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Interferon
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Do I start Interferon?
So, my thoughts are that I should continue playing with my graph paper and if the platelet count starts to rise then to consider
Interferon
. Also my haematology consultant didn't even know what the Pegasys pen looked like and if it was just a single dose pen.
So, my thoughts are that I should continue playing with my graph paper and if the platelet count starts to rise then to consider
Interferon
. Also my haematology consultant didn't even know what the Pegasys pen looked like and if it was just a single dose pen.
Quercus53
in
MPN Voice
2 years ago
Myelofibrosis diagnosis
He will be starting Pegasys
interferon
on Monday at a starting dose of 45 micrograms. I've joined this forum to get as much information as possible to help us know what to expect from people who are actually going through the same thing.
He will be starting Pegasys
interferon
on Monday at a starting dose of 45 micrograms. I've joined this forum to get as much information as possible to help us know what to expect from people who are actually going through the same thing.
Mrswhyte2019
in
MPN Voice
2 years ago
MPN and Covid vaxes
.>> ----------- The 2nd study was retrospective with n=74: In ET, INF provides improved response vs HU or aspirin only, but HU is not bad vs aspirin: <<In the ET cohort, spike protein antibody levels were higher (mean 4,151.15 AU/mL) in patients treated with pegylated
interferon
compared to patients
.>> ----------- The 2nd study was retrospective with n=74: In ET, INF provides improved response vs HU or aspirin only, but HU is not bad vs aspirin: <<In the ET cohort, spike protein antibody levels were higher (mean 4,151.15 AU/mL) in patients treated with pegylated
interferon
compared to patients
EPguy
in
MPN Voice
2 years ago
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Probiotics for Parkinson's disease: Current evidence and future directions 2020
Which led me to look for these four probiotics: Lactobacillus acidophilus Lactobacillus reuteri Bifidobacterium bifidum Lactobacillus fermentum As an aside, I found these studies while looking for the probiotics: Reversal in fatigued athletes of a defect in
interferon
γ secretion after administration
Which led me to look for these four probiotics: Lactobacillus acidophilus Lactobacillus reuteri Bifidobacterium bifidum Lactobacillus fermentum As an aside, I found these studies while looking for the probiotics: Reversal in fatigued athletes of a defect in
interferon
γ secretion after administration
Bolt_Upright
in
Cure Parkinson's
2 years ago
Besremi approved. Not what?
And the fact that doctors still don't know how
Interferon
works for MPN's is also concerning. Just sharing. Not sure what I expect anyone to say or recommenced.
And the fact that doctors still don't know how
Interferon
works for MPN's is also concerning. Just sharing. Not sure what I expect anyone to say or recommenced.
Elizka
in
MPN Voice
2 years ago
Extreme reactions to vaccines
I have ET CalR mutation and inject Pegasys
interferon
once a week. I’ve never had any issues with vaccines previous to my diagnosis apart from mild side effects so I’m wondering if my extreme reaction might be to do with Pegasys?
I have ET CalR mutation and inject Pegasys
interferon
once a week. I’ve never had any issues with vaccines previous to my diagnosis apart from mild side effects so I’m wondering if my extreme reaction might be to do with Pegasys?
JojoWonder
in
MPN Voice
2 years ago
Enlarged spleen
Does any one heard about different effect of h.u and peg
interferon
on spleen?since I started to use peg my spleen got bigger from 15-16 to 18 cm
Does any one heard about different effect of h.u and peg
interferon
on spleen?since I started to use peg my spleen got bigger from 15-16 to 18 cm
eladhil
in
MPN Voice
2 years ago
10 facts MPN patients need to know about FDA approval of Ropegylated interferon alpha2b (Besremi).
executive director of Mays Cancer Center, home to UT Health San Antonio MD Anderson Cancer Center, and MPN expert and investigator, discusses the top 10 facts that patients with myeloproliferative neoplasms (especially those with polycythemia vera) need to know about the FDA approval of Ropegylated
interferon
executive director of Mays Cancer Center, home to UT Health San Antonio MD Anderson Cancer Center, and MPN expert and investigator, discusses the top 10 facts that patients with myeloproliferative neoplasms (especially those with polycythemia vera) need to know about the FDA approval of Ropegylated
interferon
Manouche
in
MPN Voice
2 years ago
Combo therapy for PV trial
Hi there, Does anyone has treated with this combo Ruxolitinib and
Interferon
...? Could you share your experince please..? https://www.haematologica.org/article/view/9851
Hi there, Does anyone has treated with this combo Ruxolitinib and
Interferon
...? Could you share your experince please..? https://www.haematologica.org/article/view/9851
william-Indo
in
MPN Voice
2 years ago
Pegasys not working as well with Calr
At one of the recent webinars from the US, a haematologist mentioned that
interferon
doesn't work well with Calr mutation. Can anyone shed any light? Sadly that seems to be my experience, but I think my haematologist might not know about that research. Thanks Jo
At one of the recent webinars from the US, a haematologist mentioned that
interferon
doesn't work well with Calr mutation. Can anyone shed any light? Sadly that seems to be my experience, but I think my haematologist might not know about that research. Thanks Jo
Joetcalr
in
MPN Voice
2 years ago
Some good news...
Call from my haematology consultant, she is very pleased with my results, she is stopping my chemotherapy today, she said my JAK2 gene count is down to 2% and if the numbers etc remain the same she will stop my weekly injection of
interferon
, she said I was in remission, she doesn't understand how it's
Call from my haematology consultant, she is very pleased with my results, she is stopping my chemotherapy today, she said my JAK2 gene count is down to 2% and if the numbers etc remain the same she will stop my weekly injection of
interferon
, she said I was in remission, she doesn't understand how it's
shiftzz
in
MPN Voice
2 years ago
Best time of day for meds??
Is there a best time of the day to take aspirin, HU or an
interferon
shot?? Just wondering if anyone has found a best time of the day for these, as to be most effective with our circadian body clock.
Is there a best time of the day to take aspirin, HU or an
interferon
shot?? Just wondering if anyone has found a best time of the day for these, as to be most effective with our circadian body clock.
MAP44
in
MPN Voice
2 years ago
Allele burden 26%
MPL Et just seen BM result which says MPL allele burden 26% not quite sure if this is high or low or not important been offered HU or peg
interferon
trying to research. Thanks
MPL Et just seen BM result which says MPL allele burden 26% not quite sure if this is high or low or not important been offered HU or peg
interferon
trying to research. Thanks
Sprat19
in
MPN Voice
2 years ago
Update 6.0
One of my MPN pals referred to me as "the
Interferon
Poster Child." That is a title I will gladly accept. Dr. Braunstein did submit a script for Besremi now that it is approved in the USA. My Medicare Part D plan managed by Cigna denied the request.
One of my MPN pals referred to me as "the
Interferon
Poster Child." That is a title I will gladly accept. Dr. Braunstein did submit a script for Besremi now that it is approved in the USA. My Medicare Part D plan managed by Cigna denied the request.
hunter5582
in
MPN Voice
2 years ago
Possible side effects of interferon?
I know
interferon
can cause muscle pain but I imagined something more like the type of aching you get with a flu. Has anyone experienced issues like the ones I describe above? I’m just not sure whether it’s a side effect of the meds or just independent issues.
I know
interferon
can cause muscle pain but I imagined something more like the type of aching you get with a flu. Has anyone experienced issues like the ones I describe above? I’m just not sure whether it’s a side effect of the meds or just independent issues.
AlexWheek
in
MPN Voice
2 years ago
What are your thoughts about Interferon Vs. Hydroxurea?
But I open it up to him he does suggest
interferon
his reason for not making it the first choice is because the
interferon
injection here in Singapore is expensive plus Hydrea have more supporting studies and more cheaper.
But I open it up to him he does suggest
interferon
his reason for not making it the first choice is because the
interferon
injection here in Singapore is expensive plus Hydrea have more supporting studies and more cheaper.
livelovelaugh1992
in
MPN Voice
2 years ago
Phase 3, Trial of Interferon-α versus Hydroxyurea in Polycythemia Vera and Essential Thrombocythemia
PEG was more effective in normalizing counts and reducing JAK2V617F VAF in PV while HU induced more histopathologic responses in ET. https://ashpublications.org/blood/article/doi/10.1182/blood.2021012743/483404/A-Randomized-Phase-3-Trial-of-
Interferon
-versus
PEG was more effective in normalizing counts and reducing JAK2V617F VAF in PV while HU induced more histopathologic responses in ET. https://ashpublications.org/blood/article/doi/10.1182/blood.2021012743/483404/A-Randomized-Phase-3-Trial-of-
Interferon
-versus
Manouche
in
MPN Voice
2 years ago
Mithridate Trial
I took a chance, the chance being if randomised to stay on hydrea I was committing to 3 years and so wouldn't switch to
interferon
. I am very pleased to say I was lucky and got Rux and am now 1 month into the trial.
I took a chance, the chance being if randomised to stay on hydrea I was committing to 3 years and so wouldn't switch to
interferon
. I am very pleased to say I was lucky and got Rux and am now 1 month into the trial.
JP1952
in
MPN Voice
2 years ago
Cellular and humoral immune response to SARS-CoV-2 mRNA vaccines in patients treated with either Ibrutinib or Rituximab
Cell-mediated immunity analysed by the whole blood
Interferon
-γ Release immune Assay developed in 80% of healthy controls, 62% of Rituximab treated, 75% of Ibrutinib treated and 55% of untreated CLL patients.
Cell-mediated immunity analysed by the whole blood
Interferon
-γ Release immune Assay developed in 80% of healthy controls, 62% of Rituximab treated, 75% of Ibrutinib treated and 55% of untreated CLL patients.
gardening-girl
in
CLL Support
2 years ago
INF vs HU, histological response (fibrosis, celluarity, etc) Surprise Result, and Possible Reasons
Many of us, including the authors of the study, were surprised, esp as some of us plan to switch to INF. https://healthunlocked.com/mpnvoice/posts/147415052/phase-3-trial-of-
interferon
-%CE%B1-versus-hydroxyurea-in-polycythemia-vera-and-essential-thrombocythemia?
Many of us, including the authors of the study, were surprised, esp as some of us plan to switch to INF. https://healthunlocked.com/mpnvoice/posts/147415052/phase-3-trial-of-
interferon
-%CE%B1-versus-hydroxyurea-in-polycythemia-vera-and-essential-thrombocythemia?
EPguy
in
MPN Voice
2 years ago
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