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Side effects of JAKAFI
After severe side effects of HU I was lucky enough to be prescribed JAKAFI.. I was so delighted I thought it was going to be the answer to my problems. Sadly no. I started it in May taking 20mg per day. Within a week I had dizziness Which started about an hour of taking it. It's so bad I tripped and
After severe side effects of HU I was lucky enough to be prescribed JAKAFI.. I was so delighted I thought it was going to be the answer to my problems. Sadly no. I started it in May taking 20mg per day. Within a week I had dizziness Which started about an hour of taking it. It's so bad I tripped and
Heather270240
in
MPN Voice
3 years ago
Advice on precautions
Hi everyone i hope you're all enjoying the weekend. Im looking for a bit of advice or experience please from those who have have MF/taking jakafi before covid. Im curious about the precautions you were advised to take and lifestyle changes. This is all really new to me i was only diagnosed in february
Hi everyone i hope you're all enjoying the weekend. Im looking for a bit of advice or experience please from those who have have MF/taking jakafi before covid. Im curious about the precautions you were advised to take and lifestyle changes. This is all really new to me i was only diagnosed in february
Marchhare7
in
MPN Voice
3 years ago
Help make a drug to treat GvHD available to patients
The submissions will help them make recommendations to the provinces and territories regarding funding for ruxolitinib (
Jakavi
), a new treatment for GvHD.
The submissions will help them make recommendations to the provinces and territories regarding funding for ruxolitinib (
Jakavi
), a new treatment for GvHD.
CLL_Canada_Group
in
CLL Support
3 years ago
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PV pinching - seriously can’t take it!
Hi everyone... just need to put this out to people who would understand.... i was diagnosed with PV 3 years ago and had some kind of uneventful itching for years before that but I’m now at a point where I am just so tired of the intense pinching/itching which started a year ago....... I can’t
Hi everyone... just need to put this out to people who would understand.... i was diagnosed with PV 3 years ago and had some kind of uneventful itching for years before that but I’m now at a point where I am just so tired of the intense pinching/itching which started a year ago....... I can’t
Hidden
in
MPN Voice
3 years ago
PV pinching - seriously can’t take it!
Hi everyone... just need to put this out to people who would understand.... i was diagnosed with PV 3 years ago and had some kind of uneventful itching for years before that but I’m now at a point where I am just so tired of the intense pinching/itching which started a year ago....... I can’t
Hi everyone... just need to put this out to people who would understand.... i was diagnosed with PV 3 years ago and had some kind of uneventful itching for years before that but I’m now at a point where I am just so tired of the intense pinching/itching which started a year ago....... I can’t
Hidden
in
MPN Voice
3 years ago
Update after BMB
It's been awhile since my first BMB, but have been recovering & processing the results. I had a hard time with sedation & took me some time to reset myself from that ordeal (getting sick, having two veins blow out with blood draws & iv). I lost weight & only weighed at 104 lbs that day! I was diagnosed
It's been awhile since my first BMB, but have been recovering & processing the results. I had a hard time with sedation & took me some time to reset myself from that ordeal (getting sick, having two veins blow out with blood draws & iv). I lost weight & only weighed at 104 lbs that day! I was diagnosed
Androg
in
MPN Voice
3 years ago
Tratamiento Mielofibrosis
Le están tratando con
Jakavi
. Quisiera saber si hay algún tratamiento alternativo, o consejos sobre alimentación u otros. Saludos, Juan
Le están tratando con
Jakavi
. Quisiera saber si hay algún tratamiento alternativo, o consejos sobre alimentación u otros. Saludos, Juan
zono69
in
Fight MPN
4 years ago
Headache Remedy
Does anyone know if it’s ok to take any other headache medicine alongside 81mg of aspirin and jakafi 20 mg twice daily? I’m newly diagnosed with myelofibrosis and just got insurance so I will be getting a specialist next week. My hemotologist is not good with giving me much info. I have to research
Does anyone know if it’s ok to take any other headache medicine alongside 81mg of aspirin and jakafi 20 mg twice daily? I’m newly diagnosed with myelofibrosis and just got insurance so I will be getting a specialist next week. My hemotologist is not good with giving me much info. I have to research
runnerbird71
in
MPN Voice
3 years ago
myelofibrosis and headaches
hello everyone. i was diagnosed in sept. with myelofibrosis and am jak2 positive. i am 49. i have been having some pretty wicked headaches and was wondering what would be the best remedy. i have been on jakafi for 4 weeks and it has helped my bone pain tremendously and am less fatigued. i have gone
hello everyone. i was diagnosed in sept. with myelofibrosis and am jak2 positive. i am 49. i have been having some pretty wicked headaches and was wondering what would be the best remedy. i have been on jakafi for 4 weeks and it has helped my bone pain tremendously and am less fatigued. i have gone
runnerbird71
in
MPN Voice
3 years ago
Jakafi and Tinnitus
I have developed Tinnitus in both ears in the years I have been taking Jakafi. My red cell count is well controlled, so I don't think it is related to PV. Are there any other members on this list treated with Jakafi who have developed Tinnitus since beginning treatment? Thanks!
I have developed Tinnitus in both ears in the years I have been taking Jakafi. My red cell count is well controlled, so I don't think it is related to PV. Are there any other members on this list treated with Jakafi who have developed Tinnitus since beginning treatment? Thanks!
Psteuer
in
MPN Voice
4 years ago
Low Hemoglobin, New to MPN
He is taking 10mg of
Jakavi
per day(no spleen enlargement) . Except of itching sometimes and tiredness he has no other symptoms. I was wondering if you have thought about medecine for raising his hgb ? Or New drug for PMF or MF (in case of it is the case).
He is taking 10mg of
Jakavi
per day(no spleen enlargement) . Except of itching sometimes and tiredness he has no other symptoms. I was wondering if you have thought about medecine for raising his hgb ? Or New drug for PMF or MF (in case of it is the case).
Ket9255
in
MPN Voice
4 years ago
Blurred vision with PMF AND Jakavi
I developed PMF and was prescribed
Jakavi
a year ago. Eight months later I had blurred vision which continues today. Have other people experienced this problem?
I developed PMF and was prescribed
Jakavi
a year ago. Eight months later I had blurred vision which continues today. Have other people experienced this problem?
Patchworklife
in
MPN Voice
4 years ago
Jakafi for Patients with COVID-19
« Incyte announced that they are working in partnership with the FDA to initiate a phase III clinical trial to evaluate the efficacy and safety of ruxolitinib (Jakafi) plus standard-of-care (SoC), compared to SoC therapy alone, in patients with coronavirus disease 2019 (COVID-19) induced cytokine storm
« Incyte announced that they are working in partnership with the FDA to initiate a phase III clinical trial to evaluate the efficacy and safety of ruxolitinib (Jakafi) plus standard-of-care (SoC), compared to SoC therapy alone, in patients with coronavirus disease 2019 (COVID-19) induced cytokine storm
Manouche
in
MPN Voice
4 years ago
COVID-19 a planned trial for Ruxolitinib (Jakavi) to treat patients
Intervention/treatment: Drug Ruxolitinib (
Jakavi
) Choosing to participate in a study is an important personal decision. Talk with your doctor and family members or friends about deciding to join a study.
Intervention/treatment: Drug Ruxolitinib (
Jakavi
) Choosing to participate in a study is an important personal decision. Talk with your doctor and family members or friends about deciding to join a study.
Mazcd
MPNVoice
in
MPN Voice
4 years ago
Jakafi and Hydroxy
Hi MPN family, Just wondering if anyone is on Jakafi and Hydroxy together. It has been recomended to me and I am very nervous about this. Thanks in advance for your sharing, Jo
Hi MPN family, Just wondering if anyone is on Jakafi and Hydroxy together. It has been recomended to me and I am very nervous about this. Thanks in advance for your sharing, Jo
Joprv
in
MPN Voice
4 years ago
Hello, I'm transitioning from hydroxyurea to jakafi and would like here from others who are on jakafi. What should I expect?
Should I be worried? Are the side effects bad?
Should I be worried? Are the side effects bad?
Cbreeze0182
in
MPN Voice
5 years ago
SMC decision regarding Ruxolitinib (Jakavi) for PV patients in Scotland
MPN Voice asked for your help and feedback in August to support an application to the SMC regarding the prescribing of Ruxolitinib (
Jakavi
) to patients living in Scotland, as it was only available to PV patients via a clinical trial.
MPN Voice asked for your help and feedback in August to support an application to the SMC regarding the prescribing of Ruxolitinib (
Jakavi
) to patients living in Scotland, as it was only available to PV patients via a clinical trial.
Mazcd
MPNVoice
in
MPN Voice
5 years ago
CBD oil help
Is anyone of jakafi and warfarin and takes CBD oil for pain? Has it had any affects on medication or platelet counts? Tia
Is anyone of jakafi and warfarin and takes CBD oil for pain? Has it had any affects on medication or platelet counts? Tia
Vickz299
in
MPN Voice
5 years ago
WEIGHT GAINS WITH JAKAFI
Post by MPN-MATE Admin » Sat Nov 23, 2019 9:53 pm Hey guys... :D As someone who is taking Ruxolitinib, I found this paper's frank admissions rather interesting seeing that the funding is coming from the manufacturers of Ruxolitinib (Jakafi). It is definitely worth a good read, as it explains how
Post by MPN-MATE Admin » Sat Nov 23, 2019 9:53 pm Hey guys... :D As someone who is taking Ruxolitinib, I found this paper's frank admissions rather interesting seeing that the funding is coming from the manufacturers of Ruxolitinib (Jakafi). It is definitely worth a good read, as it explains how
socrates_8
in
MPN Voice
5 years ago
Jakavi a Janus kinase inhibitor ; does anyone know about this Med for the treatment of CLL
I met someone in the waiting room at MDA and he told me about this medication . He has CLL was Watch a wait a couple of years ago 2011 on this since 2013. He is on a clinical trial. It’s approved for myelofibrosis, but now being used for CLL.
I met someone in the waiting room at MDA and he told me about this medication . He has CLL was Watch a wait a couple of years ago 2011 on this since 2013. He is on a clinical trial. It’s approved for myelofibrosis, but now being used for CLL.
LovecuresCLL
in
CLL Support
5 years ago
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