 'some' tests. Some! A lung function test, ecg, chest xray, blood pressure and sats, urine test and I couldn't count the number of vials
Karenanne61
in
Lung Conditions Community Forum
2 years ago
Sharing a video - ASCO 2022 highlights
Hi everyone The Lung Cancer Research Foundation ran a session yesterday to share the highlights of the major developments in lung cancer treatments presented at ASCO this year. ASCO is one of the major cancer conferences for researchers and doctors. I've posted the link here. Its an hour long and
Hi everyone The Lung Cancer Research Foundation ran a session yesterday to share the highlights of the major developments in lung cancer treatments presented at ASCO this year. ASCO is one of the major cancer conferences for researchers and doctors. I've posted the link here. Its an hour long and
sassassas
in
The Roy Castle Lung Cancer Foundation
2 years ago
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Neurological problems related to lung cancer
Hi, I'm new here and I wondered if any can help. Has anyone had Neurological problems that is linked the lung cancer? I am having severe speech problems / dysatharia and painful distressing facial muscle spasms that keep changing with appearance and severity. I had a lobectomy about a month ago, and
Hi, I'm new here and I wondered if any can help. Has anyone had Neurological problems that is linked the lung cancer? I am having severe speech problems / dysatharia and painful distressing facial muscle spasms that keep changing with appearance and severity. I had a lobectomy about a month ago, and
LottyLisa
in
The Roy Castle Lung Cancer Foundation
2 years ago
Officially on the lung transplant waiting list
Last Friday I made the decision to join the lung transplant waiting list after months of tests, conversations with the various medical teams and a whole lot of soul searching. Lung transplant was an option that I have thought about from a very early stage after my diagnosis and when the time came I think
Last Friday I made the decision to join the lung transplant waiting list after months of tests, conversations with the various medical teams and a whole lot of soul searching. Lung transplant was an option that I have thought about from a very early stage after my diagnosis and when the time came I think
dodgylungrunner
British Lung Foundation
in
Lung Conditions Community Forum
2 years ago
INSOMNIA
Has anyone experienced insomnia post surgery for a Lobectomy
Has anyone experienced insomnia post surgery for a Lobectomy
Queenie49
in
The Roy Castle Lung Cancer Foundation
2 years ago
First appointment at lung transplant centre.
I have my first appointment on Wednesday at the Harefield. Can any of you wise people give me any idea what to expect? I have written down a few questions. We are going Tuesday and stopping in a b and b as the area is completely new to us. ( We live in Oxfordshire) Thank you.
I have my first appointment on Wednesday at the Harefield. Can any of you wise people give me any idea what to expect? I have written down a few questions. We are going Tuesday and stopping in a b and b as the area is completely new to us. ( We live in Oxfordshire) Thank you.
Karenanne61
in
Lung Conditions Community Forum
2 years ago
Should I ask for a new assessment
I was diagnosed with terminal squamous cell lung cancer last October. My upper left lung had collapsed with a 10cm tumour and the tumour was blocking the lower lobe and caused it to overinflate. I had two sessions of palliative radiotherapy, one week apart, in Nov 21 to help keep the lower lobe functional
I was diagnosed with terminal squamous cell lung cancer last October. My upper left lung had collapsed with a 10cm tumour and the tumour was blocking the lower lobe and caused it to overinflate. I had two sessions of palliative radiotherapy, one week apart, in Nov 21 to help keep the lower lobe functional
ginkgo
in
The Roy Castle Lung Cancer Foundation
2 years ago
Advice regarding stopping smoking please.
Happy new year to everyone, I have a question I hope can be answered, I stopped smoking completely after a left
lung
Lobectomy
. this was in august, but I am finding my legs are aching badly, Ihave had a doppler test which was fine, the nurse advised this was due to stopping smoking and was normal, has
Happy new year to everyone, I have a question I hope can be answered, I stopped smoking completely after a left
lung
Lobectomy
. this was in august, but I am finding my legs are aching badly, Ihave had a doppler test which was fine, the nurse advised this was due to stopping smoking and was normal, has
beaverwood
in
The Roy Castle Lung Cancer Foundation
3 years ago
Please join us tomorrow Tuesday, June 21st, Living Room
Hello, Please join us tomorrow, Tuesday, June 21st , for our Living Room discussion. We will have speaker Dr. Ross Camidge, from University of Colorado Cancer Center. Dr. Camidge will be speaking on "Targeted Therapies and their Role in Treating Lung Cancer " The conversation will be focused on how
Hello, Please join us tomorrow, Tuesday, June 21st , for our Living Room discussion. We will have speaker Dr. Ross Camidge, from University of Colorado Cancer Center. Dr. Camidge will be speaking on "Targeted Therapies and their Role in Treating Lung Cancer " The conversation will be focused on how
Michelezeh
Partner
in
Lung Cancer Support
2 years ago
Lung Cancer diagnosis update
Hi everyone, Went for my appointment yesterday but was a bit disappointed coz my CT scan staging where not there. So have to wait until the doctor gets the results. So will keep you updated. Thanks to everyone for support. Xx
Hi everyone, Went for my appointment yesterday but was a bit disappointed coz my CT scan staging where not there. So have to wait until the doctor gets the results. So will keep you updated. Thanks to everyone for support. Xx
Pipido36
in
The Roy Castle Lung Cancer Foundation
2 years ago
My brother
Hi me again - my brother has started treatment- 2nd chemo & immunotherapy yesterday - he’s doing ok ish but his cough is getting worse & he’s exceptionally breathless - is it normal for that to happen ? He has to put the phone down because he gets so stressed. I’m flying in for his appointment with his
Hi me again - my brother has started treatment- 2nd chemo & immunotherapy yesterday - he’s doing ok ish but his cough is getting worse & he’s exceptionally breathless - is it normal for that to happen ? He has to put the phone down because he gets so stressed. I’m flying in for his appointment with his
Brianderrick12
in
The Roy Castle Lung Cancer Foundation
2 years ago
Immunotherapy and the 2 year limit
There are many people on here worried about what happens when they or their loved ones 2 years are up with their immunotherapy treatment. I was the same. My mum was put on this when chemotherapy didnt work on her stage 4 NSCLC and it amazingly shrunk her cancer by 80% in just a few months. When it
There are many people on here worried about what happens when they or their loved ones 2 years are up with their immunotherapy treatment. I was the same. My mum was put on this when chemotherapy didnt work on her stage 4 NSCLC and it amazingly shrunk her cancer by 80% in just a few months. When it
nlg1405
in
The Roy Castle Lung Cancer Foundation
2 years ago
Join Us! June 14th, Gathering HOPE, a Social Hour
Hello! For those of you who know me and to those of you I may not have spoken with or met yet, I am Michele Zeh, Manager of the Lung Cancer Living Room Series and I am excited to invite you to our monthly Gathering HOPE Social Hour hosted on our new ZOOM platform on Tuesday June 14th, at 5pm PT/8pm
Hello! For those of you who know me and to those of you I may not have spoken with or met yet, I am Michele Zeh, Manager of the Lung Cancer Living Room Series and I am excited to invite you to our monthly Gathering HOPE Social Hour hosted on our new ZOOM platform on Tuesday June 14th, at 5pm PT/8pm
Michelezeh
Partner
in
Lung Cancer Support
2 years ago
The oncologist wants to do a PET and CT scan the same day. Is it necessary to do both?
The oncologist wants to do a CT and PET scan on the same day this month. My husband is now stage IV NSCLC and had both these tests done in February. They have not started any treatment yet for him . He only saw the oncologist two weeks ago. He also ended up with congested heart failure late last year
The oncologist wants to do a CT and PET scan on the same day this month. My husband is now stage IV NSCLC and had both these tests done in February. They have not started any treatment yet for him . He only saw the oncologist two weeks ago. He also ended up with congested heart failure late last year
Keepingstrong
in
The Roy Castle Lung Cancer Foundation
2 years ago
D DAY IS APPROACHING
Hi everyone, It has been such a long time since I have posted anything on here but I thought I would check in on you all and also I need my friends with me now too. As most of you know I was diagnosed with bowel cancer in early February, since then I have had numerous trips to to the hospital with
Hi everyone, It has been such a long time since I have posted anything on here but I thought I would check in on you all and also I need my friends with me now too. As most of you know I was diagnosed with bowel cancer in early February, since then I have had numerous trips to to the hospital with
Hidden
in
IBS Network
2 years ago
Advice
I have just been diagnosed with lung cancer, I had no symptoms and haven’t been unwell. I went to the Gp after developing a wheeze as I thought I had asthma. I am due to start immunotherapy the middle of June. I am due to go on holiday the middle of next week for 7 days and would like advice on travel
I have just been diagnosed with lung cancer, I had no symptoms and haven’t been unwell. I went to the Gp after developing a wheeze as I thought I had asthma. I am due to start immunotherapy the middle of June. I am due to go on holiday the middle of next week for 7 days and would like advice on travel
Hidden
in
The Roy Castle Lung Cancer Foundation
2 years ago
Another Brain Met
I had two brain mets from my lung cancer and radiotherapy got rid of them. I have just had another scan to check progress and it seems another small one has popped up on the opposite side, I'm devastated, it's determined to get me. I'm having a CT scan of thorax abdomen and pelvis. Consultant says if
I had two brain mets from my lung cancer and radiotherapy got rid of them. I have just had another scan to check progress and it seems another small one has popped up on the opposite side, I'm devastated, it's determined to get me. I'm having a CT scan of thorax abdomen and pelvis. Consultant says if
Tike3
in
The Roy Castle Lung Cancer Foundation
2 years ago
Transplant waiting list imminent/Nintedanib feedback
Hi all, Been a while again since my last update. I was hoping to bring you definitive news on the transplant situation but we're not quite there yet as I've still to meet the team to discuss when to go on the transplant list and find out how long my window of opportunity might be. However, the good
Hi all, Been a while again since my last update. I was hoping to bring you definitive news on the transplant situation but we're not quite there yet as I've still to meet the team to discuss when to go on the transplant list and find out how long my window of opportunity might be. However, the good
dodgylungrunner
British Lung Foundation
in
Lung Conditions Community Forum
2 years ago
Cancer in broncial tube
Hi everyone i got diagnosed with lung cancer in my broncial tube nearly a year ago. I'm being treated with immunotherapy i have a year left of treatment my doctors just told me. Why because the government have a deal with the pharmaceutical company for a 2yr period but its working ok for me then it
Hi everyone i got diagnosed with lung cancer in my broncial tube nearly a year ago. I'm being treated with immunotherapy i have a year left of treatment my doctors just told me. Why because the government have a deal with the pharmaceutical company for a 2yr period but its working ok for me then it
Bulldog242
in
Lung Cancer Support
2 years ago
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