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Imbruvica
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ANYBODY ELSE IN AFIB?
Apparently, AFIB is not uncommon for those of us on
Imbruvica
. Anybody else going through this too? Not feeling all that great because of it but grateful to be on
Imbruvica
and I consider it to be the miracle drug.
Apparently, AFIB is not uncommon for those of us on
Imbruvica
. Anybody else going through this too? Not feeling all that great because of it but grateful to be on
Imbruvica
and I consider it to be the miracle drug.
RK69
in
CLL Support
5 years ago
Jaw pain
Anyone have jaw pain while on
Imbruvica
?
Anyone have jaw pain while on
Imbruvica
?
Dom57
in
CLL Support
5 years ago
Imbruvica
I live in Bellflower CA and would like see if there is a system in place to actually speak to someone in person who is taking
Imbruvica
, like a support group. Thank you again
I live in Bellflower CA and would like see if there is a system in place to actually speak to someone in person who is taking
Imbruvica
, like a support group. Thank you again
brooklyn7672
in
CLL Support
5 years ago
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Employer's insurance vs. Medicare for Imbruvica
I am on my employer's Blue Cross Blue Shield plan which has a zero co-pay for
Imbruvica
Other aspects of the BCBS plan are lousy but since
Imbruvica
retails at over $12k per month, I don't think it's worth switching to Medicare yet. My monthly deduction for my BCBS is $112.
I am on my employer's Blue Cross Blue Shield plan which has a zero co-pay for
Imbruvica
Other aspects of the BCBS plan are lousy but since
Imbruvica
retails at over $12k per month, I don't think it's worth switching to Medicare yet. My monthly deduction for my BCBS is $112.
Hidden
in
CLL Support
5 years ago
What Strategies Can Patients Use to Help Treat Skin Irritations From Ibrutinib (Imbruvica)?
Skin issues seem to be a common issue with Ibrutinib and this video from CLL Patient Power might be useful. https://www.patientpower.info/video/what-strategies-can-patients-use-to-help-treat-skin-irritations-from-ibrutinib-
imbruvica
?autoplay=1 Jackie
Skin issues seem to be a common issue with Ibrutinib and this video from CLL Patient Power might be useful. https://www.patientpower.info/video/what-strategies-can-patients-use-to-help-treat-skin-irritations-from-ibrutinib-
imbruvica
?autoplay=1 Jackie
Jm954
Administrator
in
CLL Support
5 years ago
Other things to consider
You would want to know if you need teeth work if at some point you're going to start on
imbruvica
or other types of chemo. Best to not have teeth problems when you start chemo.
You would want to know if you need teeth work if at some point you're going to start on
imbruvica
or other types of chemo. Best to not have teeth problems when you start chemo.
oldguy68
in
CLL Support
5 years ago
Nutrition & lifestyle changes instead of just pills
I had no interest in reading about food until I was put on
Imbruvica
and had painful side effects. Research and education helped me. I hope it helps you. Good luck.
I had no interest in reading about food until I was put on
Imbruvica
and had painful side effects. Research and education helped me. I hope it helps you. Good luck.
Hidden
in
CLL Support
5 years ago
Nausea and Imbruvica
I have completed 6 weeks of
Imbruvica
. Has worked wonders on my sinus issues. My question for those of you on this medication is concerning the nausea. I am on meds for this and does not appear to be working. Will this nausea diminish in time? Thank You
I have completed 6 weeks of
Imbruvica
. Has worked wonders on my sinus issues. My question for those of you on this medication is concerning the nausea. I am on meds for this and does not appear to be working. Will this nausea diminish in time? Thank You
Sallybroadhurst
in
CLL Support
5 years ago
Double dose of imbruvica... I’m a idiot!!!
I took my 3 pills of
imbruvica
at my normal time this evening. With out thinking 30 min later I took it again and only realized what I had done after I swallowed!!!! Yikes double dose... it’s 9:20pm in Ontario Canada. Have to work tomorrow will anything bad happen? P.S.
I took my 3 pills of
imbruvica
at my normal time this evening. With out thinking 30 min later I took it again and only realized what I had done after I swallowed!!!! Yikes double dose... it’s 9:20pm in Ontario Canada. Have to work tomorrow will anything bad happen? P.S.
AM75
in
CLL Support
5 years ago
Sequential and combination treatments with novel agents in chronic lymphocytic leukemia (including target illustration) - Oct 2019
the pinned posts section : https://healthunlocked.com/cllsupport/posts#pinned of which these are the most imporant: https://healthunlocked.com/cllsupport/posts/private/141809481/hypertension-cv-events-on-ibrutinib https://healthunlocked.com/cllsupport/posts/139010348/must-read-for-those-on-ibrutinib-
imbruvica
-dangerous-advice-in-pilot-study-on-lower-dosing-incl
the pinned posts section : https://healthunlocked.com/cllsupport/posts#pinned of which these are the most imporant: https://healthunlocked.com/cllsupport/posts/private/141809481/hypertension-cv-events-on-ibrutinib https://healthunlocked.com/cllsupport/posts/139010348/must-read-for-those-on-ibrutinib-
imbruvica
-dangerous-advice-in-pilot-study-on-lower-dosing-incl
AussieNeil
Administrator
in
CLL Support
5 years ago
Blotching of Face
I am a 70 year old male who has been on
Imbruvica
for 16 months. For the most part the meds have had a positive effect.... lymph nodes 50+ percent down in size, white blood cells reduced to normal guidelines.
I am a 70 year old male who has been on
Imbruvica
for 16 months. For the most part the meds have had a positive effect.... lymph nodes 50+ percent down in size, white blood cells reduced to normal guidelines.
Audrey10
in
CLL Support
5 years ago
Imbruvica Aches & Pains
Hello Again, I hate being a pain or sounding like a cry baby but I have been on
Imbruvica
for 7 weeks now and have dealt with Mouth Blisters, Aches in the fingers, thumbs and ankles along with some bruises. For the last week now I have a sharp pain under my right breast going towards my back.
Hello Again, I hate being a pain or sounding like a cry baby but I have been on
Imbruvica
for 7 weeks now and have dealt with Mouth Blisters, Aches in the fingers, thumbs and ankles along with some bruises. For the last week now I have a sharp pain under my right breast going towards my back.
oso7672
in
CLL Support
5 years ago
Cll
What happens if you forget for one day to take your
Imbruvica
. For cll
What happens if you forget for one day to take your
Imbruvica
. For cll
anniefrankie8679
in
CLL Support
5 years ago
Can't tolerate Imbruvica, what's next?
His lymph nodes start to swell in his neck, like he has the mumps, and get painful, so he'll take an
Imbruvica
now and then, which of course is not the way one is suppose to do the treatment. He took some 5 days, felt poisoned again, and quit.
His lymph nodes start to swell in his neck, like he has the mumps, and get painful, so he'll take an
Imbruvica
now and then, which of course is not the way one is suppose to do the treatment. He took some 5 days, felt poisoned again, and quit.
Snooks2008
in
CLL Support
5 years ago
Kimchi ?
I have CLL and take
Imbruvica
. Today I asked my hematologist if I can consume Kimchi and he said: Yes. (Kimchi contains beneficial bacteria which increasingly a considered vital for the gut-biom which in turn is increasingly observed as influential on the brain nervous system) .
I have CLL and take
Imbruvica
. Today I asked my hematologist if I can consume Kimchi and he said: Yes. (Kimchi contains beneficial bacteria which increasingly a considered vital for the gut-biom which in turn is increasingly observed as influential on the brain nervous system) .
vog292
in
CLL Support
5 years ago
Chapped lips on Imbruvica
Has anyone who is on
Imbruvica
had trouble with extremely chapped lips. My husband has been on
Imbruvica
about 16 months with minimal side effects but has nagging little things like the chapped lips that doesn’t go away with usual things used to treat that. Any suggestions?
Has anyone who is on
Imbruvica
had trouble with extremely chapped lips. My husband has been on
Imbruvica
about 16 months with minimal side effects but has nagging little things like the chapped lips that doesn’t go away with usual things used to treat that. Any suggestions?
Sis1Ap3
in
CLL Support
5 years ago
Rosa on Imbruvica
I am starting my 8th week on
Imbruvica
and am starting to feel lots of aches in the bones, mostly my fingers and thumb, now right at my rib cage. Anyone feel the same? The ones in the fingers went away after 3-5 days and the one in the thumb is still continuing after 3 days.
I am starting my 8th week on
Imbruvica
and am starting to feel lots of aches in the bones, mostly my fingers and thumb, now right at my rib cage. Anyone feel the same? The ones in the fingers went away after 3-5 days and the one in the thumb is still continuing after 3 days.
oso7672
in
CLL Support
5 years ago
Kimchi pro or con ?
I take
Imbruvica
for CLL. Any information about effects of KIMCHI pro or con ?
I take
Imbruvica
for CLL. Any information about effects of KIMCHI pro or con ?
vog292
in
CLL Support
5 years ago
Start IMBRUVICA or not
My Hemotologist recommends I start
IMBRUVICA
. I cannot decide to start or wait.
My Hemotologist recommends I start
IMBRUVICA
. I cannot decide to start or wait.
Turbinator
in
CLL Support
5 years ago
Itchy skin
Good morning, My husband is on
imbruvica
and has developed a severe rash all over his body. He is constantly scratching and often times causes it to bleed. His ankles swell up as well. Anyone else having this reaction.
Good morning, My husband is on
imbruvica
and has developed a severe rash all over his body. He is constantly scratching and often times causes it to bleed. His ankles swell up as well. Anyone else having this reaction.
spinning1
in
CLL Support
5 years ago
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