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Jakafi
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Jakafi + Grapefruit
Have those of you on
Jakafi
(ruxolitinib) seen this warning?
ruxolitinib food Applies to:
(ruxolitinib) Do not consume grapefruit or grapefruit juice during treatment with ruxolitinib unless directed otherwise by your doctor.
Have those of you on
Jakafi
(ruxolitinib) seen this warning?
ruxolitinib food Applies to:
(ruxolitinib) Do not consume grapefruit or grapefruit juice during treatment with ruxolitinib unless directed otherwise by your doctor.
hunter5582
in
MPN Voice
9 months ago
Trouble getting interferon?
My MPN specialist is trying to switch me to
Jakafi
, but we are having a hard time keeping RBCs up while getting platelets down. I am still using low doses of HU to keep platelets down, but that tack is also pushing towards anemia.
My MPN specialist is trying to switch me to
Jakafi
, but we are having a hard time keeping RBCs up while getting platelets down. I am still using low doses of HU to keep platelets down, but that tack is also pushing towards anemia.
Owl-fan
in
MPN Voice
7 months ago
Jakafi: When did it relieve your itch?
Hi all - for those on
Jakafi
w/ OV who felt some itch relief, how long did it take? I was diagnosed 5 mg (2x daily) but noticed no change to itch after 1 month, so was then upped to 10 mg (2x daily). After +1 month on that higher dose, still no relief (though noted constipation).
Hi all - for those on
Jakafi
w/ OV who felt some itch relief, how long did it take? I was diagnosed 5 mg (2x daily) but noticed no change to itch after 1 month, so was then upped to 10 mg (2x daily). After +1 month on that higher dose, still no relief (though noted constipation).
TwinMom88
in
MPN Voice
8 months ago
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switch from jakafi (RUX) to Ojjara/momelotinib
has anyone made the switch yet ? The doctor is planning to switch my husband over. He is 74 yrs old with high risk MF. Had taken HU since 2020 then switched to jakifi five months ago but made him more anemic with hemoglobin down to 6.6-7.5 so required blood transfusions monthly Just curious if anyone
has anyone made the switch yet ? The doctor is planning to switch my husband over. He is 74 yrs old with high risk MF. Had taken HU since 2020 then switched to jakifi five months ago but made him more anemic with hemoglobin down to 6.6-7.5 so required blood transfusions monthly Just curious if anyone
Bainbridge
in
MPN Voice
7 months ago
Good news on mutant allele reduction on Jakafi.
Of course, I have no idea of
Jakafi
is responsible for this pretty dramatic reduction, but it seems likely, doesn't it? Keen to hear others' thoughts/experiences.
Of course, I have no idea of
Jakafi
is responsible for this pretty dramatic reduction, but it seems likely, doesn't it? Keen to hear others' thoughts/experiences.
Sewingtime
in
MPN Voice
9 months ago
Changing meds
Today I got my patient education for
Jakafi
. I’m overwhelmed right now. How is everyone doing on
Jakafi
?
Today I got my patient education for
Jakafi
. I’m overwhelmed right now. How is everyone doing on
Jakafi
?
BuckskinAsia
in
MPN Voice
11 months ago
hematocrit 23 - blood transfusion
He was just put on
jakafi
at 10mg twice a day for about a month now He feels much better after changing from droxia to
Jakafi
and his appetite is good and not as anemic..
He was just put on
jakafi
at 10mg twice a day for about a month now He feels much better after changing from droxia to
Jakafi
and his appetite is good and not as anemic..
Bainbridge
in
MPN Voice
11 months ago
Besremi, Pegasys and Jakafi adverse event question?
The title of the slide is "Besremi is far safer than Pegasys and
Jakafi
". It showed that
Jakafi
and Pegasys seem to have way more serious adverse events than Besremi? The source of data suggests it was from FAERs, which seems to be the FDA's data base but I can't verify the numbers.
The title of the slide is "Besremi is far safer than Pegasys and
Jakafi
". It showed that
Jakafi
and Pegasys seem to have way more serious adverse events than Besremi? The source of data suggests it was from FAERs, which seems to be the FDA's data base but I can't verify the numbers.
Joey1025
in
MPN Voice
10 months ago
Jakafi - Low Glucose Levels
Has anyone had any experience like this with
Jakafi
?
Has anyone had any experience like this with
Jakafi
?
Gracey22
in
MPN Voice
1 year ago
Hydroxyurea to give
Since doc change my meds to
Jakafi
and Pegasys, I want to give my HU 1 box (100 caps) to anyone who need it.I can to send it to MPN fellow with this treatment who live in Indonesia, simple because cost of air cargo. Cheers
Since doc change my meds to
Jakafi
and Pegasys, I want to give my HU 1 box (100 caps) to anyone who need it.I can to send it to MPN fellow with this treatment who live in Indonesia, simple because cost of air cargo. Cheers
william-Indo
in
MPN Voice
11 months ago
Switching Drs
The "drug" being
Jakafi
. Having only been on
Jakafi
for 2 months at a very low dose, I disagreed with her and stated I felt good about my platelet drop even though maybe not as drastic as she was looking for.
The "drug" being
Jakafi
. Having only been on
Jakafi
for 2 months at a very low dose, I disagreed with her and stated I felt good about my platelet drop even though maybe not as drastic as she was looking for.
K-itty
in
MPN Voice
8 months ago
Tapering off Jakafi
So, I am supposed to stop taking the 15mg
Jakafi
for the chemo treatment of the AML. I skipped a day of of 15mg, just to see, and my body did not like that at all!! I've been on
Jakafi
for approx 1 year. With the 5mg
Jakafi
I have on order, how fast/slow should I taper off.
So, I am supposed to stop taking the 15mg
Jakafi
for the chemo treatment of the AML. I skipped a day of of 15mg, just to see, and my body did not like that at all!! I've been on
Jakafi
for approx 1 year. With the 5mg
Jakafi
I have on order, how fast/slow should I taper off.
Jwake2
in
MPN Voice
5 months ago
Jakafi
I'm to start on
Jakafi
soon, after not being able to tolerate HU. Are some of you on this site currently on
Jakafi
and what side effects have you experienced? Weight gain, fatigue, hair loss, high cholesterol? How long before you began noticing side effects after starting the RX?
I'm to start on
Jakafi
soon, after not being able to tolerate HU. Are some of you on this site currently on
Jakafi
and what side effects have you experienced? Weight gain, fatigue, hair loss, high cholesterol? How long before you began noticing side effects after starting the RX?
K-itty
in
MPN Voice
1 year ago
Jakafi and constipation
Hi all...reaching out to those of you a on
Jakafi
and are experiencing constipation. I'm actually doing really well on it so far, but the constipation is awful!
Hi all...reaching out to those of you a on
Jakafi
and are experiencing constipation. I'm actually doing really well on it so far, but the constipation is awful!
K-itty
in
MPN Voice
11 months ago
Mylo Fibrosis, et al
I have been on several meds for the latter stages of PV, and now MF, including
Jakafi
(which worked well), but my incidents of Squamous skin cancers went up, which is a known side effect.
I have been on several meds for the latter stages of PV, and now MF, including
Jakafi
(which worked well), but my incidents of Squamous skin cancers went up, which is a known side effect.
luvinretirement
in
MPN Voice
9 months ago
Jakafi
After trying HU and not being able to tolerate the side effects, my oncologist woukd like me to try
Jakafi
. Have any of you tried this for PV or currently on it? If so, what side effects have you experienced if any? Thanks
After trying HU and not being able to tolerate the side effects, my oncologist woukd like me to try
Jakafi
. Have any of you tried this for PV or currently on it? If so, what side effects have you experienced if any? Thanks
K-itty
in
MPN Voice
1 year ago
Dosing Jakafi
After 2 years on Hydrea for CALR ET, 4 weeks ago I started
jakafi
10mg twice a day . Getting cbc every two weeks has shown platelets increasing each time. When I started they were 620ish, 2 weeks later 702, Then yesterday they were 820. Now doc wants me to go to 15mg twice daily.
After 2 years on Hydrea for CALR ET, 4 weeks ago I started
jakafi
10mg twice a day . Getting cbc every two weeks has shown platelets increasing each time. When I started they were 620ish, 2 weeks later 702, Then yesterday they were 820. Now doc wants me to go to 15mg twice daily.
George1976
in
MPN Voice
1 year ago
Jakafi and H/H PCV
Hi Everyone, Hi Everyone, I was on
Jakafi
for about 5 weeks. Labs were fine 2 weeks in and then 2 weeks later Hct/hemoglobin dropped to 36 and 12. I usually run 40-42 and 13-14. Was feeling exhausted and nauseous.
Hi Everyone, Hi Everyone, I was on
Jakafi
for about 5 weeks. Labs were fine 2 weeks in and then 2 weeks later Hct/hemoglobin dropped to 36 and 12. I usually run 40-42 and 13-14. Was feeling exhausted and nauseous.
JeanieRN
in
MPN Voice
1 year ago
Jakafi’s generics: Possible delay in the entry?
, which might be a contender if approved » https://www.delveinsight.com/blog/besremi-
jakafi
-rusfertide-for-polycythemia-vera-treatment
, which might be a contender if approved » https://www.delveinsight.com/blog/besremi-
jakafi
-rusfertide-for-polycythemia-vera-treatment
Manouche
in
MPN Voice
1 year ago
Shocking Price of Jakafi
I have been having lots of side effects from Hydrea, so my Dr. suggested a possible change to
Jakafi
. When I called my mail order pharmacy to price it, I was told that for a 90 day supply it would be $20,857, of which I would have to pay 33% or $6,882! How many people can do that?
I have been having lots of side effects from Hydrea, so my Dr. suggested a possible change to
Jakafi
. When I called my mail order pharmacy to price it, I was told that for a 90 day supply it would be $20,857, of which I would have to pay 33% or $6,882! How many people can do that?
dogsandhorses
in
MPN Voice
1 year ago
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