Search
Search
About
Log in
Join
Experiences with
Lung lobectomy
Posts
Communities
2,273 public posts
Filter results
Any advice or help please
I had left lung removed 2yrs ago, told last nov, that cancer was now in right lung.was put on pallative care? No follow ups only phone calls fortnightly.But found out that the drug Pembrolizumab is working very well to extend life especialy for lung cancer patients.Has anyone else heard of this? and
I had left lung removed 2yrs ago, told last nov, that cancer was now in right lung.was put on pallative care? No follow ups only phone calls fortnightly.But found out that the drug Pembrolizumab is working very well to extend life especialy for lung cancer patients.Has anyone else heard of this? and
ginja3
in
The Roy Castle Lung Cancer Foundation
2 years ago
Let down...again !
When I wrote my last post I was so full of hope and felt happy again. I had forgotten what that was like! However, my original Dr. has overruled my new Dr. and once again I am getting no help or support and I am feeling so depressed. I have had 3 day's where the pain has been unbearable and yesterday
When I wrote my last post I was so full of hope and felt happy again. I had forgotten what that was like! However, my original Dr. has overruled my new Dr. and once again I am getting no help or support and I am feeling so depressed. I have had 3 day's where the pain has been unbearable and yesterday
Danni54
in
The Roy Castle Lung Cancer Foundation
2 years ago
First FDA Approved Targeted Therapy for HER2, Enhertu, for the Treatment of NSCLC With an Activating HER2 Mutation
On August 11th, 2022, the Food and Drug Administration (FDA) approved Enhertu (fam- trastuzumab deruxtecan-nxki) for treatment of advanced non-small cell lung cancer (NSCLC) with an activating HER2 mutation for patients who have received one prior line of therapy. The FDA based their approval on the
On August 11th, 2022, the Food and Drug Administration (FDA) approved Enhertu (fam- trastuzumab deruxtecan-nxki) for treatment of advanced non-small cell lung cancer (NSCLC) with an activating HER2 mutation for patients who have received one prior line of therapy. The FDA based their approval on the
Miranda_GO2
Partner
in
Lung Cancer Support
2 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Mum recently diagnosed with Lung Cancer.
My 78year old mum has recently been diagnosed with possible lung cancer, following a CT scan. After the results she has had stents fitted in each lung and a Biopsey. She received two letters on Saturday, one addressed to her for an appointment Biops y results and a second addressed to my mum's GP
My 78year old mum has recently been diagnosed with possible lung cancer, following a CT scan. After the results she has had stents fitted in each lung and a Biopsey. She received two letters on Saturday, one addressed to her for an appointment Biops y results and a second addressed to my mum's GP
grayson99
in
The Roy Castle Lung Cancer Foundation
2 years ago
Lung infections after Lobectomy?
Hi all. Reading what you are all going through makes me feel a bit dubious about posting here again. I have had the most amazing support from people on this forum particularly from Loimie and Zac and want to say thank you so much for helping me through since I was first diagnosed with Adenocarcinoma
Hi all. Reading what you are all going through makes me feel a bit dubious about posting here again. I have had the most amazing support from people on this forum particularly from Loimie and Zac and want to say thank you so much for helping me through since I was first diagnosed with Adenocarcinoma
Danni54
in
The Roy Castle Lung Cancer Foundation
2 years ago
Pet scan question please
Hello I posted the the other day to say my dad has been diagnosed with squamous cell lung cancer , he has been referred to the surgeon regarding next steps . Now during the process of being diagnosed he had walking test, breathing test , echo as well as the needle biopsy. He also had a pet scan as well
Hello I posted the the other day to say my dad has been diagnosed with squamous cell lung cancer , he has been referred to the surgeon regarding next steps . Now during the process of being diagnosed he had walking test, breathing test , echo as well as the needle biopsy. He also had a pet scan as well
Concerned2021
in
The Roy Castle Lung Cancer Foundation
2 years ago
People of HealthUnlocked - COPD: Preparing for a Double Lung Transplant
COVID-19 disproportionately impacted some more than others. Although we were all thrust into uncertainty when the pandemic hit, arguably, those with lung conditions were at the forefront of concern. Today, Bernadette tells us about her story of living with chronic obstructive pulmonary disease (COPD)
COVID-19 disproportionately impacted some more than others. Although we were all thrust into uncertainty when the pandemic hit, arguably, those with lung conditions were at the forefront of concern. Today, Bernadette tells us about her story of living with chronic obstructive pulmonary disease (COPD)
SaskiaHU
HealthUnlocked
in
HealthUnlocked Blog
2 years ago
Dad been diagnosed with Squamous cell carcinoma . Need some help, guidance and support please
Hello, it was detected my dad he is 73 had an upper right lobe pulmonary nodule late Feb 22 as part of a pre op for a non cancer related matter . Was recommended that his local hospital followed up on this. Some time passed and only received an appointment 4 weeks ago. Several tests later including a
Hello, it was detected my dad he is 73 had an upper right lobe pulmonary nodule late Feb 22 as part of a pre op for a non cancer related matter . Was recommended that his local hospital followed up on this. Some time passed and only received an appointment 4 weeks ago. Several tests later including a
Concerned2021
in
The Roy Castle Lung Cancer Foundation
2 years ago
Ivermectin.
Hi all, my partner has lung cancer stage four he is currently ha img chemotherapy and immunotherapy treatment. His last scan they said he was stable so was able to have a break from treatment. We have been to America for a month, a friend of our’s there has recommended Ivermectin, has anybody tried this
Hi all, my partner has lung cancer stage four he is currently ha img chemotherapy and immunotherapy treatment. His last scan they said he was stable so was able to have a break from treatment. We have been to America for a month, a friend of our’s there has recommended Ivermectin, has anybody tried this
Jando2021
in
Lung Cancer Support
2 years ago
Shocking life expectancy
My wonderful husband (41) was diagnosed in February 22 with stage 3 in lung and lymph nodes. He's had chemo x 2 and immunotherapy then reduced to chemo x1 and immunotherapy as responded well. Last week, he found a new lump in his neck which after scans shows it has spread again. The disease in lung
My wonderful husband (41) was diagnosed in February 22 with stage 3 in lung and lymph nodes. He's had chemo x 2 and immunotherapy then reduced to chemo x1 and immunotherapy as responded well. Last week, he found a new lump in his neck which after scans shows it has spread again. The disease in lung
EmCx
in
The Roy Castle Lung Cancer Foundation
2 years ago
double lungs transplant
I was diagnosed with pulmonary sarcoidosis in 2020. My condition has worsened over the years to were I now have to been on oxygen all the time m ..I've recently been put on the list for a double lungs transplant after undergoing different test at Birmingham queens hospital .. After reading there
I was diagnosed with pulmonary sarcoidosis in 2020. My condition has worsened over the years to were I now have to been on oxygen all the time m ..I've recently been put on the list for a double lungs transplant after undergoing different test at Birmingham queens hospital .. After reading there
Purpal
in
Lung Conditions Community Forum
2 years ago
Chemotherapy
Hi all l had a left lobectomy at the end of 2021, on my follow up l was told the lymph nodes removed were clear. I t was such a relief not having to go through the adjuvant chemo. However three weeks later was asked if l would like to try the chemotherapy, l decided against it. Is there anyone out there
Hi all l had a left lobectomy at the end of 2021, on my follow up l was told the lymph nodes removed were clear. I t was such a relief not having to go through the adjuvant chemo. However three weeks later was asked if l would like to try the chemotherapy, l decided against it. Is there anyone out there
Zac2018
in
Lung Cancer Support
2 years ago
Join Us! Tuesday, August 9th, Gathering HOPE, a Social Hour
Hello! For those of you who know me and to those of you I may not have spoken with or met yet, I am Michele Zeh, Manager of the Lung Cancer Living Room Series and I am excited to invite you to our monthly Gathering HOPE Social Hour hosted now on our ZOOM link this coming Tuesday August 9th, at 5pm PT
Hello! For those of you who know me and to those of you I may not have spoken with or met yet, I am Michele Zeh, Manager of the Lung Cancer Living Room Series and I am excited to invite you to our monthly Gathering HOPE Social Hour hosted now on our ZOOM link this coming Tuesday August 9th, at 5pm PT
Michelezeh
Partner
in
Lung Cancer Support
2 years ago
LUNG CANCER PATIENT LUMP FOUND IN NECK.
I am heading to ENT tomorrow morning. Consultant found lump in my neck. I am panicking now. Could it be metastases from the lung cancer? I am also panicking as I cannot have a camera put up my nose into my throat whilst I am awake. I just know I can’t do it. Lumps in necks is not good news is it 😔
I am heading to ENT tomorrow morning. Consultant found lump in my neck. I am panicking now. Could it be metastases from the lung cancer? I am also panicking as I cannot have a camera put up my nose into my throat whilst I am awake. I just know I can’t do it. Lumps in necks is not good news is it 😔
Hidden
in
The Roy Castle Lung Cancer Foundation
2 years ago
Patients experience with RATS/VATS Lung surgery??
I have been frantically trying to decide whether to proceed with my scheduled surgery this month. It seems like it is the most logical choice, but Im afraid it is too risky and recovery is difficult. Can anyone share their hospital and/or home recovery experience with their surgery? Any advice?
I have been frantically trying to decide whether to proceed with my scheduled surgery this month. It seems like it is the most logical choice, but Im afraid it is too risky and recovery is difficult. Can anyone share their hospital and/or home recovery experience with their surgery? Any advice?
Hope2thrive
in
Lung Cancer Support
2 years ago
Two and a half weeks post upper right lobectomy.
Hello all, I’m finding lack of pain control in the middle of the night is preventing me from getting a full night’s sleep. I’m fine during the day although the stiffness in my back and side is always present. I’m gradually increasing the amount of walking and activity at home. I take rests when I need
Hello all, I’m finding lack of pain control in the middle of the night is preventing me from getting a full night’s sleep. I’m fine during the day although the stiffness in my back and side is always present. I’m gradually increasing the amount of walking and activity at home. I take rests when I need
Kanafapot
in
The Roy Castle Lung Cancer Foundation
2 years ago
Seems a long time
My husband was diagnosed with Right upper lobe T3 N0 M0 non-small cell lung cancer in June 2021. Because he also has COPD they said they couldn’t operate so he was given 20 sessions of radiotherapy in October 2021. Since then he hasn’t seen his oncologist at all, just a phone call every 12 weeks. He
My husband was diagnosed with Right upper lobe T3 N0 M0 non-small cell lung cancer in June 2021. Because he also has COPD they said they couldn’t operate so he was given 20 sessions of radiotherapy in October 2021. Since then he hasn’t seen his oncologist at all, just a phone call every 12 weeks. He
Hidden
in
The Roy Castle Lung Cancer Foundation
2 years ago
Severe pain in spine and knee's.
I'm on Opioid pill's, Fentanyl patch 12mcg and 5 ml Oramorph a day for stomach problems and the Oramorph for the spine pain and I have had an upper right
Lobectomy
for
lung
cancer and am in remission just now. Just a wreck really.....physically but in my head I have stuck at 28 !
I'm on Opioid pill's, Fentanyl patch 12mcg and 5 ml Oramorph a day for stomach problems and the Oramorph for the spine pain and I have had an upper right
Lobectomy
for
lung
cancer and am in remission just now. Just a wreck really.....physically but in my head I have stuck at 28 !
Danni54
in
Bone Health and Osteoporosis UK
2 years ago
Join Us tonight! July12th, Gathering HOPE, a Social Hour
Hello! For those of you who know me and to those of you I may not have spoken with or met yet, I am Michele Zeh, Manager of the Lung Cancer Living Room Series and I am excited to invite you to our monthly Gathering HOPE Social Hour hosted tonight on our ZOOM link at 5pm PT/8pm ET. At this meeting, we
Hello! For those of you who know me and to those of you I may not have spoken with or met yet, I am Michele Zeh, Manager of the Lung Cancer Living Room Series and I am excited to invite you to our monthly Gathering HOPE Social Hour hosted tonight on our ZOOM link at 5pm PT/8pm ET. At this meeting, we
Michelezeh
Partner
in
Lung Cancer Support
2 years ago
ALK lung cancer: First sign of progression?
Hi. My brother has lung cancer and I wrote about it in the post below. He has taken Alectinib for few months and the results has been great so far. However he just received result from his latest Xray and the comment the doctor wrote online was that he can see "some slightly prominent lymph nodes in
Hi. My brother has lung cancer and I wrote about it in the post below. He has taken Alectinib for few months and the results has been great so far. However he just received result from his latest Xray and the comment the doctor wrote online was that he can see "some slightly prominent lymph nodes in
Hidden
in
The Roy Castle Lung Cancer Foundation
2 years ago
1
...
13
14
15
...
100
Next page
10
20
30
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
Lung Conditions Community Forum
846 results
The Roy Castle Lung Cancer Foundation
668 results
Lung Cancer Support
463 results
View top 10 communities
Sort by
Most Relevant
Newest