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Leukaemia
Care Online Support Group -
Leukaemia
Care AML group -
Leukaemia
Care APL group -
Leukaemia
Care CLL group Helpline (available Monday - Friday, 9 am - 5 pm) Information Booklets
Leukaemia
Counselling Service WhatsApp Service Our team is dedicated to ensuring a smooth transition
NicoleLeukaemiaCare
in
Leukaemia Support
6 months ago
Community Guidelines
Welcome to the
Leukaemia
Support Community for support of
Leukaemia
! We’re very glad you have chosen to be a part of our community. The
Leukaemia
Support community - offered by HealthUnlocked (HU) - supports individuals affected by
leukaemia
.
Welcome to the
Leukaemia
Support Community for support of
Leukaemia
! We’re very glad you have chosen to be a part of our community. The
Leukaemia
Support community - offered by HealthUnlocked (HU) - supports individuals affected by
leukaemia
.
BrettHU
HealthUnlocked
in
Leukaemia Support
1 month ago
On another subject …
Inspired bya post on another site I’d like to ask if anyone has high risk mutations and has NOT had a stem cell transplant and has NOT progressed to
leukaemia
?
Inspired bya post on another site I’d like to ask if anyone has high risk mutations and has NOT had a stem cell transplant and has NOT progressed to
leukaemia
?
lizzziep
in
MPN Voice
3 months ago
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As my father died 3 days after his diagnosis of Acute Myeloid
Leukaemia
I am feeling concerned about the rapid changes I am experiencing. I have known my haematologist for over 14 years as he was also my husband's consultant for his Mantel Cell Lymphoma.
As my father died 3 days after his diagnosis of Acute Myeloid
Leukaemia
I am feeling concerned about the rapid changes I am experiencing. I have known my haematologist for over 14 years as he was also my husband's consultant for his Mantel Cell Lymphoma.
16Gardinia
in
MPN Voice
1 month ago
Cll back after 4yrs
Hospital found lymph nodes in neck and think my
leukaemia
is back. I have been cancer free for4yrs. Has this happened to anyone else. What happens next.
Hospital found lymph nodes in neck and think my
leukaemia
is back. I have been cancer free for4yrs. Has this happened to anyone else. What happens next.
Daisy1993
in
CLL Support
6 months ago
Low vitamin d high serum ferritin
Is the high serum ferritin a sign of
leukaemia
as I have read it may be? Thanks in advance for any replies.
Is the high serum ferritin a sign of
leukaemia
as I have read it may be? Thanks in advance for any replies.
Debs4
in
CLL Support
3 months ago
Myelodydisplasia (?)Leukaemia
So can someone tell me if this is what CLL can turn into? and how much worse than CLL is it? Many thanks, Veronica
So can someone tell me if this is what CLL can turn into? and how much worse than CLL is it? Many thanks, Veronica
Veebeegeebee
in
CLL Support
3 months ago
A message to all community members
We want to let you know that
Leukaemia
Care will no longer be moderating this community. Over the past few years,
Leukaemia
Care has provided moderation and support on this community to the best of their ability. Unfortunately, this is no longer possible.
We want to let you know that
Leukaemia
Care will no longer be moderating this community. Over the past few years,
Leukaemia
Care has provided moderation and support on this community to the best of their ability. Unfortunately, this is no longer possible.
BrettHU
HealthUnlocked
in
Leukaemia Support
2 months ago
p17 deletion. Can anyone advise or cheer me up?!
I’m 79, living in UK and 18 months into being diagnosed with Chronic lymphocytic
leukaemia
(CLL) and suspected Chronic myelomonocytic
leukaemia
(CMML), I have been still at early stage and not needing treatment.
I’m 79, living in UK and 18 months into being diagnosed with Chronic lymphocytic
leukaemia
(CLL) and suspected Chronic myelomonocytic
leukaemia
(CMML), I have been still at early stage and not needing treatment.
Fogey
in
CLL Support
10 months ago
Struggling Financially with Leukaemia?
I was diagnosed with CLL in July 2013 and had already been registered with Macmillan in 2004 when I had bowel cancer, although at that time I didn't need much help other than problems with stoma bags and local support groups, both of which they helped me with. Financially I was okay being paid by my
I was diagnosed with CLL in July 2013 and had already been registered with Macmillan in 2004 when I had bowel cancer, although at that time I didn't need much help other than problems with stoma bags and local support groups, both of which they helped me with. Financially I was okay being paid by my
clifflee
in
CLL Support
2 months ago
Just 5% of therapies tested in animals end up as as human drugs, new study shows. CLL research has particular challenges due to the TME
CLL cells are in their dormant stage in the blood, so while
leukaemia
cancer research has the huge benefit of providing easy sampling access to tumour cells through blood sampling, assessing the impact of therapies on CLL cells removed from blood samples is misleading regarding their effectiveness.
CLL cells are in their dormant stage in the blood, so while
leukaemia
cancer research has the huge benefit of providing easy sampling access to tumour cells through blood sampling, assessing the impact of therapies on CLL cells removed from blood samples is misleading regarding their effectiveness.
AussieNeil
Partner
in
CLL Support
1 month ago
Advice welcome
He is starting to walk more after lengthy treatment for
leukaemia
. Has anyone out there any advice as to how to manage this sometimes debilitating condition? Thank you in advance
He is starting to walk more after lengthy treatment for
leukaemia
. Has anyone out there any advice as to how to manage this sometimes debilitating condition? Thank you in advance
Limpet72
in
Lung Conditions Community Forum
3 months ago
confused!!!
Apparently all my tests just show low grade
leukaemia
and so was told if I was given treatment to reduce the CLL he doubts I would feel any better!
Apparently all my tests just show low grade
leukaemia
and so was told if I was given treatment to reduce the CLL he doubts I would feel any better!
Dragonfly766
in
CLL Support
7 months ago
What are the stages of myelofibrosis
My husband of 81 was diagnosed with myelofibrosis last week after having Jack2 negative essential thrombocythaemia since 2009. His consultant will be watching him closely for the next few months and has not yet prescribed any treatment. She gave us an information pamphlet to read, which we found very
My husband of 81 was diagnosed with myelofibrosis last week after having Jack2 negative essential thrombocythaemia since 2009. His consultant will be watching him closely for the next few months and has not yet prescribed any treatment. She gave us an information pamphlet to read, which we found very
Richinspirit
in
MPN Voice
2 days ago
Deep Brain Stimulator
I know this is way out of this forum, but I can't find a group to discuss with. I had a deep brain stimulator surgical procedure to help with an Essential Tremor in my hand. I had my dominate hand done 11 yrs ago at a different hospital. Had no issues with the results. At the end of May I had my other
I know this is way out of this forum, but I can't find a group to discuss with. I had a deep brain stimulator surgical procedure to help with an Essential Tremor in my hand. I had my dominate hand done 11 yrs ago at a different hospital. Had no issues with the results. At the end of May I had my other
Beth1949
in
Lung Conditions Community Forum
3 days ago
Wales.
I live near Carmarthen. South wales. I have blood cancer MPN Essential thrombocythemia. Does anyone else have this condition as I haven't been given a PALS or anyone to talk to. In England I here I would have had one, or been able to speak to someone. Any help to speak to someone would be great. This
I live near Carmarthen. South wales. I have blood cancer MPN Essential thrombocythemia. Does anyone else have this condition as I haven't been given a PALS or anyone to talk to. In England I here I would have had one, or been able to speak to someone. Any help to speak to someone would be great. This
mag123ben
in
MPN Voice
10 days ago
Jakafi/Weight Gain
I will preface this by saying that I am truly grateful that I am feeling better on Jakafi. It has only been two months, but my numbers are better and most importantly, I am not having the debilitating side effects of GI issues that were ruining my life on Besremi. So, I do realize that health is number
I will preface this by saying that I am truly grateful that I am feeling better on Jakafi. It has only been two months, but my numbers are better and most importantly, I am not having the debilitating side effects of GI issues that were ruining my life on Besremi. So, I do realize that health is number
Miriammusic
in
MPN Voice
13 days ago
A Blip in time!
I am 74 (F) and was diagnosed in Nov, 2019 with PV and JAK 2 positive. I have been in clinical remission for 18 months and take Jakafi 10mg 2x daily. I have an allele burden of 15 currently down from 60 at diagnosis. My blood draws have been within limits for 18 months with only a blip in the blood calcium
I am 74 (F) and was diagnosed in Nov, 2019 with PV and JAK 2 positive. I have been in clinical remission for 18 months and take Jakafi 10mg 2x daily. I have an allele burden of 15 currently down from 60 at diagnosis. My blood draws have been within limits for 18 months with only a blip in the blood calcium
Barney50
in
MPN Voice
15 days ago
Jakafi - Chronic Myelofibrosis
I’m 72 years old hispanic female & was diagnosed with Chronic Myeloproliferative Disorder - Primary Myelofibrosis on January 2024. I started with Jakafi 10 mg (bid) on February 2024 & my symptoms have been very interesting. During the 1st two weeks I experienced nauseas & dizziness with both dosages
I’m 72 years old hispanic female & was diagnosed with Chronic Myeloproliferative Disorder - Primary Myelofibrosis on January 2024. I started with Jakafi 10 mg (bid) on February 2024 & my symptoms have been very interesting. During the 1st two weeks I experienced nauseas & dizziness with both dosages
Fresa7
in
MPN Voice
24 days ago
Myelofibrosis- GVHD graft, versus, host, disease.
Hi, thanks for accepting me onto your site. My name is Gary, I am 64 years old and was diagnosed with Myelofibrosis in July, 2024. It all started when I began to feel lethargic and very tired, I had no inspiration to do anything. I was a taxi driver and was only managing to work one or two days a week
Hi, thanks for accepting me onto your site. My name is Gary, I am 64 years old and was diagnosed with Myelofibrosis in July, 2024. It all started when I began to feel lethargic and very tired, I had no inspiration to do anything. I was a taxi driver and was only managing to work one or two days a week
FreemanSaviors
in
MPN Voice
25 days ago
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