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Hi I have Rheumatoid Arthritis diagnosed last year I take Methotrexate. Recently had feet vibrating sensation and palpitations. I have regular blood tests my ESR has been going up a little my joint issues are not causing me an issue. I went to Walk in centre had range of tests ECG. xrays. Fine. Blòod
Hi I have Rheumatoid Arthritis diagnosed last year I take Methotrexate. Recently had feet vibrating sensation and palpitations. I have regular blood tests my ESR has been going up a little my joint issues are not causing me an issue. I went to Walk in centre had range of tests ECG. xrays. Fine. Blòod
welsh12
in
Thyroid UK
2 months ago
Extravasation
We are writing to reach out to individuals who may have experienced an extravasation during their medical treatment. Many patients are unaware of this patient-safety issue and we are hoping to bring it to light. We are kindly asking that you contribute to enforcing a safer healthcare environment while
We are writing to reach out to individuals who may have experienced an extravasation during their medical treatment. Many patients are unaware of this patient-safety issue and we are hoping to bring it to light. We are kindly asking that you contribute to enforcing a safer healthcare environment while
Extravasation
in
Blue Faery Liver Cancer
6 months ago
Avodart and Flomax
Hello brothers. Is it safe to use Avodart and Flomax with advanced prostate cáncer? I am tired of getting up to pee 7 or 8 times a night.
Hello brothers. Is it safe to use Avodart and Flomax with advanced prostate cáncer? I am tired of getting up to pee 7 or 8 times a night.
CountryJoe
in
Advanced Prostate Cancer
6 months ago
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Ozone treatments benefit Parkinson's, when my brother down two or three days 1/2 ozone really seems to energize him and clear his brain.
We are using about 1 LPM oxygen and getting about 12 Gamma ozone bubbled in olive oil and breathing in nose or mouth. We are usually intaking in mouth which also kills all mouth bacteria. Is any one using any other protocols with results.
We are using about 1 LPM oxygen and getting about 12 Gamma ozone bubbled in olive oil and breathing in nose or mouth. We are usually intaking in mouth which also kills all mouth bacteria. Is any one using any other protocols with results.
clarksdocs
in
Cure Parkinson's
6 months ago
Views on study design for lupus nephritis research
A research team are planning a study and want to get the views of people with lupus nephritis so they can make sure they are meeting patients’ needs in the study design. You can read more about the research in our article here: https://lupusuk.org.uk/views-on-study-design-for-lupus-nephritis-research
A research team are planning a study and want to get the views of people with lupus nephritis so they can make sure they are meeting patients’ needs in the study design. You can read more about the research in our article here: https://lupusuk.org.uk/views-on-study-design-for-lupus-nephritis-research
Debbie_kinsey
Administrator
in
LUPUS UK
2 months ago
Involvement Opportunity - British Liver Trust Patient Advisory Group (UK)
Our Patient Advisory Group (PAG) helps us to serve the full, diverse nature of the UK’s liver disease community. It ensures the patient voice is embedded even more in key strategy and decision-making processes. At the moment we are underrepresented in some areas and we are looking for people to join
Our Patient Advisory Group (PAG) helps us to serve the full, diverse nature of the UK’s liver disease community. It ensures the patient voice is embedded even more in key strategy and decision-making processes. At the moment we are underrepresented in some areas and we are looking for people to join
BritishLiverTrust1
Partner
in
British Liver Trust
6 months ago
filgotinib dosage
hi everyone, Feel a bit embarrassed with this post,as was so cock a hoop of results on filgotinib,telling all it was a miracle drug!It was and life was brilliant without pain.Because of age dr persey decreased from 200mg to 100 mg 4 weeks ago and pain has all come back.It was so good while it lasted
hi everyone, Feel a bit embarrassed with this post,as was so cock a hoop of results on filgotinib,telling all it was a miracle drug!It was and life was brilliant without pain.Because of age dr persey decreased from 200mg to 100 mg 4 weeks ago and pain has all come back.It was so good while it lasted
Doodlereggie
in
NRAS
6 months ago
Methotrexate and antibiotics
For anyone on methotrexate (presently or in the past), if you've had infections what antibiotics have you been prescribed? My sister has a UTI (symptoms only started today) but she took her methotrexate last night (she has rheumatoid arthritis so will also post on that site), and she's been prescribed
For anyone on methotrexate (presently or in the past), if you've had infections what antibiotics have you been prescribed? My sister has a UTI (symptoms only started today) but she took her methotrexate last night (she has rheumatoid arthritis so will also post on that site), and she's been prescribed
Grizzly-bear
in
Vasculitis UK
3 months ago
Hashimoto's and pain in muscles and joints
Hi I am new to the group.I am reaching out as I have a couple of questions.I have Hashimotos disease and on an alternating dose of 125mg to 150mg each other day of levothyroxin. I have experienced muscle aches and pains over the last 7 or so years not really sure why but I believe it's my Hashimoto's.My
Hi I am new to the group.I am reaching out as I have a couple of questions.I have Hashimotos disease and on an alternating dose of 125mg to 150mg each other day of levothyroxin. I have experienced muscle aches and pains over the last 7 or so years not really sure why but I believe it's my Hashimoto's.My
Hashiskip18
in
Thyroid UK
3 months ago
Lupus or another Autoimmune Disease?
I’m 50 yr old female with issues, RLS, Hashimotos, Autoimmune Atrophic Chronic Gastritis, intestinal Metaplasia, Iron Deficiency Anemia w/transfusions, B12 deficiency, and now this horrible hip and joint pain. I know if you have one Autoimmune Disease you’re likely to have more. I’ve had a full work
I’m 50 yr old female with issues, RLS, Hashimotos, Autoimmune Atrophic Chronic Gastritis, intestinal Metaplasia, Iron Deficiency Anemia w/transfusions, B12 deficiency, and now this horrible hip and joint pain. I know if you have one Autoimmune Disease you’re likely to have more. I’ve had a full work
Milescircus
in
LUPUS UK
3 months ago
Malar Rash
Hi guys I was wondering what your opinion of this rash is? Does it look like a lupus rash? I’m in the MCTD and I’m on methotrexate and hydroxychloroquine. I get these rashes in a variety of different ways, always driven by sun, heat, stress or medications. Are there any other autoimmune disorders
Hi guys I was wondering what your opinion of this rash is? Does it look like a lupus rash? I’m in the MCTD and I’m on methotrexate and hydroxychloroquine. I get these rashes in a variety of different ways, always driven by sun, heat, stress or medications. Are there any other autoimmune disorders
Tonkie
in
LUPUS UK
3 months ago
What do you think?
I’ve been on Lupron and Xgeva since 2014 and have had many other treatments along the way. As my PSA rose I found my best treatment was Xtandi. I had pretty good results from 2017 to 2020 , then my PSA moved upward again. Looks like I’m going to fail with Nubeqa, which I have been on for 2 1/2 months
I’ve been on Lupron and Xgeva since 2014 and have had many other treatments along the way. As my PSA rose I found my best treatment was Xtandi. I had pretty good results from 2017 to 2020 , then my PSA moved upward again. Looks like I’m going to fail with Nubeqa, which I have been on for 2 1/2 months
docbulldog
in
Advanced Prostate Cancer
6 months ago
blood tests
hi lovely people, I was wondering if you could give me any advice. I’m relatively new to all of this and I’ve had a very bad experience at my last hospital. I was misdiagnosed most of last year with Complex Regional Pain disease. My rheumatologist wouldn’t even consider an autoimmune disease. Anyway
hi lovely people, I was wondering if you could give me any advice. I’m relatively new to all of this and I’ve had a very bad experience at my last hospital. I was misdiagnosed most of last year with Complex Regional Pain disease. My rheumatologist wouldn’t even consider an autoimmune disease. Anyway
Tonkie
in
LUPUS UK
3 months ago
Help on blood test results
Can anyone on here advise on these results? Does this mean I 100% don't have lupus? 🤞🏼Or are there different types of lupus that I havnt been tested for?
Can anyone on here advise on these results? Does this mean I 100% don't have lupus? 🤞🏼Or are there different types of lupus that I havnt been tested for?
Peppermints
in
LUPUS UK
3 months ago
Kidney biopsy confirms active GPA
Hi, Thought I'd update what has happened since my last post. I have seen my rheumatologist twice now, given pred and was put forward for rituximab. Due to the blood and protein in my pee I was referred to renal and had a kidney biopsy on Wednesday of this week. It has been confirmed that my vasculitis
Hi, Thought I'd update what has happened since my last post. I have seen my rheumatologist twice now, given pred and was put forward for rituximab. Due to the blood and protein in my pee I was referred to renal and had a kidney biopsy on Wednesday of this week. It has been confirmed that my vasculitis
lollypocket
in
Vasculitis UK
4 months ago
Hypothyroid and loose stools.
Hi, first time posting. Diagnosed with underactive thyroid & high cholesterol in December 23 , started on lowest dose (25mg Eutirox), reviewed in Feb 24 thyroid results improved and cholesterol down a little so continuing on same dose to be reviewed again in August. I have had loose stools for a while
Hi, first time posting. Diagnosed with underactive thyroid & high cholesterol in December 23 , started on lowest dose (25mg Eutirox), reviewed in Feb 24 thyroid results improved and cholesterol down a little so continuing on same dose to be reviewed again in August. I have had loose stools for a while
Hellodoll
in
Thyroid UK
3 months ago
HEP B TREATMENTS
Hi, I saw my doctor today. I have had HEP B for many years. My doctor was only monitoring it. Today he told me that he is very concerned about my ALT levels. He recommend to start antiviral medications now as he is concerned about the cancer risk. I asked him if I will be taking them for the rest of
Hi, I saw my doctor today. I have had HEP B for many years. My doctor was only monitoring it. Today he told me that he is very concerned about my ALT levels. He recommend to start antiviral medications now as he is concerned about the cancer risk. I asked him if I will be taking them for the rest of
LittleShrew
in
British Liver Trust
6 months ago
First PSA test post radiation and Orgovyx
My husband had his first PSA test today… about a month after 28 proton radiation treatments, and over two months on Orgovyx… Result: <0.10 This seems really good to us! ( last PSA was 46.6 before treatment) Does it sound like a good result to all of you at this stage? Meeting with medical oncology
My husband had his first PSA test today… about a month after 28 proton radiation treatments, and over two months on Orgovyx… Result: <0.10 This seems really good to us! ( last PSA was 46.6 before treatment) Does it sound like a good result to all of you at this stage? Meeting with medical oncology
CancerConcierge
in
Advanced Prostate Cancer
6 months ago
Newsystem23
Not posted for a while, hope everyone is managing their lupus symptoms as best they can. I did think that using 50spf sun screen and taking hydroxychloroquine would keep my skin lupus at bay. However, I'm beginning to realise it is not just the sun and artificial light that my skin is sensitive to.
Not posted for a while, hope everyone is managing their lupus symptoms as best they can. I did think that using 50spf sun screen and taking hydroxychloroquine would keep my skin lupus at bay. However, I'm beginning to realise it is not just the sun and artificial light that my skin is sensitive to.
Newsystem23
in
LUPUS UK
3 months ago
Just saw my first rheumatologist yesterday, very confused by diagnosis?
Can you have negative rheumatoid factor, negative CCP antibodies, no pain, stiffness, swelling or symptoms in the small joints (hands, feet etc) & it still be possible to have rheumatoid arthritis? All of my symptoms for the past 5 and 1/2 months seem to be classical PMR (before I started taking prednisone
Can you have negative rheumatoid factor, negative CCP antibodies, no pain, stiffness, swelling or symptoms in the small joints (hands, feet etc) & it still be possible to have rheumatoid arthritis? All of my symptoms for the past 5 and 1/2 months seem to be classical PMR (before I started taking prednisone
LarMarge6
in
PMRGCAuk
3 months ago
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